Sitemap

Site Map
Home
The James Lind Alliance brings patients, carers and clinicians together through JLA priority setting partnerships to prioritise research questions for the benefit of health research funders.
About us
The JLA believes that patients, carers and clinicians should work together to agree which treatment uncertainties deserve attention and funding.
About PSPs
“This PSP has been a truly collaborative effort and ...
How do I set up a PSP?
When setting up your own Priority Setting Partnership (PSP), it is important that you read through the JLA Guidebook to understand the steps involved.
Templates and useful documents
A list of documents and templates useful when creating a PSP.
Using the JLA logo
Instructions for using the JLA logo on documents.
JLA Advisers
James Lind Alliance (JLA) Advisers are independent consultants who ...
History
The James Lind Alliance (JLA) was established in 2004 ...
What people say
As well as getting more research funded in a health area, PSPs have other benefits
The PSPs
Find out about all current and completed Priority Setting Partnerships, collaborations between clinicians and patients to identify research priorities.
Acne
 
Top 10 priorities
The top 10 priorities for the Acne PSP
Adolescent and Young Adult Cancer (Canada)
Each year, nearly 9,200 Canadian adolescents and young adults ...
Adult Social Work
More information about James Lind Alliance research priority setting work defining what the future research priorities are in social work for adults
Why did we do this
 
How did we do it
 
Who was involved
We had a Steering Group, which is the group ...
The survey
 
What social workers do
 
Top 10 Priorities
How is availability of funding impacting on (a) adult ...
Advanced Heart Failure
 
Top 10 priorities
Which treatments have the biggest impact on the quality ...
Priority 1 from the Advanced Heart Failure PSP
UNCERTAINTY: Which treatments have the biggest impact on the quality ...
Priority 3 from the Advanced Heart Failure PSP
UNCERTAINTY: What is the most empowering and effective education and ...
Priority 4 from the Advanced Heart Failure PSP
UNCERTAINTY: How can the work of heart failure charities be ...
Priority 5 from the Advanced Heart Failure PSP
UNCERTAINTY: Which approaches, in additional to standard therapies, are effective ...
Priority 6 from the Advanced Heart Failure PSP
UNCERTAINTY: How do we break down barriers for patients with ...
Priority 7 from the Advanced Heart Failure PSP
UNCERTAINTY: What are the benefits of asking a person with ...
Priority 8 from the Advanced Heart Failure PSP
UNCERTAINTY: What is the most effective way to use diuretics ...
Priority 9 from the Advanced Heart Failure PSP
UNCERTAINTY: How can advanced heart failure patients and professionals be ...
Priority 10 from the Advanced Heart Failure PSP
UNCERTAINTY: What support would be most effective for carers of ...
Priority 11 from the Advanced Heart Failure PSP
UNCERTAINTY: Which approaches are effective in reducing fatigue in people ...
Priority 12 from the Advanced Heart Failure PSP
UNCERTAINTY: Can the long-term care needs of people with advanced ...
Priority 14 from the Advanced Heart Failure PSP
UNCERTAINTY: Which approaches are effective in helping people with advanced ...
Priority 13 from the Advanced Heart Failure PSP
UNCERTAINTY:How can healthcare professionals manage the expectations of people ...
Priority 15 from the Advanced Heart Failure PSP
UNCERTAINTY: How do health professionals explain how advanced heart failure ...
Priority 16 from the Advanced Heart Failure PSP
UNCERTAINTY: What percentage of people with advanced heart failure have ...
Priority 17 from the Advanced Heart Failure PSP
UNCERTAINTY: How can we distinguish between co-morbidities (other chronic conditions) ...
Priority 18 from the Advanced Heart Failure PSP
UNCERTAINTY: How do people get support to continue as their ...
Priority 19 from the Advanced Heart Failure PSP
UNCERTAINTY: Which healthcare professional is most appropriate for people with ...
Priority 20 from the Advanced Heart Failure PSP
UNCERTAINTY: Do health professionals understand the life / activity / ...
Priority 21 from the Advanced Heart Failure PSP
UNCERTAINTY: Is there an ‘App’ to help people manage advanced ...
Priority 22 from the Advanced Heart Failure PSP
UNCERTAINTY: How do health professionals best manage chronic kidney disease ...
Priority 23 from the Advanced Heart Failure PSP
UNCERTAINTY: How do health professionals respond when people with advanced ...
Priority 24 from the Advanced Heart Failure PSP
UNCERTAINTY: What is the optimum time to discuss deactivation of ...
Priority 25 from the Advanced Heart Failure PSP
UNCERTAINTY: What helps with symptoms from peripheral oedema experienced by ...
Priority 2 from the Advanced Heart Failure PSP
UNCERTAINTY: What amount and type of exercise is safe and ...
Alcohol-related Liver Disease
Information about James Lind Alliance research priority setting work defining what the future research priorities are in alcohol-related liver disease
Top 10 priorities
The priority areas for future research around alcohol-related liver disease, agreed in September 2016
Priority 1 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: What are the most effective ways to help people ...
Priority 2 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: What are the most effective ways of delivering healthcare ...
Priority 3 from the Alcohol-related Liver Disease PSP
 
Priority 4 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: What is the patient's experience of alcohol-related liver disease? (JLA PSP ...
Priority 5 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: Do attitudes to perceived 'self-induced illness' amongst healthcare ...
Priority 6 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: What are the most effective strategies to reduce ...
Priority 7 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: Does the stigma associated with alcohol misuse affect ...
Priority 8 from the Alcohol-related Liver Disease PSP
 
Priority 9 from the Alcohol-related Liver Disease PSP
 
Priority 10 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: What models of involvement of palliative care services ...
Priority 11 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: Are there any early signs of alcohol-related liver ...
Priority 12 from the Alcohol-related Liver Disease PSP
 
Priority 13 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: What effect would greater alcohol-related liver disease education/training ...
Priority 14 from the Alcohol-related Liver Disease PSP
 
Priority 15 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: What dietary recommendations or supplements (including herbal and ...
Priority 16 from the Alcohol-related Liver Disease PSP
 
Priority 17 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: What are the most effective messages and how ...
Priority 18 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: Are there any effective treatments for alcohol-related liver ...
Priority 19 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: What are the obstacles for individuals to modification ...
Priority 20 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: What lifestyle interventions improve outcomes in alcohol-related liver ...
Priority 21 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: What level and pattern of drinking behaviour affects the ...
Priority 22 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: To what degree is established liver disease reversible?  ...
Priority 23 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: What are the most effective interventions delivered in ...
Priority 24 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: What interventions improve survival in severe alcohol-related hepatitis?  (JLA PSP ...
Priority 25 from the Alcohol-related Liver Disease PSP
UNCERTAINTY: Is there a difference between the outcome of alcohol-related ...
About the PSP
More information about the JLA Alcohol-related Liver Disease Priority Setting Partnership
Who was involved
Information about the Steering Group responsible for coordinating and organising the Alcohol-related Liver disease PSP.
Partners and support
How the James Lind Alliance partner organisations played a vital role in the priority setting process.
Anaesthesia and perioperative care
 
Top 10 priorities
(in no order of priority) What can we do to stop ...
Anaesthesia (Canada)
 
Top 10 Priorities
Which factors before, during, and after receiving anesthesia for ...
Priority 1 from the Anaesthesia (Canada) PSP
UNCERTAINTY: Which factors before, during, and after receiving anesthesia for ...
Priority 2 from the Anaesthesia (Canada) PSP
UNCERTAINTY: What are the impacts of involving patients in shared ...
Priority 3 from the Anaesthesia (Canada) PSP
UNCERTAINTY: What data should be collected from patients about ...
Priority 4 from the Anaesthesia (Canada) PSP
UNCERTAINTY: How can errors and patient injuries in anesthesia care ...
Priority 5 from the Anaesthesia (Canada) PSP
UNCERTAINTY: How can outcomes in frail and/or elderly patients be ...
Priority 6 from the Anaesthesia (Canada) PSP
UNCERTAINTY: What is the impact of reducing opioids (a type ...
Priority 7 from the Anaesthesia (Canada) PSP
UNCERTAINTY: What preparation, treatment, or assessment before receiving anesthesia ...
Priority 8 from the Anaesthesia (Canada) PSP
UNCERTAINTY: How can patients’ feedback about their experiences before, during ...
Priority 9 from the Anaesthesia (Canada) PSP
UNCERTAINTY: How can anesthesiologists improve pain control after surgery?  (JLA PSP ...
Priority 10 from the Anaesthesia (Canada) PSP
UNCERTAINTY: What are the common long-term side effects of ...
Priority 11 from the Anaesthesia (Canada) PSP
UNCERTAINTY: What are the impacts of cannabis on anesthesia care ...
Priority 12 from the Anaesthesia (Canada) PSP
UNCERTAINTY: How can anesthesiologists better use current (or create new) ...
Priority 13 from the Anaesthesia (Canada) PSP
UNCERTAINTY: What choices in anesthesia care can improve patient outcomes, ...
Priority 14 from the Anaesthesia (Canada) PSP
UNCERTAINTY: How well are patients supported after they are discharged ...
Priority 15 from the Anaesthesia (Canada) PSP
UNCERTAINTY: Are there specific surgeries for which regional anesthesia blocks ...
Priority 16 from the Anaesthesia (Canada) PSP
UNCERTAINTY: How can health in frail and/or elderly patients be ...
Priority 17 from the Anaesthesia (Canada) PSP
UNCERTAINTY: What are the impacts of anesthesia team communication on ...
Priority 18 from the Anaesthesia (Canada) PSP
UNCERTAINTY: What is the evidence for better patient outcomes for ...
Priority 19 from the Anaesthesia (Canada) PSP
UNCERTAINTY: What is the relationship between anesthetic drugs and post-operative ...
Priority 20 from the Anaesthesia (Canada) PSP
UNCERTAINTY: What strategies can help reduce delirium after receiving anesthesia ...
Priority 21 from the Anaesthesia (Canada) PSP
UNCERTAINTY: What is the evidence for eating and drinking before ...
Priority 22 from the Anaesthesia (Canada) PSP
UNCERTAINTY: How does having the same anesthesiologist and care team ...
Priority 23 from the Anaesthesia (Canada) PSP
UNCERTAINTY: What anesthesiologist factors impact patient outcomes? (JLA PSP Priority 23) Overall ...
Priority 24 from the Anaesthesia (Canada) PSP
UNCERTAINTY: Does the type or size of hospital impact the ...
Smell and Taste Disorders
 
Top 10 priorities
 
Asthma
 
Top 10 priorities
The top 10 priorities of the Asthma PSP
Priority 1 from the Asthma PSP
UNCERTAINTY: a) What are the adverse effects associated with long ...
Priority 2 from the Asthma PSP
UNCERTAINTY: What is the most effective way of managing ...
Priority 3 from the Asthma PSP
UNCERTAINTY: What are the key components of successful "Self ...
Priority 4 from the Asthma PSP
UNCERTAINTY: What is the most effective strategy to educate ...
Priority 5 from the Asthma PSP
UNCERTAINTY: What is the most effective way of managing ...
Priority 6 from the Asthma PSP
UNCERTAINTY: What is the role of complementary therapies in ...
Priority 7 from the Asthma PSP
UNCERTAINTY: What are the benefits of breathing exercises as ...
Priority 8 from the Asthma PSP
UNCERTAINTY: What type of patient (children and adults) and ...
Priority 9 from the Asthma PSP
UNCERTAINTY: What is the most effective way to manage ...
Priority 10 from the Asthma PSP
UNCERTAINTY: Psychological interventions for adults with asthma?  (JLA PSP Priority ...
Autism
 
Top 10 priorities
 
Autosomal Dominant Polycystic Kidney Disease
 
Top 10 priorities
What treatments can be developed that slow or prevent ...
Priority 1 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY: What treatments can be developed that slow or prevent ...
Priority 2 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY: Which people with ADPKD would benefit from early treatment ...
Priority 3 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY: What are the best ways to organise the care ...
Priority 5 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY:What are the benefits and harms of drugs that ...
Priority 6 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY:For people with ADPKD experiencing pain, what treatments work ...
Priority 7 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY:What changes to lifestyle, exercise and/or diet (including amount ...
Priority 9 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY:What are the benefits and harms of screening for ...
Priority 10 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY: What causes enlarged blood vessels (aneurysms) in some people ...
Priority 11 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY: What symptoms are associated with cyst infection in people ...
Priority 12 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY:What causes severe (acute) and long-term (chronic) kidney pain ...
Priority 14 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY: In which circumstances should removal of a kidney ...
Priority 17 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY: Why do the symptoms and severity of polycystic ...
Priority 4 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY: What effect does pregnancy have on women with ADPKD ...
Priority 8 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY: When people are newly diagnosed with ADPKD, how does ...
Priority 13 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY: What are the most effective treatments for high blood ...
Priority 15 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY: Does early treatment of high blood pressure improve the ...
Priority 16 from the Autosomal Dominant Polycystic Kidney Disease Project
UNCERTAINTY: When a person is found to have kidney cysts ...
Bipolar
 
Bleeding Disorders
More information about work to set research priorities in bleeding disorders, with the James Lind Alliance
Top 10 priorities
What is the role and cost effectiveness of blood ...
Priority 1 from the Bleeding Disorder PSP
UNCERTAINTY: What is the role and cost effectiveness of blood ...
Priority 2 from the Bleeding Disorder PSP
UNCERTAINTY: How can we balance the risk and benefit of ...
Priority 3 from the Bleeding Disorder PSP
UNCERTAINTY: What is the best haematological approach to management of ...
Priority 4 from the Bleeding Disorder PSP
UNCERTAINTY: How should heavy periods be managed in women ...
Priority 5 from the Bleeding Disorder PSP
UNCERTAINTY: What is the relationship between immune thrombocytopenic purpura (ITP) ...
Priority 6 from the Bleeding Disorder PSP
UNCERTAINTY: What are the most effective treatments for acute ...
Priority 7 from the Bleeding Disorder PSP
UNCERTAINTY: What are the benefits of psychological and psychosocial strategies ...
Priority 8 from the Bleeding Disorder PSP
UNCERTAINTY: What are the genetic and environmental factors that predispose ...
Priority 9 from the Bleeding Disorder PSP
UNCERTAINTY: What is the best way to prevent or treat ...
Priority 10 from the Bleeding Disorder PSP
UNCERTAINTY: In people with haemophilia, what is the best way ...
Priority from the Bleeding Disorder PSP
UNCERTAINTY: Can a home testing device to record low platelets ...
Priority from the Bleeding Disorder PSP
UNCERTAINTY: What is the role of exercise for both prevention ...
Priority from the Bleeding Disorder PSP
UNCERTAINTY: What is the impact of the gut microbiome on ...
Priority from the Bleeding Disorder PSP
UNCERTAINTY: What activities are NOT safe to do with any ...
Priority from the Bleeding Disorder PSP
UNCERTAINTY: In people with haemophilia, what are the most effective ...
Priority from the Bleeding Disorder PSP
UNCERTAINTY: What causes the onset of immune thrombocytopenic purpura (ITP))? Overall ...
Priority from the Bleeding Disorder PSP
UNCERTAINTY: Is there an effective substitute for steroids in the ...
Priority from the Bleeding Disorder PSP
UNCERTAINTY: When is treatment for immune thrombocytopenic purpura (ITP) required? Overall ...
Priority from the Bleeding Disorder PSP
UNCERTAINTY: What causes exacerbations of immune thrombocytopenic purpura (ITP)? Overall ranking This ...
Priority from the Bleeding Disorder PSP
UNCERTAINTY: What is the psychological impact and burden of being ...
Priority from the Bleeding Disorder PSP
UNCERTAINTY: How can immediate (at the bedside/in the clinic) ultrasound ...
Priority from the Bleeding Disorder PSP
UNCERTAINTY: For people with haemophilia, can giving factor via a ...
Priority from the Bleeding Disorder PSP
UNCERTAINTY: Are there factors other than “the number of joint ...
Priority from the Bleeding Disorder PSP
UNCERTAINTY: Can haemorrhage after delivery, and its recurrence in subsequent ...
Priority from the Bleeding Disorder PSP
UNCERTAINTY:  What overall (total) level of coagulation activity do you ...
Blood Pressure in Pregnancy
 
Top 10 priorities
What are the long term physical and mental health ...
Priority 1 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: What are the long term physical and mental health ...
Priority 3 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: What is the best screening test for pre-eclampsia? (JLA PSP ...
Priority 2 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: How can we predict and prevent shorter term complications ...
Priority 4 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: Following pregnancy hypertension, what is the best way to ...
Priority 5 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: What is the cause of pregnancy hypertension (including pre-eclampsia)? ...
Priority 6 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: How can pregnancy hypertension (including pre-eclampsia) be prevented in ...
Priority 7 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: What are the educational needs of healthcare professionals managing ...
Priority 8 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: What is the best way to diagnose pre-eclampsia promptly? ...
Priority 9 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: What is the best way to manage pregnancy hypertension ...
Priority 10 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: How can we provide better support for women with ...
Priority 11 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: What pre-pregnancy management of women with chronic hypertension optimises ...
Priority 12 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: What is the effectiveness and safety of antihypertensive agents ...
Priority 13 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: What can be done prior to pregnancy to reduce ...
Priority 14 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY:Is there a hereditary link in pre-eclampsia and are ...
Priority 15 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: How can we optimise information giving for those at ...
Priority 16 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: What are the fetal, infant and child outcomes in ...
Priority 17 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: What are the optimum blood pressure thresholds (for initiation) ...
Priority 18 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: What are the optimum blood pressure thresholds (for initiation) ...
Priority 19 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: How does the placenta contribute to pre-eclampsia?  (JLA PSP Priority ...
Priority 20 from the Blood Pressure in Pregnancy PSP
UNCERTAINTY: What is the effectiveness and safety of pharmacological treatments ...
Blood transfusion and blood donation
 
Top 10 priorities
What would encourage more people (especially black and ethnic ...
Priority 1 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: What would encourage more people (especially black and ethnic ...
Priority 2 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: How can health professionals be discouraged from using ...
Priority 3 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: How can the wastage of donor blood be ...
Priority 4 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: What is the optimal type and combination of ...
Priority 5 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: How can patients, relatives and carers be empowered ...
Priority 6 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: How can patients with anaemia be identified and ...
Priority 7 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: What are the best drug alternatives to blood ...
Priority 8 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: How can the blood transfusion process be delivered ...
Priority 9 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: What medical conditions make it unsafe for a ...
Priority 10 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: What are the most effective ways to educate ...
Priority 11 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: What is the psychological impact of blood transfusion ...
Priority 12 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: How can donation sessions be organised to make ...
Priority 13 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: Which patients groups would benefit most from artificial ...
Priority 14 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: Are drugs* a cost effective alternative to blood ...
Priority 15 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: How can any negative long term effects of ...
Priority 16 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: What characteristics identify patients who would benefit from ...
Priority 17 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: Does the use of oral or intravenous iron ...
Priority 18 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: What is the best administrative process for hospital ...
Priority 19 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: At what haemoglobin level [blood count] should a ...
Priority 20 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: Do patients and their relatives and/or carers receive ...
Priority 21 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: What is the impact of iron deficiency on ...
Priority 22 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: What is the optimal blood transfusion dose [number ...
Priority 23 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: How cost effective is cell salvage for the ...
Priority 24 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: At what haemoglobin level [blood count] should a ...
Priority 25 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: How can the immediate side effects of receiving ...
Priority 26 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: At what haemoglobin level [blood count] should a ...
Priority 27 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: If the blood taken from a donor shows ...
Priority 28 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: How should patients who refuse blood transfusion be ...
Priority 29 from the Blood Transfusion and Blood Donation PSP
UNCERTAINTY: Why aren't previous recipients of a blood product ...
Breast Cancer Surgery
 
Top 10 priorities
 
Breathlessness
In the UK, one in 10 people and nearly ...
Broken bones in older people
The research priority setting work of the James Lind Alliance PSP.
Top 10 priorities
What is the best physiotherapy and/or occupational therapy regime ...
Broken Bones of the Upper Limb in People over 50
More details about JLA PSP research priority setting work in people over 50 with fractures of the shoulder, arm or wrist
Top 10 priorities
What are the most important outcomes after an upper ...
Priority 1 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: What are the most important outcomes after an upper ...
Priority 2 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: What type of information should patients over 50 with ...
Priority 3 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: What is the best physical rehabilitation programme for people ...
Priority 4 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: In people over 50, what is the patient experience ...
Priority 5 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: What is the best alternative to medication / drugs ...
Priority 6 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: What is the best physical rehabilitation programme for people ...
Priority 7 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: Which are the most important factors which decide whether ...
Priority 8 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: What is the best surgical management for an upper ...
Priority 9 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: What is the best way of treating people over ...
Priority 10 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: For people over 50, how well does a wrist ...
Priority 11 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: What is the best way to manage an upper ...
Priority 12 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: Does a delay in physical rehabilitation of an upper ...
Priority 13 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: When is the best time to operate on an ...
Priority 14 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: Does when, how and who manipulates an upper limb ...
Priority 15 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: Does the way in which rehabilitation is delivered (e.g. ...
Priority 16 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: What are the best pain-relieving drugs to use at ...
Priority 17 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: Can we predict who will do well with rehabilitation ...
Priority 18 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: Does compliance with rehabilitation following an upper limb fracture ...
Priority 19 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: What is the best way to treat a nerve ...
Priority 20 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: What is the best way to manage upper limb ...
Priority 21 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: What is the best form of anaesthetic (medication to ...
Priority 22 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: Is day surgery (no overnight hospital stay) for upper ...
Priority 23 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: Does showing people over 50 with an upper limb ...
Priority 24 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: What information should be provided about casts / splints ...
Priority 25 from the Broken Bones of the Upper Limb in People over 50
UNCERTAINTY: What is the best follow up pathway for people ...
Burn Injury Global
 
Cardiac Arrest (Canada)
 
Top 10 priorities
 
Cardiomyopathy
Cardiomyopathy is group of conditions that affect the structure ...
Cavernoma
 
Top 10 priorities
The top 10 priorities of the Cavernoma PSP
Cellulitis
 
Top 10 priorities
How can healthcare professionals be best supported to accurately ...
Childhood disability
 
Top 10 priorities
Does the timing and intensity of therapies (e.g. physical, ...
Childhood Hearing Loss and Deafness
The Childhood Hearing Loss and Deafness PSP was launched in ...
Childhood Neurological Conditions
 
Top 10 priorities
Can early therapy interventions improve functional and developmental outcomes ...
Childhood Physical Disability (Canada)
The Childhood Physical Disability PSP (Canada) will work with patients, ...
Children's Cancer
 
Top 10 priorities
Can we find effective and kinder (less burdensome, more ...
Cleft Lip and Palate
 
Top 10 priorities
What types of psychological intervention (individual therapy, community or ...
Coeliac Disease
Explains the work of the James Lind Alliance Priority Setting Partnership in Coeliac Disease, which is setting future research priorities
Coexisting Dementia and Hearing Conditions
 
Common Conditions Affecting the Hand and Wrist
Details of the research priority setting work between patients and health professionals around common conditions of the hand and wrist
Top 10 priorities
(In no order of priority) Can scar/fibrosis formation be manipulated ...
Community Nursing
 
Top 10 priorities
 
Complex Fractures
 
Top 10 Priorities
 
Priority 1 from the Complex Fractures PSP
UNCERTAINTY: What is the best way to reduce the ...
Priority 2 from the Complex Fractures PSP
UNCERTAINTY: What is the optimal outpatient rehabilitation strategy for ...
Priority 3 from the Complex Fractures PSP
UNCERTAINTY: What psychological support would be useful for patients ...
Priority 4 from the Complex Fractures PSP
UNCERTAINTY:Is it possible to determine which patients will develop ...
Priority 5 from the Complex Fractures PSP
UNCERTAINTY:What are the options for preventing and treating chronic ...
Priority 6 from the Complex Fractures PSP
UNCERTAINTY: What is important to patients recovering from complex fractures? ...
Priority 7 from the Complex Fractures PSP
UNCERTAINTY: What additional care and support is helpful for patients ...
Priority 8 from the Complex Fractures PSP
UNCERTAINTY: When is it better to replace, fix or fuse ...
Priority 9 from the Complex Fractures PSP
UNCERTAINTY:Can peer support (from other patients) be used to ...
Priority 10 from the Complex Fractures PSP
UNCERTAINTY:Can patients be provided with expected recovery times for ...
Priority 11 from the Complex Fractures PSP
UNCERTAINTY: When is it safe to start weight-bearing and joint ...
Priority 12 from the Complex Fractures PSP
UNCERTAINTY: What information would be helpful to give to patients ...
Priority 13 from the Complex Fractures PSP
UNCERTAINTY: In patients with multiple injuries, which fractures need fixing ...
Priority 14 from the Complex Fractures PSP
UNCERTAINTY: What is the best way to predict which ...
Priority 15 from the Complex Fractures PSP
UNCERTAINTY:How can we assess and improve bone health after ...
Priority 16 from the Complex Fractures PSP
UNCERTAINTY: What is the best strategy for preventing blood ...
Priority 17 from the Complex Fractures PSP
UNCERTAINTY: What is the best bone defect reconstruction option in ...
Priority 18 from the Complex Fractures PSP
UNCERTAINTY: Should metalwork routinely be removed after surgery and when? ...
Concussion (Canada)
 
Top 10 priorities
The most important ...
Congenital Heart Disease
 
Top 10 priorities
Top 10 priorities for child/antenatal congenital heart disease research: How ...
Ear nose and throat - Aspects of balance
 
Top 10 priorities
What is the optimal process for GP education and ...
Congenital Diaphragmatic Hernia (Australia)
 
Contraception
 
Top 10 priorities
Which interventions (decision support aids, ease of access, motivational ...
Priority 1 from the Contraception PSP
UNCERTAINTY: Which interventions (decision support aids, ease of access ...
Priority 2 from the Contraception PSP
UNCERTAINTY: What is the risk of side effects (vaginal ...
Priority 3 from the Contraception PSP
UNCERTAINTY: What are the long-term effects of using contraception ...
Priority 4 from the Contraception PSP
UNCERTAINTY: What models of care increase access and support ...
Priority 5 from the Contraception PSP
UNCERTAINTY: Which interventions are safe and effective for women ...
Priority 6 from the Contraception PSP
UNCERTAINTY: Does pharmacy provision of contraceptive services increase uptake ...
Priority 7 from the Contraception PSP
UNCERTAINTY: What are the risks or benefits to using ...
Priority 8 from the Contraception PSP
UNCERTAINTY: What factors (advice from friends, family, professionals, beliefs, ...
Priority 9 from the Contraception PSP
UNCERTAINTY: Are there tests or factors such as age ...
Priority 10 from the Contraception PSP
UNCERTAINTY: Are there effective new methods of contraception available ...
Priority 11 from the Contraception PSP
UNCERTAINTY: What are the most effective methods of promoting ...
Priority 12 from the Contraception PSP
UNCERTAINTY: What are the benefits and risks of using ...
Priority 13 from the Contraception PSP
UNCERTAINTY: If the progestogen-only pill was available over the ...
Priority 14 from the Contraception PSP
UNCERTAINTY: What is the risk of stroke for women ...
Priority 15 from the Contraception PSP
UNCERTAINTY: Are there health risks for women who take ...
Priority 16 from the Contraception PSP
UNCERTAINTY: Do progestogens used alone or in combined hormonal ...
Priority 17 from the Contraception PSP
UNCERTAINTY: Are there factors (ethnicity, past experience) that can ...
Priority 18 from the Contraception PSP
UNCERTAINTY: Does providing women who are pregnant with information ...
Priority 19 from the Contraception PSP
UNCERTAINTY: Do models of care (video information, telephone assessments, ...
Priority 20 from the Contraception PSP
UNCERTAINTY: How effective are 'natural family planning methods' (monitoring ...
Priority 21 from the Contraception PSP
UNCERTAINTY: Are intrauterine contraceptives (IUC) affected if not correctly ...
Priority 22 from the Contraception PSP
UNCERTAINTY: What are the health risks (osteoporosis, bone fracture) ...
Priority 23 from the Contraception PSP
UNCERTAINTY: Does ovulation, menstrual cycles and fertility return to ...
Priority 24 from the Contraception PSP
UNCERTAINTY: How frequently do women stop using the implant ...
Priority 25 from the Contraception PSP
UNCERTAINTY: How common is it for side effects (mood/weight ...
Priority 26 from the Contraception PSP
UNCERTAINTY: What methods of pain relief are effective during ...
Priority 27 from the Contraception PSP
UNCERTAINTY: Why aren't there progestogen only transdermal patches, gels, ...
Priority 28 from the Contraception PSP
UNCERTAINTY: Why don't more young women choose to use ...
Priority 29 from the Contraception PSP
UNCERTAINTY: What risk factors are there for deep insertion ...
COPD Flare-ups
 
COPD Exacerbation Top 10 priorities
What can prevent exacerbations of COPD? What is the best ...
Priority 1 from the COPD Exacerbation PSP
UNCERTAINTY: What can prevent exacerbations of COPD?  (JLA PSP Priority 1) Overall ...
Priority 2 from the COPD Exacerbation PSP
UNCERTAINTY: What is the best way to tell the start ...
Priority 3 from the COPD Exacerbation PSP
UNCERTAINTY: What is the best way to tell the difference ...
Priority 4 from the COPD Exacerbation PSP
UNCERTAINTY: What is the optimal combination of treatments at COPD ...
Priority 5 from the COPD Exacerbation PSP
UNCERTAINTY: What are the associations between co-morbidity (other medical conditions) ...
Priority 6 from the COPD Exacerbation PSP
UNCERTAINTY: Which palliative care regimes should be used to treat ...
Priority 7 from the COPD Exacerbation PSP
UNCERTAINTY: Why do some exacerbations recur (happen again) following treatment? ...
Priority 8 from the COPD Exacerbation PSP
UNCERTAINTY: What are the risks and benefits of 'rescue packs' ...
Priority 9 from the COPD Exacerbation PSP
UNCERTAINTY: How does the presence of anxiety and depression affect ...
Priority 10 from the COPD Exacerbation PSP
UNCERTAINTY: What are the risks and benefits of long-term antibiotics ...
Priority 11 from the COPD Exacerbation PSP
UNCERTAINTY: What is the best way to treat breathlessness during ...
Priority 12 from the COPD Exacerbation PSP
UNCERTAINTY: When should a COPD exacerbation be treated with steroids ...
Priority 13 from the COPD Exacerbation PSP
UNCERTAINTY: What is the value of integrated respiratory teams (health-care ...
Priority 14 from the COPD Exacerbation PSP
UNCERTAINTY: What is the role of nutrition in the prevention ...
Priority 15 from the COPD Exacerbation PSP
UNCERTAINTY: What factors determine whether someone with a COPD exacerbation ...
Priority 16 from the COPD Exacerbation PSP
UNCERTAINTY: Does regular exercise reduce the risk of having an ...
Critical Care Asia and Africa
Identifying stakeholders' priorities for research to improve critical care ...
Critical Care Medicine (Canada)
Critical care medicine (both adult and pediatric) is a ...
Cystic Fibrosis
 
Top 10 priorities
The Top 10 future research priorities in Cystic Fibrosis, agreed on 13th January 2017 by patients, carers and health professionals with experience of the condition
Cystic Fibrosis Refresh
In January 2017 the JLA PSP in Cystic Fibrosis published its ...
Cystic Fibrosis Refresh Top 10 priorities
What options are available for those not able to ...
Degenerative Cervical Myelopathy
 
Top 10 Priorities
What strategies can be used to increase awareness and ...
Priority 1 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What strategies can be used to increase awareness and ...
Priority 2 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What is the natural history of DCM? What is ...
Priority 3 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What is the diagnostic criteria of DCM? When should ...
Priority 4 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: How can the severity of DCM be evaluated? What ...
Priority 5 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What is the pathophysiology of DCM? What are the ...
Priority 6 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What is the role of rehabilitation following surgery for ...
Priority 7 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY:Can novel therapies, including stem-cell, gene, pharmacological and neuroprotective ...
Priority 8 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What is the socio-economic impact of DCM? (The financial ...
Priority 9 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What is the role of dynamic imaging and novel, ...
Priority 10 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: Are there clinical and imaging factors that can help ...
Priority 11 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What are the main signs and symptoms that a ...
Priority 12 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What is the optimal follow-up for patients managed conservatively ...
Priority 13 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What are the most effective therapies for treatment of ...
Priority 14 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What are the factors that predict the development of ...
Priority 15 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What are the most important determinants of functional outcomes, ...
Priority 16 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What clinical and/or imaging features are predictive of neurologic ...
Priority 17 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What are the risk factors for the development or ...
Priority 18 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What is the ideal timing for surgical intervention? (JLA ...
Priority 19 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What is the efficacy and safety of non-operative treatment ...
Priority 20 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What are the most effective therapies for treating pain ...
Priority 21 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What is the preferred management strategy for patients with ...
Priority 22 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: Can CSF or serum biomarkers be identified to support ...
Priority 23 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What lifestyle modifications (such as physical activity or exercise) ...
Priority 24 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What is the role of surgery in the management ...
Priority 26 from the Degenerative Cervical Myelopathy PSP
UNCERTAINTY: What is the incidence of adjacent segment degeneration following ...
Dementia
 
Top 10 priorities
What are the most effective components of care that ...
Dementia (Canada)
 
Top 10 priorities
The priorities for research around Dementia in Canada
Depression
 
Top 10 priorities
What are the most effective ways to prevent occurrence ...
Detecting Cancer Early
 
Top 10 priorities
What simple, non-invasive, painless, cost-effective, and convenient tests can ...
Developmental Childhood Stammering
 
Diabetes and Pregnancy
 
Top 10 priorities
These are the research priorities agreed by patients, carers and clinicians in a James Lind Alliance Priority Setting Partnerships that completed in 2020.
Diabetes (type 1)
 
Top 10 priorities
Is it possible to constantly and accurately monitor blood ...
Diabetes (type 2)
 
Top 10 uncertainties
Can type 2 diabetes be cured or reversed, what ...
Diabetic Eye Disease in Low- and Middle-Income Countries
 
Dialysis (Canada)
 
Top 10 uncertainties
 
Digital Health for Heart Health
The Digital Health for Heart Health PSP will work ...
Digital Technology for Adolescents and Young Persons with Inflammatory Bowel Disease
 
The top 10
The most important ...
Digital Technology for Mental Health
A summary of the James Lind Alliance Priority Setting Partnership identifying and prioritising future research questions are using digital technologies for mental health
Top 10 Priorities
What are the benefits and risks of delivering mental ...
Priority 1 from the Digital Technology for Mental Health PSP
UNCERTAINTY: What are the benefits and risks of delivering ...
Priority 2 from the Digital Technology for Mental Health PSP
UNCERTAINTY: How do certain mental health conditions (e.g. depression) ...
Priority 3 from the Digital Technology for Mental Health PSP
UNCERTAINTY: How can treatment outcomes be maximised by combining existing ...
Priority 4 from the Digital Technology for Mental Health PSP
UNCERTAINTY: At what point in the care pathway (e.g. crisis ...
Priority 5 from the Digital Technology for Mental Health PSP
UNCERTAINTY: How should apps for mental health be evaluated and ...
Priority 6 from the Digital Technology for Mental Health PSP
UNCERTAINTY: What impacts will the adoption of digital technology ...
Priority 7 from the Digital Technology for Mental Health PSP
UNCERTAINTY: Are therapies (e.g. CBT) delivered via digital technology as ...
Priority 8 from the Digital Technology for Mental Health PSP
UNCERTAINTY: Can the common elements of therapy (e.g. empathy, gestures, ...
Priority 9 from the Digital Technology for Mental Health PSP
UNCERTAINTY: Do digital health interventions increase reach and access to ...
Priority 10 from the Digital Technology for Mental Health PSP
UNCERTAINTY: How can social media be used more effectively to ...
Priority 11 from the Digital Technology for Mental Health PSP
UNCERTAINTY: In what ways can digital technologies effectively support or ...
Priority 12 from the Digital Technology for Mental Health PSP
UNCERTAINTY: Are digital technologies (e.g. apps, telephone support, text ...
Priority 13 from the Digital Technology for Mental Health PSP
UNCERTAINTY: Does digital technology help or hinder the goal of ...
Priority 14 from the Digital Technology for Mental Health PSP
UNCERTAINTY: How do people with mental health problems experience digital ...
Priority 15 from the Digital Technology for Mental Health PSP
UNCERTAINTY: How can duty of care be upheld when using ...
Priority 16 from the Digital Technology for Mental Health PSP
UNCERTAINTY: How well can digital technology (without human support) replace ...
Priority 17 from the Digital Technology for Mental Health PSP
UNCERTAINTY: What is the evidence that digital interventions increase access ...
Priority 18 from the Digital Technology for Mental Health PSP
UNCERTAINTY: What digital technologies are effective at preventing mental health ...
Priority 19 from the Digital Technology for Mental Health PSP
UNCERTAINTY: How effective are online forums (e.g. personal support groups) ...
Priority 20 from the Digital Technology for Mental Health PSP
UNCERTAINTY: What are the potentially harmful effects of apps designed ...
Priority 21 from the Digital Technology for Mental Health PSP
UNCERTAINTY: Does using social media worsen mental health problems in ...
Priority 22 from the Digital Technology for Mental Health PSP
UNCERTAINTY: How effective, safe and reliable are mobile apps (offering, ...
Priority 23 from the Digital Technology for Mental Health PSP
UNCERTAINTY: How can digital technology be integrated alongside standard care ...
Priority 24 from the Digital Technology for Mental Health PSP
UNCERTAINTY: Does the use of computerised therapies for mental health ...
Priority 25 from the Digital Technology for Mental Health PSP
UNCERTAINTY: Are psychological therapies delivered using video conferencing (such as ...
Priority 26 from the Digital Technology for Mental Health PSP
UNCERTAINTY: How can digital technologies be used to help connect ...
Dystrophic Epidermolysis Bullosa (Spain)
 
Top ten uncertainties
Which wound care method obtains better outcomes (improved healing, ...
Early hip and knee osteoarthritis
 
East London Pandemic PSP for Ethnic Minority Communities
 
Eating Disorders (Australia)
 
Top 10 priorities
 
Eating Disorders (Canada)
The Canadian Eating Disorder Priority Setting Partnership (CEDPSP) was ...
Top 10 Priorities
 
Eating disorders (Netherlands)
 
Top 10 Priorities
 
Priority 1 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: Which factors influence the duration of recovery and the ...
Priority 2 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: Which patient and disorder-related features can be used to ...
Priority 3 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: Is it more effective to address the eating disorder ...
Priority 4 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: What is the most effective treatment (and order of ...
Priority 5 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: Which treatment setting (outpatient, at home, day treatment, inpatient/residential, ...
Priority 6 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: How can loved ones contribute to the recovery process ...
Priority 7 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: Are there specific risk factors for the development of ...
Priority 8 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: What is the influence of the quality of the ...
Priority 9 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: Is it better to use a protocol based on ...
Priority 10 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: What causes the need for self-destructive behaviour in patients ...
Priority 11 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: What is needed to ensure that contacts between clients ...
Priority 12 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: What predicts the development of an eating disorder? Are ...
Priority 13 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: What is the best way to educate the direct ...
Priority 14 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: What is the impact of the shared and non-shared ...
Priority 15 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: What role do genetic factors play in the development ...
Priority 16 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: Which therapies have a positive effect on reducing binge ...
Priority 17 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: What is the most effective / best treatment for ...
Priority 18 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: What is an effective treatment for men with eating ...
Priority 19 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: What is the relationship between the eating disorder and ...
Priority 20 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: What is the relationship between hormone levels and eating ...
Priority 21 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: What influence can type 1 diabetes have on the ...
Priority 22 from the Eating Disorders (Netherlands) PSP
UNCERTAINTY: Are eating disorder patients more competitive than their peers?  (JLA ...
Eczema
 
Top 10 priorities
Shared priorities (important to patients and health professionals) What is ...
Elbow Conditions
 
Top 10 Priorities
 
Electronic cigarettes
 
Top 10 priorities
What are the long term effects of vaping? Compared ...
Priority 1 from the Electronic Cigarettes PSP
UNCERTAINTY: What are the long term effects of vaping? Compared ...
Emergency medicine
 
Top 10 priorities
What is the best way to reduce the harms ...
Emergency Medicine Refresh
In January 2017 the JLA PSP in Emergency Medicine PSP published ...
Top 10 priorities
How can care for mental health patients be optimised, ...
Endometriosis
 
Epilepsy
 
Top 10 priorities
What are the causes and contributing factors of epilepsy-related ...
Epilepsy 2009 priority setting
A summary of work done to set research priorities in Epilepsy in 2009
Epilepsy (Canada)
 
Top 10 Priorities
 
Priority 1 from the Epilepsy (Canada) PSP
UNCERTAINTY: Can genetic markers be used to diagnose and treat ...
Priority 2 from the Epilepsy (Canada) PSP
UNCERTAINTY: What are the impacts of long-term use of  anti-seizure ...
Priority 3 from the Epilepsy (Canada) PSP
UNCERTAINTY: What are the long-term impacts of seizures on a ...
Priority 4 from the Epilepsy (Canada) PSP
UNCERTAINTY: How can the risk of SUDEP (Sudden Unexpected Death ...
Priority 5 from the Epilepsy (Canada) PSP
UNCERTAINTY: What is the most effective testing protocol for determining ...
Priority 6 from the Epilepsy (Canada) PSP
UNCERTAINTY: What are the brain changes, on a cellular level, ...
Priority 7 from the Epilepsy (Canada) PSP
UNCERTAINTY: How effective is surgical treatment for adult and children ...
Priority 8 from the Epilepsy (Canada) PSP
UNCERTAINTY:What causes memory problems associated with seizures? Can these ...
Priority 9 from the Epilepsy (Canada) PSP
UNCERTAINTY: Aside from anti-seizure drugs and some brain lesions, what ...
Priority 10 from the Epilepsy (Canada) PSP
UNCERTAINTY: What is the efficacy (i.e. the effectiveness of reducing ...
Priority 11 from the Epilepsy (Canada) PSP
UNCERTAINTY: How do seizures impact the mood of people who ...
Priority 12 from the Epilepsy (Canada) PSP
UNCERTAINTY: Are cannabis products (e.g. Marijuana, CBD oil) a safe ...
Priority 13 from the Epilepsy (Canada) PSP
UNCERTAINTY: Is there a relationship between hormonal changes (e.g. puberty, ...
Priority 14 from the Epilepsy (Canada) PSP
UNCERTAINTY: Is it safe to wean a person who has ...
Priority 15 from the Epilepsy (Canada) PSP
UNCERTAINTY:What are the best ways to support people who ...
Priority 16 from the Epilepsy (Canada) PSP
UNCERTAINTY: What non-drug lifestyle treatments (e.g., cardiovascular exercise, yoga) are ...
Faecal Incontinence in Adults
Faecal incontinence is a common, devastating condition with a ...
Fibromyalgia (Canada)
 
Top 10 priorities
 
First Time Soft Tissue Knee Injuries
 
Top 10 priorities
How urgently do soft tissue knee injuries need to ...
Foot Health
 
Top 10 Priorities
How does poor foot health impact on people's lives ...
Priority 1 from the Foot Health PSP
UNCERTAINTY: How does poor foot health impact on people's lives ...
Priority 2 from the Foot Health PSP
UNCERTAINTY: What can people who are categorised as 'high risk' ...
Priority 3 from the Foot Health PSP
UNCERTAINTY: How important are specialised tests (such as diagnostic ultrasound ...
Priority 4 from the Foot Health PSP
UNCERTAINTY: What is the impact on health and social care ...
Priority 5 from the Foot Health PSP
UNCERTAINTY: Are current clinical pathways (treatment plans) fit for delivering ...
Priority 6 from the Foot Health PSP
UNCERTAINTY: What is the impact of delayed or infrequent foot ...
Priority 7 from the Foot Health PSP
UNCERTAINTY: What are the most effective therapies for treating musculoskeletal ...
Priority 8 from the Foot Health PSP
UNCERTAINTY: What evidence is there that foot health research is ...
Priority 9 from the Foot Health PSP
UNCERTAINTY:How do health professionals prevent/reduce the risk of foot ...
Priority 10 from the Foot Health PSP
UNCERTAINTY: How can people prevent foot health problems?  (JLA PSP Priority ...
Priority 11 from the Foot Health PSP
UNCERTAINTY: What are the most effective ways of managing foot ...
Priority 12 from the Foot Health PSP
UNCERTAINTY: Do foot orthoses (including insoles/gel devices/ankle supports) reduce foot ...
Priority 13 from the Foot Health PSP
UNCERTAINTY: What education and training do health care professionals (other ...
Priority 14 from the Foot Health PSP
UNCERTAINTY: Would the early assessment of foot health in school ...
Priority 15 from the Foot Health PSP
UNCERTAINTY: What are the most effective ways to provide education ...
Priority 16 from the Foot Health PSP
UNCERTAINTY: What level of priority is given to foot health ...
Priority 17 from the Foot Health PSP
UNCERTAINTY: How do health professionals provide people with clear guidance ...
Priority 18 from the Foot Health PSP
UNCERTAINTY: What are the most common factors that PREVENT people ...
Priority 19 from the Foot Health PSP
UNCERTAINTY: What are the best ways to treat toe deformities ...
Priority 20 from the Foot Health PSP
UNCERTAINTY: What are the best ways to treat pain that ...
Priority 21 from the Foot Health PSP
UNCERTAINTY: How can foot problems be better represented in the ...
Priority 22 from the Foot Health PSP
UNCERTAINTY: How are common nail and skin foot infections ...
Priority 23 from the Foot Health PSP
UNCERTAINTY: What are the most effective ways to enable ...
Priority 24 from the Foot Health PSP
UNCERTAINTY:Is there equal access to foot care across the ...
Priority 25 from the Foot Health PSP
UNCERTAINTY: Who are the appropriately qualified health professionals that people ...
Priority 26 from the Foot Health PSP
UNCERTAINTY: What general information do people need to know about ...
Priority 27 from the Foot Health PSP
UNCERTAINTY: How do people currently access foot health services for ...
Foot and Ankle Surgery
 
Top 10 priorities
 
Frailty (Canada)
More information about the work of this James Lind Alliance PSP in Canada
Top 10 priorities
The research priorities chosen by patients, carers and clinicians in Canada in 2017 around Frailty
Hair loss
 
Top 10 priorities
for Alopecia areata (includes totalis, universalis and barbae) What are ...
Healthcare associated infections
 
Top 10 priorities
How can infections be identified early? How can we change ...
Priority 1 from the Healthcare Associated Infections PSP
UNCERTAINTY: How can infections be identified early? (Priority 1) Overall ranking 1 JLA question ...
Priority 2 from the Healthcare Associated Infections PSP
UNCERTAINTY: How can we change the behaviour of healthcare professionals ...
Priority 3 from the Healthcare Associated Infections PSP
UNCERTAINTY: Can point-of-care testing (bedside testing) in the primary care ...
Priority 4 from the Healthcare Associated Infections PSP
UNCERTAINTY: What is the most effective cleaning agent to prevent ...
Priority 5 from the Healthcare Associated Infections PSP
UNCERTAINTY: Can antibiotic stewardship policies (including decreased antibiotic prescription) decrease ...
Priority 6 from the Healthcare Associated Infections PSP
UNCERTAINTY: How can we educate patients to look for clinical ...
Priority 7 from the Healthcare Associated Infections PSP
UNCERTAINTY: What is the role of change of bacteria in ...
Priority 8 from the Healthcare Associated Infections PSP
UNCERTAINTY: In people with antibiotic resistant bacteria, what is the ...
Priority 9 from the Healthcare Associated Infections PSP
UNCERTAINTY: Does infection prevention and control training of patients and ...
Priority 10 from the Healthcare Associated Infections PSP
UNCERTAINTY: How can the development and severity of urinary tract ...
Priority 11 from the Healthcare Associated Infections PSP
UNCERTAINTY: How can we alter the public perception of antibiotics ...
Priority 12 from the Healthcare Associated Infections PSP
UNCERTAINTY: How does individualised antimicrobial dosing compare with standard dosing ...
Priority 13 from the Healthcare Associated Infections PSP
UNCERTAINTY: Is screening and isolation of patients with antibiotic resistant ...
Priority 14 from the Healthcare Associated Infections PSP
UNCERTAINTY: How effective is alcohol gel in preventing HCAI? (Priority ...
Priority 15 from the Healthcare Associated Infections PSP
UNCERTAINTY: How can we improve general hygiene and hand hygiene ...
Priority 16 from the Healthcare Associated Infections PSP
UNCERTAINTY: Is outpatient antibiotic therapy better than inpatient antibiotic therapy ...
Priority 17 from the Healthcare Associated Infections PSP
UNCERTAINTY: Can nanotechnology (that is working with very small particles) ...
Priority 18 from the Healthcare Associated Infections PSP
UNCERTAINTY: How can chest infections be prevented in elderly people ...
Priority 19 from the Healthcare Associated Infections PSP
UNCERTAINTY: Does antibiotic prescription based on point-of-care (bedside) C-reactive protein ...
Priority 20 from the Healthcare Associated Infections PSP
UNCERTAINTY: Does keeping intravenous lines connected for 72 hours ...
Priority 21 from the Healthcare Associated Infections PSP
UNCERTAINTY: How can we improve the resources available to healthcare ...
Priority 22 from the Healthcare Associated Infections PSP
UNCERTAINTY: How can we improve the antimicrobial prescription by junior ...
Priority 23 from the Healthcare Associated Infections PSP
UNCERTAINTY: Should the requirement for urinary catheters be periodically reviewed ...
Priority 24 from the Healthcare Associated Infections PSP
UNCERTAINTY: What are the alternatives to single room isolation of ...
Priority 25 from the Healthcare Associated Infections PSP
UNCERTAINTY: Do sensor operated taps, toilet lids, and door opening ...
Priority 26 from the Healthcare Associated Infections PSP
UNCERTAINTY: Are single-day antibiotics better than longer course of antibiotics ...
Priority 27 from the Healthcare Associated Infections PSP
UNCERTAINTY: What is the risk posed to the patients admitted ...
Priority 28 from the Healthcare Associated Infections PSP
UNCERTAINTY: How can we improve the awareness of health-care professionals ...
Priority 29 from the Healthcare Associated Infections PSP
UNCERTAINTY: What is the best antibiotic treatment for urinary tract ...
Priority 30 from the Healthcare Associated Infections PSP
UNCERTAINTY: Are bacteriophages better than antibiotics in people with antibiotic ...
Head and Neck Cancer (Alberta, Canada)
Head and Neck Cancer is the sixth most common ...
The Top 10 Priorities
What is the best overall treatment combination or regimen ...
Heart Surgery
Describes the work of the James Lind Alliance Priority Setting Partnership to set research priorities around adult heart surgery
Top 10 Priorities
How does a patient’s quality of life (QOL) change ...
Priority 1 from the Heart Surgery PSP
UNCERTAINTY: How does a patient quality of life (QOL) change ...
Priority 2 from the Heart Surgery PSP
UNCERTAINTY: How can we address frailty and improve the management ...
Priority 3 from the Heart Surgery PSP
UNCERTAINTY: How can we improve the outcomes of heart surgery ...
Priority 4 from the Heart Surgery PSP
UNCERTAINTY: Does prehabilitation (a programme of nutritional, exercise and psychological ...
Priority 5 from the Heart Surgery PSP
UNCERTAINTY: When should heart valve intervention occur for patients without ...
Priority 6 from the Heart Surgery PSP
UNCERTAINTY:How does minimally-invasive heart surgery compare to traditional open ...
Priority 7 from the Heart Surgery PSP
UNCERTAINTY: How do we minimise damage to organs from heart-lung ...
Priority 8 from the Heart Surgery PSP
UNCERTAINTY: Can we use 3D bioprinting or stem cell technology ...
Priority 9 from the Heart Surgery PSP
UNCERTAINTY: What are the most effective ways of preventing and ...
Priority 10 from the Heart Surgery PSP
UNCERTAINTY: How do we reduce and manage infections after heart ...
Priority 11 from the Heart Surgery PSP
UNCERTAINTY: How can we improve the communication between the medical ...
Priority 12 from the Heart Surgery PSP
UNCERTAINTY: What are the benefits of heart surgery in older ...
Priority 13 from the Heart Surgery PSP
UNCERTAINTY: What are the long-term outcomes, including life expectancy, after ...
Priority 14 from the Heart Surgery PSP
UNCERTAINTY: What are the best ways to prevent, diagnose and ...
Priority 15 from the Heart Surgery PSP
UNCERTAINTY: Does ERAS (Enhanced Recovery After Surgery) improve outcomes in ...
Priority 16 from the Heart Surgery PSP
UNCERTAINTY: Does having access to specialist cardiac nurses or consultants ...
Priority 17 from the Heart Surgery PSP
UNCERTAINTY: What is the best strategy for managing acute heart ...
Priority 18 from the Heart Surgery PSP
UNCERTAINTY: What can patients do (in terms of their lifestyle ...
Priority 19 from the Heart Surgery PSP
UNCERTAINTY: How do transcutaneous techniques for heart valve surgery compare ...
Priority 20 from the Heart Surgery PSP
UNCERTAINTY: What are the best cardiovascular medications for management in ...
Priority 21 from the Heart Surgery PSP
UNCERTAINTY: Do outcomes of heart surgery and follow-up time vary ...
Hidradenitis suppurativa
 
Top 10 priorities
Please click on each question for more detailed information: What ...
Priority 1 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: What is the most effective and safe group of ...
Priority 2 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: What is the best management of an acute Hidradenitis ...
Priority 3 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: What is the impact of Hidradenitis Suppurativa and the ...
Priority 4 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How effective are biologics (etanercept, adalimumab, infliximab, ustekinumab) in ...
Priority 5 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: Does early diagnosis and aggressive treatment influence the course ...
Priority 6 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: What is the best surgical procedure to perform in ...
Priority 7 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: Which factors are useful in determining the prognosis (disease ...
Priority 8 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: What is the best method of wound care ...
Priority 9 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: To what extent is Hidradenitis Suppurativa caused by genetic ...
Priority 10 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: What is the best management of pain associated with ...
Priority 11 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: Is Hidradenitis Suppurativa an autoimmune disease?  (JLA PSP Priority ...
Priority 12 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How do we improve awareness of Hidradenitis Suppurativa amongst ...
Priority 13 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How effective are oral treatments that affect the immune ...
Priority 14 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: When is the best time to consider surgery to ...
Priority 15 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How effective are topical antiseptics in treating Hidradenitis Suppurativa? ...
Priority 16 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How effective are retinoids i.e acitretin, isotretinoin in treating ...
Priority 17 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How much do hormonal factors (puberty, menstruation, polycystic ovary ...
Priority 18 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: Which oral antibiotic regimen is the most effective in ...
Priority 19 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How effective and safe are short term or long ...
Priority 20 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How effective are hormone therapies, including spironolactone, for Hidradenitis ...
Priority 21 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: Is there an effective method (lifestyle, medical or surgery) ...
Priority 22 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: Does weight reduction improve symptoms in people with Hidradenitis ...
Priority 23 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How effective is metformin in treating Hidradenitis Suppurativa? (JLA ...
Priority 24 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: What causes the itching that can be associated with ...
Priority 25 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: Is surgery effective in treating Hidradenitis Suppurativa? (JLA PSP ...
Priority 26 from the Hidradenitis Suppurativa PSP
UNCERTAINTY:What is the best psychological support for people with ...
Priority 27 from the Hidradenitis Suppurativa PSP
UNCERTAINTY:Does smoking affect Hidradenitis Suppurativa? (JLA PSP Priority 27) Overall ...
Priority 28 from the Hidradenitis Suppurativa PSP
UNCERTAINTY:Does diet have any effect on the severity of ...
Priority 29 from the Hidradenitis Suppurativa PSP
UNCERTAINTY:Does stress trigger a flare of Hidradenitis Suppurativa? (JLA ...
Priority 30 from the Hidradenitis Suppurativa PSP
UNCERTAINTY:Are natural products or dietary supplements (e.g. turmeric, zinc, ...
Hip and knee replacement for osteoarthritis
 
Top 10 priorities
What are the most important patient and clinical outcomes ...
Priority 1 from the Hip and Knee Replacement for Osteoarthritis PSP
UNCERTAINTY: What are the most important patient and clinical outcomes ...
Priority 2 from the Hip and Knee Replacement for Osteoarthritis PSP
UNCERTAINTY: What is the optimal timing for hip and knee ...
Priority 3 from the Hip and Knee Replacement for Osteoarthritis PSP
UNCERTAINTY: In people with OA, what are their pre operative ...
Priority 4 from the Hip and Knee Replacement for Osteoarthritis PSP
UNCERTAINTY: What (health service) pre-operative, intra-operative, and post-operative factors can ...
Priority 5 from the Hip and Knee Replacement for Osteoarthritis PSP
UNCERTAINTY: What is the best pain control regime pre-operatively, peri-operatively, ...
Priority 6 from the Hip and Knee Replacement for Osteoarthritis PSP
UNCERTAINTY: What are the best techniques to control longer term ...
Priority 7 from the Hip and Knee Replacement for Osteoarthritis PSP
UNCERTAINTY: What are the long-term outcomes of non surgical treatments ...
Priority 8 from the Hip and Knee Replacement for Osteoarthritis PSP
UNCERTAINTY: What is the most effective pre and post operative ...
Priority 9 from the Hip and Knee Replacement for Osteoarthritis PSP
UNCERTAINTY: What is an ideal postoperative follow up period and ...
Priority 10 from the Hip and Knee Replacement for Osteoarthritis PSP
UNCERTAINTY: What is the best way to protect patients from ...
Hyperacusis
 
Top 10 priorities
What is the most effective treatment approach for hyperacusis ...
Priority 3 from the Hyperacusis PSP
UNCERTAINTY: Are there different meaningful types of hyperacusis? (JLA PSP Priority ...
Priority 1 from the Hyperacusis PSP
UNCERTAINTY: What is the most effective treatment approach for hyperacusis ...
Priority 2 from the Hyperacusis PSP
UNCERTAINTY: What is the prevalence of hyperacusis in a general ...
Priority 4 from the Hyperacusis PSP
UNCERTAINTY: What is the essential knowledge/training required for health professionals ...
Priority 5 from the Hyperacusis PSP
UNCERTAINTY: Which treatment approaches are most effective for different types ...
Priority 6 from the Hyperacusis PSP
UNCERTAINTY: Is hyperacusis due to physical or psychological issues or ...
Priority 8 from the Hyperacusis PSP
UNCERTAINTY: What management approach for hyperacusis is most effective for ...
Priority 9 from the Hyperacusis PSP
UNCERTAINTY: What is the best way of using sound in ...
Priority 10 from the Hyperacusis PSP
UNCERTAINTY: Which self-help interventions are effective for hyperacusis? (JLA PSP Priority ...
Priority 11 from the Hyperacusis PSP
UNCERTAINTY: What are the risk factors for developing hyperacusis or ...
Priority 12 from the Hyperacusis PSP
UNCERTAINTY: Which interventions in a school setting are useful for ...
Priority 13 from the Hyperacusis PSP
UNCERTAINTY: Which drugs are effective for hyperacusis? (JLA PSP Priority 13) Overall ...
Priority 14 from the Hyperacusis PSP
UNCERTAINTY: Which criteria should be met to diagnose hyperacusis in ...
Priority 15 from the Hyperacusis PSP
UNCERTAINTY: What is the most effective treatment approach for hyperacusis ...
Priority 16 from the Hyperacusis PSP
UNCERTAINTY: Is hyperacusis related to physical changes in the ear ...
Priority 17 from the Hyperacusis PSP
UNCERTAINTY: Is there an association between hyperacusis and other ear-related ...
Priority 18 from the Hyperacusis PSP
UNCERTAINTY: What area(s) of the brain and patterns of activity ...
Priority 19 from the Hyperacusis PSP
UNCERTAINTY: What is the relationship between mental health and hyperacusis? ...
Priority 20 from the Hyperacusis PSP
UNCERTAINTY: What is the best way to differentiate hyperacusis from ...
Priority 21 from the Hyperacusis PSP
UNCERTAINTY: What care is most effective for recent onset/acute hyperacusis? ...
Priority 23 from the Hyperacusis PSP
UNCERTAINTY: What are the 'red flags' for serious underlying conditions ...
Priority 24 from the Hyperacusis PSP
UNCERTAINTY: What is the association between hyperacusis and dementia? (JLA PSP ...
Priority 25 from the Hyperacusis PSP
UNCERTAINTY: Does avoidance of sound improve hyperacusis or make it ...
Priority 26 from the Hyperacusis PSP
UNCERTAINTY: Does nerve damage cause the pain associated with hyperacusis? ...
Priority 27 from the Hyperacusis PSP
UNCERTAINTY: Is hyperacusis linked to other sensitivities/conditions? (JLA PSP Priority 27) Overall ...
Priority 28 from the Hyperacusis PSP
UNCERTAINTY: Would restoring hearing (e.g. regenerating nerve cells) improve hyperacusis? ...
Hyperemesis Gravidarum
 
Top 10 Priorities
Can we find a cure? What novel or new ...
Priority 1 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: Can we find a cure? What novel or new ...
Priority 2 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: How can we most effectively manage hyperemesis gravidarum? What ...
Priority 3 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: What causes hyperemesis gravidarum? (JLA PSP Priority 3) Overall ranking 3 JLA question ...
Priority 4 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: Is HG preventable? What is the effect of preventative ...
Priority 5 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: What are the immediate and long term effects of hyperemesis ...
Priority 6 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: What are the immediate and long term effects of ...
Priority 7 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: What are relative efficacies of the current medications and ...
Priority 8 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: What are the immediate and long term, physical, mental ...
Priority 9 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: What clinical measurements and markers are most useful in ...
Priority 10 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: What are the nutritional requirements of the 1st, 2nd ...
Priority 11 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: How can symptoms of hyperemesis gravidarum, other than  vomiting, ...
Priority 12 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: Why are some cases of hyperemesis gravidarum unresponsive to all ...
Priority 13 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: What is the risk that hyperemesis gravidarum will reoccur in ...
Priority 14 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: Do clinical treatment guidelines for hyperemesis gravidarum improve management and ...
Priority 15 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: How can people with a history of, or significant ...
Priority 16 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: How does hyperemesis gravidarum impact on a person's (and their ...
Priority 17 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: What is the current level of knowledge about hyperemesis ...
Priority 18 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: What is the most effective IV rehydration regime; which ...
Priority 19 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: What is the effect of hyperemesis gravidarum on mental health ...
Priority 20 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: What are the barriers to taking/prescribing medication for hyperemesis ...
Priority 21 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: What are the barriers to accessing treatments/services and how ...
Priority 22 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: What healthcare services exist and how can they collaborate ...
Priority 23 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: How can the condition be effectively managed in the ...
Priority 24 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: What self-management and coping strategies and treatments do people ...
Priority 25 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: What employment rights do people with hyperemesis gravidarum have and ...
Priority 26 from the Hyperemesis Gravidarum PSP
UNCERTAINTY: Do specific specialist healthcare professional roles for conditions such ...
Hyperhidrosis
 
Top 10 priorities
Are there any safe and effective permanent solutions for ...
Hypertension (Canada)
 
Top 10 priorities
What healthy lifestyle habits or combination of habits can ...
IIH
Information about the work of the James Lind Alliance Priority Setting Partnership in Idiopathic Intracranial Hypertension (IIH)
Top 10 Priorities
In the individual with IIH what causes the disease, ...
Priority 1 from the Idiopathic Intracranial Hypertension PSP
UNCERTAINTY: In the individual with IIH what causes the disease, ...
Priority 2 from the Idiopathic Intracranial Hypertension PSP
UNCERTAINTY: What are the biological mechanisms of headache in IIH ...
Priority 3 from the Idiopathic Intracranial Hypertension PSP
UNCERTAINTY: Can new therapies for IIH be developed which are ...
Priority 4 from the Idiopathic Intracranial Hypertension PSP
UNCERTAINTY: What is the biological explanation for the differences between ...
Priority 5 from the Idiopathic Intracranial Hypertension PSP
UNCERTAINTY: What are the best ways to monitor visual function? (JLA PSP ...
Priority 6 from the Idiopathic Intracranial Hypertension PSP
UNCERTAINTY: Can IIH biomarkers (tests in body fluids for example ...
Priority 7 from the Idiopathic Intracranial Hypertension PSP
UNCERTAINTY: What are the hormonal causes for IIH and why ...
Priority 8 from the Idiopathic Intracranial Hypertension PSP
UNCERTAINTY: What medications are effective and safe to treat IIH ...
Priority 9 from the Idiopathic Intracranial Hypertension PSP
UNCERTAINTY: With regard to weight loss in IIH: how much ...
Priority 10 from the Idiopathic Intracranial Hypertension PSP
UNCERTAINTY: Which is the best type of intervention to treat ...
Priority from the Idiopathic Intracranial Hypertension PSP
UNCERTAINTY: Are multidisciplinary clinics (joint clinics of neurology, ophthalmology, neurosurgery, ...
Priority from the Idiopathic Intracranial Hypertension PSP
UNCERTAINTY: Are non-invasive intracranial pressure (ICP) measurements accurate and clinically ...
Priority from the Idiopathic Intracranial Hypertension PSP
UNCERTAINTY: Do lumbar punctures (LPs) have long-term safety complications?  Overall ranking This ...
Inflammatory bowel disease
 
Top 10 priorities
The most important ...
Irritable bowel syndrome
 
Top 10 priorities
The most important ...
Intensive care
 
Top 10 priorities
The Intensive Care PSP identified these questions as the ...
Juvenile Idiopathic Arthritis (Netherlands)
 
Top 10 priorities
 
Priority 1 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: Pain and fatigue are often present when the disease ...
Priority 2 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: What is the best treatment plan for each individual ...
Priority 3 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: What is the best treatment plan for uveitis in ...
Priority 4 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: Why are children with JIA fatigued more quickly, what ...
Priority 5 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: How does JIA develop and which factors influence this? (JLA PSP ...
Priority 6 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: How can the course (flares, extensions, cure) of JIA ...
Priority 7 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: What is the influence of nutrition on  JIA, and ...
Priority 8 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: What are the short and long term side effects/consequences ...
Priority 9 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: What is the influence of JIA on future opportunities ...
Priority 10 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: What is the influence of sports and exercise on ...
Priority 11 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: What are the long term physical consequences of JIA? (JLA PSP ...
Priority 12 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: How can JIA be cured? (JLA PSP Priority 12) Overall ranking 12 JLA ...
Priority 13 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: Is there an association between JIA and other (autoimmune) ...
Priority 14 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: How can pain best be recognised and be treated ...
Priority 15 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: Which knowledge and skills are needed for patients and ...
Priority 16 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: How can pills be manufactured in  such a way ...
Priority 17 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: How can children/adolescents with JIA can best be supervised ...
Priority 18 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: Is JIA inheritable, and if yes, in what way? (JLA PSP ...
Priority 19 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: What is the best way to practise your favorite ...
Priority 20 from the Juvenile Idiopathic Arthritis (Netherlands) PSP
UNCERTAINTY: Are there any strategies in alternative medicine that can ...
Kidney cancer (Canada)
 
Top 10 priorities
What are the treatment options for patients with advanced ...
Kidney transplant
 
Top 10 priorities
(in no order of priority): What is the best way ...
Priority 1 from the Kidney Transplant PSP
UNCERTAINTY: In kidney transplant patients, what is the best ...
Priority 2 from the Kidney Transplant PSP
UNCERTAINTY: In kidney transplant patients, how can immunosuppression be ...
Priority 3 from the Kidney Transplant PSP
UNCERTAINTY: How can we prevent sensitisation in patients with ...
Priority 4 from the Kidney Transplant PSP
UNCERTAINTY: Can we improve monitoring of the level of ...
Priority 5 from the Kidney Transplant PSP
UNCERTAINTY: How can we improve transplant rates in highly ...
Priority 6 from the Kidney Transplant PSP
UNCERTAINTY: What are the long-term health risks to the ...
Priority 7 from the Kidney Transplant PSP
UNCERTAINTY: How can we encourage tolerance to the transplant to prevent ...
Priority 8 from the Kidney Transplant PSP
UNCERTAINTY: What is the best combination of immunosuppressive drugs following ...
Priority 9 from the Kidney Transplant PSP
UNCERTAINTY: What techniques to preserve, condition and transport the kidney ...
Priority 10 from the Kidney Transplant PSP
UNCERTAINTY: Can bioengineered organs be developed to be as safe ...
Priority 11 from the Kidney Transplant PSP
UNCERTAINTY: Which combinations of immunosuppressive drugs can minimise side effects ...
Priority 12 from the Kidney Transplant PSP
UNCERTAINTY: For which patients is transplantation not suitable (considering factors ...
Priority 13 from the Kidney Transplant PSP
UNCERTAINTY: How can we increase the number of potential living ...
Priority 14 from the Kidney Transplant PSP
UNCERTAINTY: What is the best method of sharing deceased donor ...
Priority 15 from the Kidney Transplant PSP
UNCERTAINTY: Does routine screening for and treatment of donor-specific antibodies ...
Priority 16 from the Kidney Transplant PSP
UNCERTAINTY: How can we ensure fair and equal access to ...
Priority 17 from the Kidney Transplant PSP
UNCERTAINTY: What is the best way of educating patients about ...
Priority 18 from the Kidney Transplant PSP
UNCERTAINTY: For blood group incompatible transplants, which treatments most effectively ...
Priority 19 from the Kidney Transplant PSP
UNCERTAINTY: Which treatments work best to prolong the life of ...
Priority 20 from the Kidney Transplant PSP
UNCERTAINTY: How can we match organs to recipients to ensure ...
Priority 21 from the Kidney Transplant PSP
UNCERTAINTY: How do we prevent the original cause of kidney ...
Priority 22 from the Kidney Transplant PSP
UNCERTAINTY: What tests are required to determine whether a transplant ...
Priority 23 from the Kidney Transplant PSP
UNCERTAINTY: What approaches improve outcomes in adolescent and young adult ...
Priority 24 from the Kidney Transplant PSP
UNCERTAINTY: Is there a reliable way for us to assess ...
Learning Difficulties (Scotland)
A summary of work done to set future research priorities around Learning Difficulties in Scotland
Top 10 priorities
What knowledge, skills and training do educational professionals need ...
Priority 1 from the Learning Difficulties Scotland PSP
UNCERTAINTY: What knowledge, skills and training do educational professionals need ...
Priority 2 from the Learning Difficulties Scotland PSP
UNCERTAINTY: What is the best educational and community environment ...
Priority 3 from the Learning Difficulties Scotland PSP
UNCERTAINTY: How can multiple types of professionals work together ...
Priority 4 from the Learning Difficulties Scotland PSP
UNCERTAINTY: Which early interventions are effective for children and ...
Priority 5 from the Learning Difficulties Scotland PSP
UNCERTAINTY: What knowledge, skills and training do health, social ...
Priority 6 from the Learning Difficulties Scotland PSP
UNCERTAINTY: How can parents, carers, brothers and sisters and ...
Priority 7 from the Learning Difficulties Scotland PSP
UNCERTAINTY: How can we best identify early features, symptoms ...
Priority 8 from the Learning Difficulties Scotland PSP
UNCERTAINTY: What is the best way to assess learning ...
Priority 9 from the Learning Difficulties Scotland PSP
UNCERTAINTY: Which strategies are effective in preventing stigma and ...
Priority 10 from the Learning Difficulties Scotland PSP
UNCERTAINTY: Which strategies are effective in helping children and ...
Priority 11 from the Learning Difficulties Scotland PSP
UNCERTAINTY: What are the factors contributing to the delay ...
Priority 12 from the Learning Difficulties Scotland PSP
UNCERTAINTY: How does a learning difficulty affect or interfere ...
Priority 13 from the Learning Difficulties Scotland PSP
UNCERTAINTY: Which family, school and community supports are effective ...
Priority 14 from the Learning Difficulties Scotland PSP
UNCERTAINTY: Why are children and young people with learning ...
Priority 15 from the Learning Difficulties Scotland PSP
UNCERTAINTY: What effect does having a formal label or ...
Priority 16 from the Learning Difficulties Scotland PSP
UNCERTAINTY: Which information and communication technologies (ICT) (e.g. augmentative ...
Priority 17 from the Learning Difficulties Scotland PSP
UNCERTAINTY: How can we improve public awareness about learning ...
Priority 18 from the Learning Difficulties Scotland PSP
UNCERTAINTY: What are the best measures of outcomes (e.g. ...
Priority 19 from the Learning Difficulties Scotland PSP
UNCERTAINTY: Which parenting approaches and strategies are most helpful ...
Priority 20 from the Learning Difficulties Scotland PSP
UNCERTAINTY: Which strategies are effective in increasing the support ...
Priority 21 from the Learning Difficulties Scotland PSP
UNCERTAINTY: How can we understand what it is like ...
Priority 22 from the Learning Difficulties Scotland PSP
UNCERTAINTY: What strengths do children and young people with ...
Priority 23 from the Learning Difficulties Scotland PSP
UNCERTAINTY: What percentage of children and young people with ...
Priority 24 from the Learning Difficulties Scotland PSP
UNCERTAINTY: How do learning difficulties affect the everyday life ...
Lichen Sclerosus
More about the research priority setting work started in 2017
Top 10 Priorities
 
Liver Cirrhosis
Liver cirrhosis represents the advanced stage of chronic liver ...
Liver Glycogen Storage Disease (International)
More about the James Lind Alliance Priority Setting Partnership setting research priorities with patients, families and healthcare professionals
Top 10 Priorities
What are the best options (for example gene therapy ...
Priority 1 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: What are the best options (for example gene therapy ...
Priority 2 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: Can consensus guidelines (for management) be achieved for patients ...
Priority 3 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: How should optimal metabolic control both clinically and biochemically ...
Priority 4 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: How should sickness and emergency situations be managed for ...
Priority 5 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: What is the best way to start dietary treatment, ...
Priority 6 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: How can existing cornstarch preperations be modified or alternative ...
Priority 7 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: What is the role for new methods for monitoring ...
Priority 8 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: How to manage diet regimen in relation to "before, ...
Priority 9 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: What are the long-term complications (liver, renal, gut) of ...
Priority 10 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: What are the risks and benefits of different options ...
Priority 11 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: How to prevent and/or treat muscle problems in patients ...
Priority 12 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: What are the risks and benefits of gene therapy ...
Priority 13 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: How can we improve the quality of life of ...
Priority 14 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: How to prevent and/or treat neurological problems in patients ...
Priority 15 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: What are the effects of different kinds of Ketogenic ...
Priority 16 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: What is the needed restriction of lactose, fructose or ...
Priority 17 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: How can patients with liver Glycogen Storage Disease achieve ...
Priority 18 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: How is the (natural) progression of liver Glycogen Storage ...
Priority 19 (joint) from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: What are the consequences of consumption of alcohol and ...
Priority 19(joint) from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: How to prevent and/or treat hormonal problems (i.e. thyroid, ...
Priority 19(joint) from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: When should liver transplantation be considered in patients with ...
Priority 22 from the Liver Glycogen Storage Disease (International) PSP
UNCERTAINTY: Which is the role and use of medium-chain triglycerides ...
Living With and Beyond Cancer
 
Top 10 Priorities
What are the best models for delivering long-term cancer ...
Priority 1 from the Living With and Beyond Cancer PSP
UNCERTAINTY: What are the best models for delivering long-term cancer ...
Priority 2 from the Living With and Beyond Cancer PSP
UNCERTAINTY: How can patient and carers be appropriately informed ...
Priority 3 from the Living With and Beyond Cancer PSP
UNCERTAINTY: How can care be better co-ordinated for people ...
Priority 4 from the Living With and Beyond Cancer PSP
UNCERTAINTY: What causes fatigue in people living with and ...
Priority 5 from the Living With and Beyond Cancer PSP
UNCERTAINTY: What are the short-term and long-term psychological impacts of ...
Priority 6 from the Living With and Beyond Cancer PSP
UNCERTAINTY: How can the short-term, long-term and late effects of ...
Priority 7 from the Living With and Beyond Cancer PSP
UNCERTAINTY: What are the biological bases of side-effects of cancer ...
Priority 8 from the Living With and Beyond Cancer PSP
UNCERTAINTY: What are the best ways to manage persistent pain ...
Priority 9 from the Living With and Beyond Cancer PSP
UNCERTAINTY: What specific lifestyle changes (e.g. diet, exercise and ...
Priority 10 from the Living With and Beyond Cancer PSP
UNCERTAINTY: How can we predict which people living with and ...
Priority 11 from the Living With and Beyond Cancer PSP
UNCERTAINTY: What are the most effective ways to stop ...
Priority 12 from the Living With and Beyond Cancer PSP
UNCERTAINTY: What are the social, financial and economic impacts of ...
Priority 13 from the Living With and Beyond Cancer PSP
UNCERTAINTY: What are the best ways to cope with ...
Priority 14 from the Living With and Beyond Cancer PSP
UNCERTAINTY: How can we predict who is at risk ...
Priority 15 from the Living With and Beyond Cancer PSP
UNCERTAINTY:What are the best ways to support people living ...
Priority 16 from the Living With and Beyond Cancer PSP
UNCERTAINTY:If people with cancer are involved in their own ...
Priority 17 from the Living With and Beyond Cancer PSP
UNCERTAINTY:What are the psychological and social impacts on children ...
Priority 18 from the Living With and Beyond Cancer PSP
UNCERTAINTY: What is the best form of rehabilitation and ...
Priority 19 from the Living With and Beyond Cancer PSP
UNCERTAINTY:What are the best ways to manage the consequences ...
Priority 20 from the Living With and Beyond Cancer PSP
UNCERTAINTY: How do the support needs of people with ...
Priority 21 from the Living With and Beyond Cancer PSP
UNCERTAINTY:What can be done to reduce and manage the ...
Priority 22 from the Living With and Beyond Cancer PSP
UNCERTAINTY:What are the best ways to support people living ...
Priority 23 from the Living With and Beyond Cancer PSP
UNCERTAINTY:How is cancer perceived across multiple black and minority ...
Priority 24 from the Living With and Beyond Cancer PSP
UNCERTAINTY: Can lymphoedema be prevented? If not, how is ...
Priority 25 from the Living With and Beyond Cancer PSP
UNCERTAINTY:What is the optimal follow-up approach to detect whether ...
Priority 26 from the Living With and Beyond Cancer PSP
UNCERTAINTY:What are the spiritual care needs of people living ...
Lung Transplant (Canada)
Lung transplantation is a surgical procedure done to replace ...
Long Term Care Residents with Severe Mental Illness
Over the past few decades, severe mental illness (e.g., ...
Lyme disease
 
Top 10 priorities
How effective are the current UK tests in detecting ...
Major Trauma International
Major trauma is an injury or combination of injuries ...
Top 10 priorities
The most important ...
Managing Chronic Conditions in Irish Primary Care
 
Medically Not Yet Explained Symptoms
 
Top 10 priorities UK
What are the most effective treatment strategies for different ...
Top 10 priorities Netherlands
 
Medically Not Yet Explained Symptoms PSP Top 10s
 
ME CFS
 
Top 10 Priorities
1. What is the biological mechanism that causes post-exertional ...
Menopause
Menopause is a condition that arises due to ageing ...
Mental Health and the Body Clock
Daily (circadian) rhythms are a feature of all life ...
Mental Health in Children and Young People
Details of the James Lind Alliance Priority Setting Partnership setting research priorities in the mental health of children and young people
Top 10 Priorities
Would the screening of young people be appropriate for ...
Mesothelioma
More information about the Mesothelioma Priority Setting Partnership
Top 10 priorities
The top ten priorities for the JLA Mesothelioma Priority Setting Partnership
Priority 1 from the Mesothelioma PSP
UNCERTAINTY: Does boosting the immune system (using new agents such ...
Priority 2 from the Mesothelioma PSP
UNCERTAINTY: Can individualised chemotherapy be given to mesothelioma patients based ...
Priority 3 from the Mesothelioma PSP
UNCERTAINTY: What is the best way to monitor patients with ...
Priority 4 from the Mesothelioma PSP
In mesothelioma patients, what is the best second line ...
Priority 5 from the Mesothelioma PSP
UNCERTAINTY: Which is the most effective current treatment for ascites ...
Priority 6 from the Mesothelioma PSP
UNCERTAINTY: What are the relative benefits of immediate standard chemotherapy ...
Priority 7 from the Mesothelioma PSP
UNCERTAINTY: For mesothelioma patients, what is the best follow-up strategy ...
Priority 8 from the Mesothelioma PSP
UNCERTAINTY: In mesothelioma, is there a role for intrapleural immunostimulants ...
Priority 9 from the Mesothelioma PSP
UNCERTAINTY: Does an annual chest x-ray and/or CT scan and ...
Priority 10 from the Mesothelioma PSP
UNCERTAINTY: What, if any, are the benefits of pleurectomy (pleurectomy/decortication) ...
Priority 11 from the Mesothelioma PSP
UNCERTAINTY: Can PET scans (which produce 3D images of the ...
Priority 12 from the Mesothelioma PSP
UNCERTAINTY: How can the levels of mesothelin (a protein present ...
Priority 13 from the Mesothelioma PSP
UNCERTAINTY: What is the best current treatment for breathlessness in ...
Priority 14 from the Mesothelioma PSP
UNCERTAINTY: Is giving a course of chemotherapy to mesothelioma patients ...
Priority 15 from the Mesothelioma PSP
UNCERTAINTY: What is the best current method of managing mesothelioma ...
Priority 16 from the Mesothelioma PSP
UNCERTAINTY: Should treatment for mesothelioma, if the patient has no ...
Priority 17 from the Mesothelioma PSP
UNCERTAINTY: Is giving a course of radiotherapy to mesothelioma patients ...
Priority 18 from the Mesothelioma PSP
UNCERTAINTY: Is giving a course of radiotherapy to mesothelioma patients ...
Priority 19 from the Mesothelioma PSP
UNCERTAINTY: Would early referral to palliative care be beneficial for ...
Priority 20 from the Mesothelioma PSP
UNCERTAINTY: What is the value of weekly telephone support for ...
Priority 21 from the Mesothelioma PSP
UNCERTAINTY: What is the current best method (e.g. contrast enhanced ...
Priority 22 from the Mesothelioma PSP
UNCERTAINTY: Can rehabilitation be used to improve long term chronic ...
Priority 23 from the Mesothelioma PSP
UNCERTAINTY: Is there an overall benefit for standard chemotherapy in ...
Priority 24 from the Mesothelioma PSP
UNCERTAINTY: Should radiotherapy be given to mesothelioma patients at the ...
Priority 25 from the Mesothelioma PSP
UNCERTAINTY: What, if any, are the benefits of palliative surgery ...
Priority 26 from the Mesothelioma PSP
UNCERTAINTY: Should interventions (e.g. cordotomy or radiotherapy) be used to ...
Priority 27 from the Mesothelioma PSP
UNCERTAINTY: What is the best current treatment for fatigue in ...
Priority 28 from the Mesothelioma PSP
UNCERTAINTY: What is the best way to monitor patients with ...
Priority 29 from the Mesothelioma PSP
UNCERTAINTY: In mesothelioma patients, what is the best current treatment ...
Priority 30 from the Mesothelioma PSP
UNCERTAINTY: What is the best treatment to alleviate mucus in ...
About the PSP
Further information about the Mesothelioma and the JLA Priority Setting Partnership
Who was involved
The steering group for the Mesothelioma Priority Setting Partnership process
Partners and support
How the James Lind Alliance partner organisations played a vital role in the priority setting process.
The survey
The results of the survey carried out by the Mesothelioma Priority Setting Partnership
The priority setting workshop
Feedback and information on the Mesothelioma Priority Setting Workshop
Metastatic Breast Cancer (Canada)
 
Top 10 Priorities
What biomarkers or intrinsic features of the tumour can ...
Methods of Rapid Reviews
The Priority III study aimed to identify research priorities about ...
Top 10
What are the best approaches to identify people or ...
Midwifery Practice and Maternity Care
Midwives are usually the first and main contact for ...
Mild to moderate hearing loss
 
Top 10 priorities
What adverse effects are associated with not treating mild ...
Priority 1 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: What adverse effects are associated with not treating ...
Priority 2 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Does the early fitting of hearing aids result ...
Priority 3 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Does the early fitting of hearing aids slow ...
Priority 4 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: What are the reasons for low hearing aid ...
Priority 5 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Can new technologies replace hearing aids for the ...
Priority 6 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Can stem cell therapy offer a cure for ...
Priority 7 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Does early identification, diagnosis and treatment of mild ...
Priority 8 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Could new developments to digital hearing aids offer ...
Priority 9 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: How realistic are hearing tests for assessing the ...
Priority 10 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Could the use of real-world sounds to help ...
Priority 11 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: How effective and/or cost-effective are hearing aids for ...
Priority 12 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Could routine follow-up appointments help adults with mild ...
Priority 13 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: What is the effect of the use or ...
Priority 14 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Can speech in noise tests offer additional diagnostic ...
Priority 15 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: How effective are hearing tests (as part of ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - a
UNCERTAINTY: How frequently should hearing assessments be conducted to ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - b
UNCERTAINTY: What are the alternative tests to pure tone ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - c
UNCERTAINTY: Which type(s) of hearing aids are the most ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - d
UNCERTAINTY: Why is speech through hearing aids not clear ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - e
UNCERTAINTY: Is there a causal relationship between mild to ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - f
UNCERTAINTY: How can hearing aids be better designed to ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - g
UNCERTAINTY: How effective is deaf awareness training in retail ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - h
UNCERTAINTY: At what volume is leisure noise exposure damaging ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - i
UNCERTAINTY: Can hearing aids be designed to suppress intrusive ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - j
UNCERTAINTY: How can hearing aid technology be improved to ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - k
UNCERTAINTY: Can lipreading classes aid employment and/or reduce unemployment ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - l
UNCERTAINTY: How can hearing aid ear moulds be better ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - m
UNCERTAINTY: Which symptoms should adults and GPs use as ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - n
UNCERTAINTY:How can hearing aids best be programmed for adults ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - p
UNCERTAINTY:Could volume controls be improved on digital hearing aids ...
Miscarriage
 
Top 10 priorities
The priorities for research in the area of miscarriage, identified by the James Lind Alliance priority setting partnership in 2016
Mitochondrial disease
 
Top 10 priorities
Could an understanding of the cellular and molecular processes ...
Priority 1 from the Mitochondrial Disease PSP
UNCERTAINTY: Could an understanding of the cellular and molecular ...
Priority 2 from the Mitochondrial Disease PSP
UNCERTAINTY: Can the damage to cells caused by mitchondrial disease ...
Priority 3 from the Mitochondrial Disease PSP
UNCERTAINTY: What are the biological mechanisms that cause mitochondrial disease ...
Priority 4 from the Mitochondrial Disease PSP
UNCERTAINTY: What biomarkers (biological markers that can be measured e.g. ...
Priority 5 from the Mitochondrial Disease PSP
UNCERTAINTY: Could gene therapy help people with mitochondrial disease? ...
Priority 6 from the Mitochondrial Disease PSP
UNCERTAINTY: What are the psychological impacts of mitochondrial disease? What ...
Priority 7 from the Mitochondrial Disease PSP
UNCERTAINTY: What are the best ways to reduce the risk ...
Priority 8 from the Mitochondrial Disease PSP
UNCERTAINTY: What factors could trigger the start of mitochondrial ...
Priority 9 from the Mitochondrial Disease PSP
UNCERTAINTY: Why are people with the same genetic mutation affected ...
Priority 10 from the Mitochondrial Disease PSP
UNCERTAINTY: What are the most effective ways to treat and ...
Priority 11 from the Mitochondrial Disease PSP
UNCERTAINTY: What are the genetic mutations that cause mitochondrial disease ...
Priority 12 from the Mitochondrial Disease PSP
UNCERTAINTY: Could a specific diet and/or supplements benefit people with ...
Priority 13 from the Mitochondrial Disease PSP
UNCERTAINTY: What can prevent mitochondrial disease from getting worse over ...
Priority 14 from the Mitochondrial Disease PSP
UNCERTAINTY: How do the different genetic mutations cause the symptoms ...
Priority 15 from the Mitochondrial Disease PSP
UNCERTAINTY: Is there a way to predict who will become ...
Priority 16 from the Mitochondrial Disease PSP
UNCERTAINTY: What can prevent the start of mitochondrial disease ...
Priority 17 from the Mitochondrial Disease PSP
UNCERTAINTY: What are the most effective ways to treat and ...
Priority 18 from the Mitochondrial Disease PSP
UNCERTAINTY: What aspects of their health should be monitored over ...
Priority 19 from the Mitochondrial Disease PSP
UNCERTAINTY: What are the most effective ways to treat ...
Priority 20 from the Mitochondrial Disease PSP
UNCERTAINTY: What are the most effective ways to treat and ...
Priority 21 from the Mitochondrial Disease PSP
UNCERTAINTY: What are the most effective ways to treat and ...
Priority 22 from the Mitochondrial Disease PSP
UNCERTAINTY: How does mitochondrial disease change over time as people ...
Priority 23 from the Mitochondrial Disease PSP
UNCERTAINTY: Does exercise benefit people with mitochondrial disease? If ...
Priority 24 from the Mitochondrial Disease PSP
UNCERTAINTY: What causes the genetic mutation in people with ...
Multiple Conditions in Later Life
 
Top 10 Priorities
 
Priority 1 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: How can current health, social care and voluntary sectors ...
Priority 2 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: What are the most effective, cost effective and ...
Priority 3 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: What are the most effective, cost effective and ...
Priority 4 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: In what ways can carers of older people ...
Priority 5 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: What is the most effective, cost effective and ...
Priority 6 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: How can the recognition and management of frailty ...
Priority 7 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: How can Comprehensive Geriatric Assessment be optimally delivered ...
Priority 8 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: What are the most effective, cost effective and ...
Priority 9 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: How can independent living be most effectively and ...
Priority 10 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: How do older people with multiple conditions perceive ...
Priority 11 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: What are the most effective and acceptable ways ...
Priority 12 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: How do older people with multiple conditions perceive ...
Priority 13 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: How can hospital admission and re-admission rates be ...
Priority 14 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: How can cognitive decline due to lack of ...
Priority 15 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: What is the prevalence and causes of inadequately ...
Priority 16 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: What are the most effective, cost effective and ...
Priority 17 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: How can exercises to reduce the prevalence of ...
Priority 18 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: What is the impact of social isolation upon ...
Priority 19 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: What is the cause and impact of poor ...
Priority 20 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: Is there a correlation between poor outcomes in ...
Priority 21 from the Multiple Conditions in Later Life PSP
UNCERTAINTY: What are the most effective and acceptable methods ...
Multiple sclerosis
 
Top 10 priorities
Which treatments are effective to slow, stop or reverse ...
Priority 1 from the Multiple Sclerosis PSP
UNCERTAINTY: Which treatments are effective to slow, stop or ...
Priority 2 from the Multiple Sclerosis PSP
UNCERTAINTY: How can multiple sclerosis be prevented? (JLA PSP Priority ...
Priority 3 from the Multiple Sclerosis PSP
UNCERTAINTY: Which treatments are effective for fatigue in people ...
Priority 4 from the Multiple Sclerosis PSP
UNCERTAINTY: How can people with multiple sclerosis be best ...
Priority 5 from the Multiple Sclerosis PSP
UNCERTAINTY: Does early treatment with aggressive disease modifying drugs ...
Priority 6 from the Multiple Sclerosis PSP
UNCERTAINTY: Is vitamin D supplementation an effective disease modifying ...
Priority 7 from the Multiple Sclerosis PSP
UNCERTAINTY: Which treatments are effective to improve mobility for ...
Priority 8 from the Multiple Sclerosis PSP
UNCERTAINTY: Which treatments are effective to improve cognition in ...
Priority 9 from the Multiple Sclerosis PSP
UNCERTAINTY: Which treatments are effective for pain in people ...
Priority 10 from the Multiple Sclerosis PSP
UNCERTAINTY: Is physiotherapy effective in reducing disability in people ...
Myeloma (Canada)
 
Top 10 Priorities
 
Priority 1 from the Myeloma (Canada) PSP
UNCERTAINTY: How can we cure myeloma? (JLA PSP Priority 1) Overall ranking 1 JLA ...
Priority 2 from the Myeloma (Canada) PSP
UNCERTAINTY: Are novel immunotherapies (e.g., CAR T) effective for the ...
Priority 3 from the Myeloma (Canada) PSP
UNCERTAINTY: How can we improve the diagnosing (e.g., faster, less ...
Priority 4 from the Myeloma (Canada) PSP
UNCERTAINTY: What are new treatments for myeloma patients that will ...
Priority 5 from the Myeloma (Canada) PSP
UNCERTAINTY: How can we personalize a patient's treatment based on ...
Priority 6 from the Myeloma (Canada) PSP
UNCERTAINTY: How can we prevent bone deterioration and/or repair bones ...
Priority 7 from the Myeloma (Canada) PSP
UNCERTAINTY: How can we safely reduce, cycle, or stop the ...
Priority 8 from the Myeloma (Canada) PSP
UNCERTAINTY: How can we reduce or manage the short-term effects ...
Priority 9 from the Myeloma (Canada) PSP
UNCERTAINTY: What is the most effective way (i.e., drug combinations, ...
Priority 10 from the Myeloma (Canada) PSP
UNCERTAINTY: Can we develop treatments specifically for high risk or ...
Priority 11 from the Myeloma (Canada) PSP
UNCERTAINTY: What is the impact of physical activity on myeloma ...
Priority 12 from the Myeloma (Canada) PSP
UNCERTAINTY: What genes are associated with the development of myeloma, ...
Priority 13 from the Myeloma (Canada) PSP
UNCERTAINTY: What are new ways to monitor and/or treat the ...
Priority 14 from the Myeloma (Canada) PSP
UNCERTAINTY: How can we restore myeloma patients' immune functioning (e.g., ...
Priority 15 from the Myeloma (Canada) PSP
UNCERTAINTY: How can we prevent decline in memory and mental ...
Priority 16 from the Myeloma (Canada) PSP
UNCERTAINTY: How can we prevent and/or manage the neuropathy associated ...
Priority 17 from the Myeloma (Canada) PSP
UNCERTAINTY: How can minimal residual disease testing be applied in ...
Priority 18 from the Myeloma (Canada) PSP
UNCERTAINTY: What is the risk to blood relatives of people ...
Neurodevelopmental Disorders Canada
 
Neuro-oncology
 
Top 10 priorities
Do lifestyle factors (e.g. sleep, stress, diet) influence tumour ...
Non-alcohol-related-liver and gallbladder disorders
 
The Top 10 Priorities
What is the best treatment for people with early ...
Paediatric Intensive Care Nutrition
 
Top 10 priorities
 
Nutritional Screening and Malnutrition
 
Top 10 Priorities
How can early intervention be initiated in vulnerable groups ...
Priority 1 from the Nutritional Screening and Malnutrition PSP
UNCERTAINTY: How can early intervention be initiated in vulnerable ...
Obesity Care in Canada
Obesity care is defined as services informed by evidence ...
Obstructive Sleep Apnea (Saskatchewan,Canada)
 
Top 10 priorities
 
Priority 1 from the Obstructive Sleep Apnea (Saskatchewan,Canada) PSP
UNCERTAINTY:How can a diagnosis of Obstructive Sleep Apnea (OSA) ...
Priority 2 from the Obstructive Sleep Apnea (Saskatchewan,Canada) PSP
UNCERTAINTY: How can treatment of obstructive sleep apnea (OSA) be ...
Priority 3 from the Obstructive Sleep Apnea (Saskatchewan,Canada) PSP
UNCERTAINTY: How can access, coordination, and quality of public services ...
Priority 4 from the Obstructive Sleep Apnea (Saskatchewan,Canada) PSP
UNCERTAINTY: What are important considerations when treating a patient with ...
Priority 5 from the Obstructive Sleep Apnea (Saskatchewan,Canada) PSP
UNCERTAINTY: How can obstructive sleep apnea (OSA) services to rural ...
Priority 6 from the Obstructive Sleep Apnea (Saskatchewan,Canada) PSP
UNCERTAINTY:  How can obstructive sleep apnea (OSA) services to ...
Priority 7 from the Obstructive Sleep Apnea (Saskatchewan,Canada) PSP
UNCERTAINTY: Are there other therapies that could be used along ...
Priority 8 from the Obstructive Sleep Apnea (Saskatchewan,Canada) PSP
UNCERTAINTY: How can the treatment and care of obstructive sleep ...
Priority 9 from the Obstructive Sleep Apnea (Saskatchewan,Canada) PSP
UNCERTAINTY: How do lifestyle changes (such as weight loss, exercise ...
Priority 10 from the Obstructive Sleep Apnea (Saskatchewan,Canada) PSP
UNCERTAINTY: How often should Continuous Positive Airway Pressure (CPAP) therapy ...
Priority 11 from the Obstructive Sleep Apnea (Saskatchewan,Canada) PSP
UNCERTAINTY: What should be done if the patient does not ...
Priority 12 from the Obstructive Sleep Apnea (Saskatchewan,Canada) PSP
UNCERTAINTY: What can be done to improve sleep quality for ...
Priority 13 from the Obstructive Sleep Apnea (Saskatchewan,Canada) PSP
UNCERTAINTY: Can obstructive sleep apnea (OSA) be permanently eliminated?  (JLA PSP ...
Priority 14 from the Obstructive Sleep Apnea (Saskatchewan,Canada) PSP
UNCERTAINTY: Can Continuous Positive Airway Pressure (CPAP) therapy ever be ...
Priority 15 from the Obstructive Sleep Apnea (Saskatchewan,Canada) PSP
UNCERTAINTY: Apart from Continuous Positive Airway Pressure (CPAP), what other ...
Priority 16 from the Obstructive Sleep Apnea (Saskatchewan,Canada) PSP
UNCERTAINTY: How do bed surfaces, pillows and sleeping position affect ...
Occupational Therapy
 
Top 10 Priorities
How does occupational therapy make a difference and have ...
Priority 1 from the Occupational Therapy PSP
UNCERTAINTY: How does occupational therapy make a difference and have ...
Priority 2 from the Occupational Therapy PSP
UNCERTAINTY: How can occupational therapists ensure that person-centred practice is ...
Priority 3 from the Occupational Therapy PSP
UNCERTAINTY: How can occupational therapists work more effectively with the ...
Priority 4 from the Occupational Therapy PSP
UNCERTAINTY: What are the long-term benefits of occupational therapy intervention? ...
Priority 5 from the Occupational Therapy PSP
UNCERTAINTY: What are the benefits or impact of occupational therapy ...
Priority 6 from the Occupational Therapy PSP
UNCERTAINTY: How can occupational therapy services be more inclusive of ...
Priority 7 from the Occupational Therapy PSP
UNCERTAINTY: What is the role of occupational therapy in supporting ...
Priority 8 from the Occupational Therapy PSP
UNCERTAINTY: What is the role or impact of occupational therapy ...
Priority 9 from the Occupational Therapy PSP
UNCERTAINTY: How can occupational therapists work most effectively with other ...
Priority 10 from the Occupational Therapy PSP
UNCERTAINTY: What is the cost-effectiveness of occupational therapy services? (JLA PSP ...
Priority 11 from the Occupational Therapy PSP
UNCERTAINTY: How does the amount of occupational therapy received affect ...
Priority 12 from the Occupational Therapy PSP
UNCERTAINTY: What is the role of occupational therapy in addressing ...
Priority 13 from the Occupational Therapy PSP
UNCERTAINTY: What is the effectiveness of occupational therapy for mental ...
Priority 14 from the Occupational Therapy PSP
UNCERTAINTY: How can occupational therapists work effectively with digital technology ...
Priority 15 from the Occupational Therapy PSP
UNCERTAINTY: How does assistive technology, compensatory equipment and housing adaptations ...
Priority 16 from the Occupational Therapy PSP
UNCERTAINTY: What is the value of occupation as an intervention ...
Priority 17 from the Occupational Therapy PSP
UNCERTAINTY: What is the nature of the relationship between occupation ...
Priority 18 from the Occupational Therapy PSP
UNCERTAINTY: What do other people (including healthcare professionals and other ...
Occupational Therapy for Musculoskeletal Conditions and Arthritis
 
Top 10 Priorities
The most important ...
Oral and Dental Health
Work done to set future research priorities in Oral and Dental Health by the James Lind Alliance Priority Setting Partnership started in 2017.
Top 10 Priorities
What is the best way to prevent tooth decay, ...
Priority 1 from the Oral and Dental Health PSP
UNCERTAINTY: What is the best way to prevent tooth decay, ...
Priority 2 from the Oral and Dental Health PSP
UNCERTAINTY: How can access to dental services be improved for ...
Priority 3 from the Oral and Dental Health PSP
UNCERTAINTY: What are the most effective ways of increasing early ...
Priority 4 from the Oral and Dental Health PSP
UNCERTAINTY: How can access to dental services be improved for ...
Priority 5 from the Oral and Dental Health PSP
UNCERTAINTY: How can dental health professionals work with other ...
Outpatient Service Delivery
 
Paediatric Emergency Medicine
Paediatric Emergency Medicine is the medical specialty that cares ...
Pediatric Cancer (Canada)
 
Top 10 priorities
 
Pediatric Inflammatory Bowel Disease (Netherlands)
 
Top 10 priorities
The most important ...
Pancreatic Cancer (Germany)
 
Top 10 Priorities
How can the best treatment for each individual patient ...
Paediatric Hospital Care (Canada)
 
Top 10 priorities
 
Priority 1 from the Paediatric Hospital Care PSP
UNCERTAINTY: What best practices and/or care models exist for inpatient ...
Priority 2 from the Paediatric Hospital Care PSP
UNCERTAINTY: What methods of communication are most effective between patients, ...
Priority 3 from the Paediatric Hospital Care PSP
UNCERTAINTY: What are best practices and support strategies for Indigenous ...
Priority 4 from the Paediatric Hospital Care PSP
UNCERTAINTY: How can we ensure that healthcare delivery in hospital ...
Priority 5 from the Paediatric Hospital Care PSP
UNCERTAINTY: What are effective support strategies for parents, families and ...
Priority 6 from the Paediatric Hospital Care PSP
UNCERTAINTY: What mental health supports can be provided to parents, ...
Priority 7 from the Paediatric Hospital Care PSP
UNCERTAINTY: What are effective ways to incorporate shared decision-making with ...
Priority 8 from the Paediatric Hospital Care PSP
UNCERTAINTY: What are effective strategies to mitigate the impacts of ...
Priority 9 from the Paediatric Hospital Care PSP
UNCERTAINTY: What are effective alternatives to shorten length of stay ...
Priority 10 from the Paediatric Hospital Care PSP
UNCERTAINTY: What are the most effective communication methods (e.g. handover, ...
Priority 11 from the Paediatric Hospital Care PSP
UNCERTAINTY: What is the most effective way to conduct medical ...
Priority 12 from the Paediatric Hospital Care PSP
UNCERTAINTY: Are ongoing mental health assessments for patients admitted to ...
Priority 13 from the Paediatric Hospital Care PSP
UNCERTAINTY: What is the impact of the patient’s room/environment on ...
Priority 14 from the Paediatric Hospital Care PSP
UNCERTAINTY: What is the most effective way to obtain and ...
Priority 15 from the Paediatric Hospital Care PSP
UNCERTAINTY: What are effective methods (e.g. education) to prepare families ...
Priority 16 from the Paediatric Hospital Care PSP
UNCERTAINTY: When is it appropriate to involve allied health care ...
Paediatric Lower Limb Surgery
Paediatric Lower Limb Surgery PSP
Top 10 Priorities
What are the best ways to measure the outcome ...
Priority 1 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What are the best ways to measure the ...
Priority 2 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY:    Following orthopaedic surgery to the lower limbs, ...
Priority 3 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY:  What is the short-term and long-term clinical and cost ...
Priority 4 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What are the short term and long term outcome ...
Priority 5 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What is the clinical and cost effectiveness of pre-operative ...
Priority 6 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What is the short-term and long-term clinical and cost ...
Priority 7 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: Can surveillance and non-surgical treatment (e.g. physiotherapy, botulinum toxin ...
Priority 8 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What is the best method of screening for Developmental ...
Priority 9 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY:  What are the best strategies to optimise communication of ...
Priority 10 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What is the best management for hip displacement ...
Priority 11 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What are the most effective interventions (including type ...
Priority 12 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY:  Does vitamin D supplementation or other diet supplements increase ...
Priority 13 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What is the clinical and cost effectiveness of gait ...
Priority 14 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY:   What are the indications and most effective treatment ...
Priority 15 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What is the optimal surgical treatment and timing of ...
Priority 16 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY:  What is the optimal management for severe stable Slipped ...
Priority 17 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What is the best treatment for patello-femoral instability (an ...
Priority 18 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What are the indications for surgical treatment of flatfeet ...
Priority 19 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What is the outcome of hip replacement in ...
Priority 20 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: Which operation leads to best results in the ...
Priority 21 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What is the best way to treat idiopathic ...
Priority 22 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What are the long-term outcomes of treatment in ...
Priority 23 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What is the effect of surgeon and centre ...
Priority 24 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What degree of lower limb anatomical variation (eg. ...
Priority 25 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: What are the indications for metalwork removal in ...
Priority 26 from the Paediatric Lower Limb Surgery PSP
UNCERTAINTY: Why is there geographical variation in the management ...
Parkinsons
 
Top 10 priorities
What treatments are helpful for reducing balance problems and ...
Palliative and end of life care
 
Top 10 priorities
What are the best ways of providing palliative care ...
Priority 1 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways of providing palliative ...
Priority 2 from the Palliative and end of life care PSP
UNCERTAINTY:  How can access to palliative care services be ...
Priority 3 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the benefits of Advance Care Planning ...
Priority 4 from the Palliative and end of life care PSP
UNCERTAINTY:  What information and training do carers and families ...
Priority 5 from the Palliative and end of life care PSP
UNCERTAINTY:  How can it be ensured that staff, including ...
Priority 6 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to determine a ...
Priority 7 from the Palliative and end of life care PSP
UNCERTAINTY: What are the core palliative care services that should ...
Priority 8 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the benefits, and best ways, of ...
Priority 9 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to make sure ...
Priority 10 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to assess and ...
Priority 11 from the Palliative and end of life care PSP
UNCERTAINTY:  How can people who live alone and do not ...
Priority 12 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways for healthcare professionals ...
Priority 13 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to facilitate communication ...
Priority 14 from the Palliative and end of life care PSP
UNCERTAINTY:  What is the best way to give palliative ...
Priority 15 from the Palliative and end of life care PSP
UNCERTAINTY:  How can distress that is not related to ...
Priority 16 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best modes of palliative care in ...
Priority 17 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to diagnose and ...
Priority 18 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the benefits of, and best approaches ...
Priority 19 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to make sure ...
Priority 20 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to manage acute ...
Priority 21 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the signs that a person will ...
Priority 22 from the Palliative and end of life care PSP
UNCERTAINTY:  Is there an appropriate time to withdraw artificial ...
Priority 23 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to recognise and ...
Priority 24 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best care packages for patients, ...
Priority 25 from the Palliative and end of life care PSP
UNCERTAINTY:  Are outcomes (for example, symptom control and incidental ...
Priority 26 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to support children ...
Priority 27 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best treatments for nausea and ...
Priority 28 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to manage the ...
Palliative and end of life care Refresh
In 2013 Marie Curie initiated a Priority Setting Partnership to ask ...
Pancreatitis
 
Top 10 priorities
Are there better ways to treat and manage acute ...
Patient safety in primary care
 
Top 10 priorities
The most important research questions around patient safety in primary care, identified by patients, carers and clinicians
Pernicious Anaemia
 
Top 10 priorities
Can a more reliable and accurate test be developed ...
Pessaries for Pelvic Organ Prolapse
More information about the work of the James Lind Alliance PSP in identifying and prioritising unanswered research questions about the use of pessaries in pelvic organ prolapse
Top 10 priorities
How might a pessary affect sexual activity? Do pessaries have an ...
Priority 1 from the Pessary use for Prolapse PSP
UNCERTAINTY: How might a pessary affect sexual activity? (JLA PSP Priority ...
Priority 2 from the Pessary use for Prolapse PSP
UNCERTAINTY: Do pessaries have an effect on the psychological ...
Priority 3 from the Pessary use for Prolapse PSP
UNCERTAINTY: What is important for a pessary self-management programme? (JLA PSP ...
Priority 4 from the Pessary use for Prolapse PSP
UNCERTAINTY: What are the risks and complications of pessary ...
Priority 5 from the Pessary use for Prolapse PSP
UNCERTAINTY: Are pessaries effective as a long-term treatment for prolapse? ...
Priority 6 from the Pessary use for Prolapse PSP
UNCERTAINTY: What is the best way to assess what type ...
Priority 7 from the Pessary use for Prolapse PSP
UNCERTAINTY: What is the best way to minimise and treat ...
Priority 8 from the Pessary use for Prolapse PSP
UNCERTAINTY: Does pessary use in prolapse have a positive impact ...
Priority 9 from the Pessary use for Prolapse PSP
UNCERTAINTY: When should oestrogen cream be used with a pessary? ...
Priority 10 from the Pessary use for Prolapse PSP
UNCERTAINTY: What is the ideal training to be a ...
Priority 11 from the Pessary use for Prolapse PSP
UNCERTAINTY: What level of prolapse will improve with the ...
Priority 12 from the Pessary use for Prolapse PSP
UNCERTAINTY: When is a pessary the right treatment for prolapse? ...
Priority 13 from the Pessary use for Prolapse PSP
UNCERTAINTY: What is the role of physiotherapy as part of ...
Priority 14 from the Pessary use for Prolapse PSP
UNCERTAINTY: Are pessaries effective in the treatment of prolapse? (JLA PSP ...
Priority 15 from the Pessary use for Prolapse PSP
UNCERTAINTY: Do the risks and complications of pessaries increase with ...
Priority 16 from the Pessary use for Prolapse PSP
UNCERTAINTY: What differences does a pessary make when used to ...
Priority 17 from the Pessary use for Prolapse PSP
UNCERTAINTY: Which pessary should be used for which prolapse? (JLA PSP ...
Priority 18 from the Pessary use for Prolapse PSP
UNCERTAINTY: What should be considered when choosing which type of ...
Priority 19 from the Pessary use for Prolapse PSP
UNCERTAINTY: Should women using pessaries be offered supervised pelvic ...
Priority 20 from the Pessary use for Prolapse PSP
UNCERTAINTY: What things make a difference to help with ...
Priority 21 from the Pessary use for Prolapse PSP
UNCERTAINTY: Is a pessary as acceptable as surgery for the ...
Priority 22 from the Pessary use for Prolapse PSP
UNCERTAINTY: Should a young woman with a non-bothersome prolapse be ...
Priority 23 from the Pessary use for Prolapse PSP
UNCERTAINTY: How safe are pessaries? (JLA PSP Priority 23) Overall ranking 23 JLA question ...
Priority 24 from the Pessary use for Prolapse PSP
UNCERTAINTY: Can women be taught to manage their own pessary? (JLA PSP ...
Priority 25 from the Pessary use for Prolapse PSP
UNCERTAINTY: Does the use of a pessary during or after ...
Post Mastectomy Breast Reconstruction
 
Top 10 Priorities
How to determine the most suitable breast reconstruction surgery ...
Priority 1 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: How to determine the most suitable breast reconstruction ...
Priority 2 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: How can timely access to breast reconstruction services be ...
Priority 3 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: What are the rates of breast cancer re-occurrence and ...
Priority 4 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: How does breast reconstruction surgery impact future surveillance? ...
Priority 5 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: How does radiation therapy affect breast reconstruction including ...
Priority 6 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: What are the satisfaction rates associated with each type ...
Priority 7 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: Are there any rehabilitation treatments or exercises during ...
Priority 8 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: How can a patient prepare prior to surgery (for ...
Priority 9 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: What are the pros and cons of the different ...
Priority 10 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY:What is the evidence and safety behind fat grafting ...
Priority 11 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: What are the short and long term safety ...
Priority 12 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: What are the factors associated with success and failure ...
Priority 13 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: What should be the ideal wait time between mastectomy ...
Priority 14 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: What is the evidence behind implants and the ...
Priority 15 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: What are the pros and cons of nipple ...
Priority 16 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: What proportion of patients regret having breast reconstruction? (JLA PSP ...
Priority 17 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: What are the failure rates associated with each type ...
Priority 18 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: What are the possible complications as well as side ...
Priority 19 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: What are the rates of re-operation after different breast ...
Priority 20 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: How can complications be prevented after post mastectomy breast ...
Priority 21 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: In a patient with breast cancer, what are the ...
Priority 22 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: What is the evidence behind new breast reconstruction ...
Priority 23 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: How many future surgeries should patients expect with each ...
Priority 24 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: What is the lifetime of a breast implant?  (JLA PSP ...
Priority 25 from the Post Mastectomy Breast Reconstruction PSP
UNCERTAINTY: What are the different ways to improve sensation ...
Pregnancy and Childbirth (Uganda)
Maternal mortality is unacceptably high with around 295,000 women ...
Physiotherapy
 
Top 10 Priorities
When health problems are developing, at what point is ...
Priority 1 from the Physiotherapy PSP
UNCERTAINTY: When health problems are developing, at what point is ...
Priority 2 from the Physiotherapy PSP
UNCERTAINTY: When used by physiotherapists, what methods are effective ...
Priority 3 from the Physiotherapy PSP
UNCERTAINTY: What are the best ways to deliver physiotherapy ...
Priority 4 from the Physiotherapy PSP
 
Priority 5 from the Physiotherapy PSP
 
Priority 6 from the Physiotherapy PSP
 
Priority 7 from the Physiotherapy PSP
 
Priority 8 from the Physiotherapy PSP
 
Priority 9 from the Physiotherapy PSP
UNCERTAINTY: How is patient progress and/or the results of ...
Priority 10 from the Physiotherapy PSP
 
Priority 11 from the Physiotherapy PSP
UNCERTAINTY: How does the amount of physiotherapy received affect ...
Priority 12 from the Physiotherapy PSP
UNCERTAINTY: What do the people who fund services and ...
Priority 13 from the Physiotherapy PSP
UNCERTAINTY: What do patients expect of physiotherapy and understand ...
Priority 14 from the Physiotherapy PSP
UNCERTAINTY: Do staffing levels and skill mix impact patient ...
Priority 15 from the Physiotherapy PSP
UNCERTAINTY: When trying to improve patient and service outcomes, ...
Priority 16 from the Physiotherapy PSP
UNCERTAINTY: What factors predict the onset of health problems, ...
Priority 17 from the Physiotherapy PSP
UNCERTAINTY: How well do patients recall physiotherapy advice and ...
Priority 18 from the Physiotherapy PSP
UNCERTAINTY: What methods do physiotherapists use to treat patients, ...
Priority 19 from the Physiotherapy PSP
UNCERTAINTY: What types of exercises, doses and methods of ...
Priority 20 from the Physiotherapy PSP
UNCERTAINTY: What training is available to physiotherapists for developing ...
Priority 21 from the Physiotherapy PSP
UNCERTAINTY: How do physiotherapists decide on what their treatment ...
Priority 22 from the Physiotherapy PSP
UNCERTAINTY: What are patients offered nationally in terms of ...
Priority 23 from the Physiotherapy PSP
UNCERTAINTY: What's the availability of physiotherapy services nationally, how ...
Priority 24 from the Physiotherapy PSP
UNCERTAINTY: How are different physiotherapy services provided, staffed and ...
Priority 25 from the Physiotherapy PSP
UNCERTAINTY: What are the physiological effects of different physiotherapy ...
Pressure ulcers
 
Top 10 priorities
How effective is repositioning in the prevention of pressure ...
Priority 1 from the Pressure Ulcer PSP
UNCERTAINTY: How effective is repositioning in the prevention of ...
Priority 2 from the Pressure Ulcer PSP
UNCERTAINTY: How effective at preventing pressure ulcers is involving ...
Priority 3 from the Pressure Ulcer PSP
UNCERTAINTY: Does the education of health and social care ...
Priority 4 from the Pressure Ulcer PSP
UNCERTAINTY: How effective are the different types of pressure ...
Priority 5 from the Pressure Ulcer PSP
UNCERTAINTY: What impact do different service models have on ...
Priority 6 from the Pressure Ulcer PSP
UNCERTAINTY: What are the best service models to ensure ...
Priority 7 from the Pressure Ulcer PSP
UNCERTAINTY: For wheelchair users sitting on a pressure ulcer, ...
Priority 8 from the Pressure Ulcer PSP
UNCERTAINTY: How effective are wound dressings in the promotion ...
Priority 9 from the Pressure Ulcer PSP
UNCERTAINTY: Does regular turning of patients in bed promote ...
Priority 10 from the Pressure Ulcer PSP
UNCERTAINTY: Does improving diet (eating) and hydration (drinking) promote ...
Priority 11 from the Pressure Ulcer PSP
UNCERTAINTY: How effective are surgical operations to close pressure ...
Priority 12 from the Pressure Ulcer PSP
UNCERTAINTY: How effective are topical skin care products and ...
Priority 13 from the Pressure Ulcer PSP
Note that Priorities 13-21 are numbered for identification purposes, but were not ranked by the PSP
Priority 14 from the Pressure Ulcer PSP
UNCERTAINTY: Does exercise coaching help in the prevention of ...
Priority 15 from the Pressure Ulcer PSP
UNCERTAINTY: Is using a pressure ulcer risk rating scale ...
Priority 16 from the Pressure Ulcer PSP
UNCERTAINTY: How effective are incontinence devices at preventing ulcers? (JLA ...
Priority 17 from the Pressure Ulcer PSP
UNCERTAINTY: How effective is non-surgical debridement in ulcer healing, ...
Priority 18 from the Pressure Ulcer PSP
UNCERTAINTY: In people with multiple sclerosis which analgesics are ...
Priority 19 from the Pressure Ulcer PSP
UNCERTAINTY: What is the value of topical agents in ...
Priority 20 from the Pressure Ulcer PSP
UNCERTAINTY: How effective is negative pressure wound therapy as ...
Priority 21 from the Pressure Ulcer PSP
UNCERTAINTY: For people at risk of pressure ulcers how ...
Preterm birth
 
Top 10 priorities
Which interventions are most effective to predict or prevent ...
Problematic Hip Replacement
 
Top 10 priorities
The most important ...
Progressive Pulmonary Fibrosis
 
Top 10 priorities
 
Prostate cancer
 
Top 10 priorities
How can overtreatment for prostate cancer be prevented by ...
PROTECT PSP (Priorities for Future Research on Reducing and Stopping Psychiatric Medicines)
 
Psoriasis
Information about the research priority setting work around Psoriasis started in 2017 using James Lind Alliance methods
Top 10 priorities
Do lifestyle factors such as diet, dietary supplements, alcohol, ...
Priority 1 from the Psoriasis PSP
UNCERTAINTY: Do lifestyle factors such as diet, dietary supplements, alcohol, ...
Priority 2 from the Psoriasis PSP
UNCERTAINTY: Does treating psoriasis early (or proactively) reduce the severity ...
Priority 3 from the Psoriasis PSP
UNCERTAINTY: What factors predict how well psoriasis will respond to ...
Priority 4 from the Psoriasis PSP
UNCERTAINTY: What is the best way to treat the symptoms ...
Priority 5 from the Psoriasis PSP
UNCERTAINTY: How well do psychological and educational interventions work for ...
Priority 6 from the Psoriasis PSP
UNCERTAINTY: Does treating psoriasis help improve other health conditions, such ...
Priority 7 from the Psoriasis PSP
UNCERTAINTY: Why do psoriasis treatments stop working well against psoriasis ...
Priority 8 from the Psoriasis PSP
UNCERTAINTY: To what extent is psoriasis caused by a person’s ...
Priority 9 from the Psoriasis PSP
UNCERTAINTY: Is a person with psoriasis more likely to develop ...
Priority 10 from the Psoriasis PSP
UNCERTAINTY: What’s the best way to treat sudden flare ups ...
Priority 11 from the Psoriasis PSP
UNCERTAINTY: Are oral and biological treatments for psoriasis safe to ...
Priority 12 from the Psoriasis PSP
UNCERTAINTY: What are the long-term benefits and risks of oral ...
Priority 13 from the Psoriasis PSP
UNCERTAINTY: Are lifestyle factors such as diet, alcohol intake, weight ...
Priority 14 from the Psoriasis PSP
UNCERTAINTY: Can oral and biological treatments for psoriasis be combined ...
Priority 15 from the Psoriasis PSP
UNCERTAINTY: Could gene therapy help to treat psoriasis? (JLA PSP Priority ...
Priority 16 from the Psoriasis PSP
UNCERTAINTY: How does psoriasis affect a person psychologically? (JLA PSP Priority ...
Priority 17 from the Psoriasis PSP
UNCERTAINTY: What factors affect how psoriasis will progress, or whether ...
Priority 18 from the Psoriasis PSP
UNCERTAINTY: How do changes in female hormones, such as during ...
Priority 19 from the Psoriasis PSP
UNCERTAINTY: What is the best and most cost-effective way of ...
Priority 20 from the Psoriasis PSP
UNCERTAINTY: What triggers a sudden flare up of psoriasis and ...
Psoriatic Arthritis
 
Top 10 priorities
 
Priority 1 from the Psoriatic Arthritis PSP
UNCERTAINTY: What is the best strategy for managing patients with ...
Priority 2 from the Psoriatic Arthritis PSP
UNCERTAINTY: What factors affect how psoriatic arthritis will progress, the ...
Priority 3 from the Psoriatic Arthritis PSP
UNCERTAINTY: Can tests be developed to predict whether a person ...
Priority 4 from the Psoriatic Arthritis PSP
UNCERTAINTY: Is a person with psoriatic arthritis at risk of ...
Priority 5 from the Psoriatic Arthritis PSP
UNCERTAINTY: Does treating psoriatic arthritis early (or proactively) reduce the ...
Priority 6 from the Psoriatic Arthritis PSP
UNCERTAINTY: What triggers acute exacerbations and flares of psoriatic arthritis ...
Priority 7 from the Psoriatic Arthritis PSP
UNCERTAINTY: What is the best way to measure outcomes of ...
Priority 8 from the Psoriatic Arthritis PSP
UNCERTAINTY: What are the long-term risks and benefits of medications ...
Priority 9 from the Psoriatic Arthritis PSP
UNCERTAINTY: Why do treatments stop working well against psoriatic arthritis, ...
Priority 10 from the Psoriatic Arthritis PSP
UNCERTAINTY: What treatments present the most benefit (considering efficacy, tolerability ...
Priority 11 from the Psoriatic Arthritis PSP
UNCERTAINTY: What factors or tests predict how well an individual ...
Priority 12 from the Psoriatic Arthritis PSP
UNCERTAINTY: To what extent is psoriatic arthritis caused or affected ...
Priority 13 from the Psoriatic Arthritis PSP
UNCERTAINTY: What additional treatments (including pain medications, hydrotherapy and pain ...
Priority 14 from the Psoriatic Arthritis PSP
UNCERTAINTY: What is best way of predicting and preventing joint ...
Priority 15 from the Psoriatic Arthritis PSP
UNCERTAINTY: What factors affect which body tissues (joints, skin, tendons) ...
Priority 16 from the Psoriatic Arthritis PSP
UNCERTAINTY: What is the role of non-pharmacological treatments such as ...
Priority 17 from the Psoriatic Arthritis PSP
UNCERTAINTY: What role does imaging such as x-ray, MRI and ...
Priority 18 from the Psoriatic Arthritis PSP
UNCERTAINTY: How do changes in female hormones, such as during ...
Pulmonary Hypertension (Canada)
 
Top 10 priorities
What are the specific mechanisms that lead to development ...
Quality Use of Medicines in People Living with Dementia
 
Top 10 Priorities
 
Rare Anaemias Inherited
Details about the work of the James Lind Alliance Priority Setting Partnership in identifying research uncertainties around Rare Anaemias
Top 10 Priorities
Would a national formal network of clinicians with expertise ...
Rare Musculoskeletal Diseases in Adulthood
A summary of priority setting work in this area using James Lind Alliance methods
Top 10 Priorities
What is considered a good outcome of treatment in ...
Priority 1 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: What is considered a good outcome of treatment in ...
Priority 2 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: What is the cause of pain in people with ...
Priority 3 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: What is the psychological impact of having a ...
Priority 4 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: What can be done to prevent rare metabolic bone ...
Priority 5 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: What are the best ways to manage fatigue ...
Priority 6 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: What are the best forms of surgery to ...
Priority 7 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: What are the benefits and side effects of drug ...
Priority 8 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: How do rare metabolic bone disorders progress as people ...
Priority 9 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: How are other parts of the body affected by ...
Priority 10 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: What are the best ways to prevent dental problems ...
Priority = 10 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: How and why do people with rare metabolic bone ...
Priority 12 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: Are there more effective, long-term treatments for pain (including ...
Priority 13 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: How does menopause impact on women with rare metabolic ...
Priority 14 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: How does care and support for adults need ...
Priority 15 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: Are people with rare metabolic bone disorders at risk ...
Priority 16 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: Could a combination of self-management approaches reduce pain and ...
Priority 17 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: What is the best way to link up and ...
Priority 18 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: Which treatments are safer and more effective for people ...
Priority 19 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: What is the best form of exercise for people ...
Priority 20 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: How does drug treatment need to change as people ...
Priority 21 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: Is stem cell therapy an effective treatment for people ...
Priority 22 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: Why are some health professionals unaware of rare metabolic ...
Priority 23 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: If we have a better understanding of what causes ...
Priority 24 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: Would specialist services result in better care for people ...
Priority 25 from the Rare Musculoskeletal Diseases in Adulthood PSP
UNCERTAINTY: Is life expectancy affected by rare metabolic bone disorders? ...
Retention in Randomised Trails
Describing the work of a priority setting partnership in identifying uncertainties around what we know about the best ways to encourage people to stay involved in clinical trails
Top 10 priorities
What motivates a participant’s decision to complete a clinical ...
Revision Knee Replacement
 
Top 10 Priorities
What are the causes of persistent pain following a ...
Priority 1 from the Revision Knee Replacement PSP
UNCERTAINTY: What are the causes of persistent pain following a ...
Priority 2 from the Revision Knee Replacement PSP
UNCERTAINTY: What is the best way to diagnose and ...
Priority 3 from the Revision Knee Replacement PSP
UNCERTAINTY: What are the most effective ways to organise health ...
Priority 4 from the Revision Knee Replacement PSP
UNCERTAINTY: What factors determine (predict) whether revision knee surgery ...
Priority 5 from the Revision Knee Replacement PSP
UNCERTAINTY: What can be done after and/or before revision knee ...
Priority 6 from the Revision Knee Replacement PSP
UNCERTAINTY: What is the psychological impact of a problematic knee ...
Priority 7 from the Revision Knee Replacement PSP
UNCERTAINTY: How should we measure the outcomes following revision knee ...
Priority 8 from the Revision Knee Replacement PSP
UNCERTAINTY: Is there a way to manage some types ...
Priority 9 from the Revision Knee Replacement PSP
UNCERTAINTY: What causes knee stiffness following knee replacement? How can ...
Priority 10 from the Revision Knee Replacement PSP
UNCERTAINTY: What are the best forms of surgery to ...
Priority 11 from the Revision Knee Replacement PSP
UNCERTAINTY: What are the best ways to investigate the causes ...
Priority 12 from the Revision Knee Replacement PSP
UNCERTAINTY: What are the best treatments for pain in ...
Priority 13 from the Revision Knee Replacement PSP
UNCERTAINTY: What is the best way to treat a break ...
Priority 14 from the Revision Knee Replacement PSP
UNCERTAINTY: How long does a revision knee replacement last and ...
Priority 15 from the Revision Knee Replacement PSP
UNCERTAINTY: What are the best ways to manage patients’ unmet ...
Priority 16 from the Revision Knee Replacement PSP
UNCERTAINTY:  What factors increase the risks of infection and ...
Priority 17 from the Revision Knee Replacement PSP
UNCERTAINTY:  What are the long-term outcomes when a knee ...
Priority 18 from the Revision Knee Replacement PSP
UNCERTAINTY: What are the best non-surgical treatments around the time ...
Priority 19 from the Revision Knee Replacement PSP
UNCERTAINTY: What are the most effective forms of pain relief ...
Priority 20 from the Revision Knee Replacement PSP
UNCERTAINTY: What are the long-term outcomes of revision knee surgery? ...
Priority 21 from the Revision Knee Replacement PSP
UNCERTAINTY: What are the best ways to investigate implant-related failure ...
Priority 22 from the Revision Knee Replacement PSP
UNCERTAINTY:  If necessary following infection in a knee replacement, ...
Priority 23 from the Revision Knee Replacement PSP
UNCERTAINTY: What is the best way to restore lost bone ...
Safe Care for Adults with Complex Health Needs
More details about the James Lind Alliance Priority Setting Partnership in Patient Safety
Top 10 Priorities
When people with complex health needs require care from ...
Schizophrenia
 
Top 10 priorities
What is the best way to treat people with ...
Scoliosis
How the James Lind Alliance Priority Setting Partnership in Scoliosis will work and how you can find out more
The Top 10 Priorities
 
Priority 1 from the Scoliosis PSP
UNCERTAINTY: What are the best strategies for reducing or ...
Priority 2 from the Scoliosis PSP
UNCERTAINTY: How is quality of life affected by scoliosis ...
Priority 3 from the Scoliosis PSP
UNCERTAINTY: Could surgical procedures be improved to become less ...
Priority 4 from the Scoliosis PSP
UNCERTAINTY:  What are the long-term outcomes and side-effects of ...
Priority 5 from the Scoliosis PSP
UNCERTAINTY: How likely is scoliosis to get worse over ...
Priority 6 from the Scoliosis PSP
UNCERTAINTY: What is the best method of imaging scoliosis ...
Priority 7 from the Scoliosis PSP
UNCERTAINTY: Which type of brace (e.g. rigid or dynamic) ...
Priority 8 from the Scoliosis PSP
UNCERTAINTY: What forms of postural care are most effective ...
Priority 9 from the Scoliosis PSP
UNCERTAINTY: If scoliosis is diagnosed earlier, does this change ...
Priority 10 from the Scoliosis PSP
UNCERTAINTY: How are the psychological impacts (including on body image) ...
Priority 11 from the Scoliosis PSP
UNCERTAINTY: Can the instrumentation (rods/ implants etc) cause harm in ...
Priority 12 from the Scoliosis PSP
UNCERTAINTY: How is scoliosis affected by hormonal changes in women ...
Priority 13 from the Scoliosis PSP
UNCERTAINTY: What are the most effective combinations of treatment (drugs, ...
Priority 14 from the Scoliosis PSP
UNCERTAINTY: What are the long-term effects of bracing for children ...
Priority 15 from the Scoliosis PSP
UNCERTAINTY: What are the most effective combinations of treatment (drugs, ...
Priority 16 from the Scoliosis PSP
UNCERTAINTY: What are the psychological impacts (including on body ...
Priority 17 from the Scoliosis PSP
UNCERTAINTY: Would there be benefits to screening children / young ...
Priority 18 from the Scoliosis PSP
UNCERTAINTY: When and how does scoliosis affect other parts of ...
Priority 19 from the Scoliosis PSP
UNCERTAINTY: How is scoliosis linked to other conditions (e.g. osteoporosis, ...
Priority 20 from the Scoliosis PSP
UNCERTAINTY: When is surgery best for different types of scoliosis, ...
Priority 21 from the Scoliosis PSP
UNCERTAINTY: Is physiotherapy cost effective in the treatment of scoliosis, ...
Priority 22 from the Scoliosis PSP
UNCERTAINTY: What are the best ways to care for ...
Priority 23 from the Scoliosis PSP
UNCERTAINTY: What triggers relatively mild scoliosis to worsen rapidly?  (JLA PSP ...
Priority 24 from the Scoliosis PSP
UNCERTAINTY: When and how often is repeat surgery required in ...
Priority 25 from the Scoliosis PSP
UNCERTAINTY: What are the best strategies for preventing scoliosis (combining ...
Priority 26 from the Scoliosis PSP
UNCERTAINTY: Does scoliosis affect life expectancy in adults?  (JLA PSP Priority ...
Priority 27 from the Scoliosis PSP
UNCERTAINTY: What is the most effective type of exercise (e.g. ...
Seniors' Health (Alberta, Canada)
 
Top 10 Priorities
What strategies best allow older adults to remain independent ...
Priority 1 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: What strategies best allow older adults to remain independent ...
Priority 2 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: In what ways can the healthcare system become more ...
Priority 3 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: In what ways can healthcare service accessibility for older ...
Priority 4 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: How can geriatric-related knowledge among healthcare providers be improved ...
Priority 5 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: What are the optimal ways to ensure healthcare providers ...
Priority 6 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: What can be done to increase availability of dementia-related ...
Priority 7 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: What interventions and programs best enable older adults to ...
Priority 8 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: What are the most effective programs and services which ...
Priority 9 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: What is the most effective strategy to ensure an ...
Priority 10 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: How can healthcare encounters be restructured to allow older ...
Priority 11 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: In what ways can quality of care in continuing ...
Priority 12 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: What strategies best allow older adults to remain in ...
Priority 13 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: What is the most effective strategy for information sharing ...
Priority 14 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: What can be done to increase the availability of ...
Priority 15 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: In what ways can seniors with dementia be better ...
Priority 16 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: What information should healthcare providers provide to and discuss ...
Priority 17 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: How can behaviours associated with dementia (e.g., aggression) be ...
Priority 18 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: What educational strategies are most effective in improving the ...
Priority 19 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: What are the most effective strategies to allow people ...
Priority 20 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: What strategies are most effective for improving the environment ...
Priority 21 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: What strategies are most effective in preventing and/or delaying ...
Priority 22 from the Seniors' Health (Alberta, Canada) PSP
UNCERTAINTY: What are the optimal ways for caregivers of older ...
Sepsis
The Sepsis PSP brings together patients, carers and clinicians ...
Setting priorities for social care research in Wales
 
Top 10 priorities
Does early care planning and/or early or regular contact ...
Priority 2 from the Setting priorities for social care research in Wales project
UNCERTAINTY: How can we reduce isolation and stress amongst carers ...
Priority 4 from the Setting priorities for social care research in Wales project
UNCERTAINTY: How can social care for older people be tailored ...
Priority 5 from the Setting priorities for social care research in Wales project
UNCERTAINTY: How can social care best support older people with ...
Priority 6 from the Setting priorities for social care research in Wales project
UNCERTAINTY:  How can social care for older people be ...
Priority 7 from the Setting priorities for social care research in Wales project
UNCERTAINTY: What barriers do older people experience in accessing services ...
Priority 8 from the Setting priorities for social care research in Wales project
UNCERTAINTY: How can terms and conditions, including wages, be improved ...
Priority 9 from the Setting priorities for social care research in Wales project
UNCERTAINTY: How can social care for older people be kept ...
Priority 10 from the Setting priorities for social care research in Wales project
UNCERTAINTY: How can home and community-based social care enable older ...
Priority 11 from the Setting priorities for social care research in Wales project
UNCERTAINTY: How can social care for older people be made ...
Priority 12 from the Setting priorities for social care research in Wales project
UNCERTAINTY: How does the setting in different parts of Wales ...
Priority 13 from the Setting priorities for social care research in Wales project
UNCERTAINTY: How can respite for carers of older people be ...
Priority 14 from the Setting priorities for social care research in Wales project
UNCERTAINTY: What are the benefits to older people of receiving ...
Priority 15 from the Setting priorities for social care research in Wales project
UNCERTAINTY: What has been learnt about how best to support ...
Priority 1 from the Setting priorities for social care research in Wales project
UNCERTAINTY: Does early care planning and/or early or regular contact ...
Priority 3 from the Setting priorities for social care research in Wales project
UNCERTAINTY: How can social care and health services, including the ...
Sexual Violence
 
Top 10 priorities
 
Sight loss and vision
 
Top 10 priorities
The Sight Loss and Vision PSP set Top 10 priorities ...
Age-Related Macular Degeration (AMD) Top 10
Can a treatment to stop dry AMD progressing and/or ...
Priority 1 from the Sight Loss and Vision PSP Age Related
UNCERTAINTY: Can a treatment to stop dry age related ...
Priority 2 from the Sight Loss and Vision PSP Age Related Macular Degeneration
UNCERTAINTY: What is the cause of age related ...
Priority 3 from the Sight Loss and Vision PSP Age Related Macular Degeneration
UNCERTAINTY: How can age related macular degeneration (AMD) ...
Priority 4 from the Sight Loss and Vision PSP Age Related Macular Degeneration
UNCERTAINTY: Are there ways of restoring sight loss ...
Priority 5 from the Sight Loss and Vision PSP Age Related Macular Degeneration
UNCERTAINTY: Can the development of age related macular ...
Priority 6 from the Sight Loss and Vision PSP Age Related Macular Degeneration
UNCERTAINTY: What is the most effective way to ...
Priority 7 from the Sight Loss and Vision PSP Age Related Macular Degeneration
UNCERTAINTY: What factors influence the progression of age ...
Priority 8 from the Sight Loss and Vision PSP Age Related Macular Degeneration
UNCERTAINTY: Can a non-invasive therapy be developed for ...
Priority 9 from the Sight Loss and Vision PSP Age Related Macular Degeneration
UNCERTAINTY: Can dietary factors, nutritional supplements, complementary therapies ...
Priority 10 from the Sight Loss and Vision PSP Age Related Macular Degeneration
UNCERTAINTY: What are the best enablement strategies for ...
Cataract Top 10
How can cataracts be prevented from developing? Can the return ...
Priority 1 from the Sight Loss and Vision PSP Cataract
UNCERTAINTY: How can we prevent cataracts from developing? (JLA PSP ...
Priority 2 from the Sight Loss and Vision PSP Cataract
UNCERTAINTY: Can the return of cloudy or blurred vision ...
Priority 3 from the Sight Loss and Vision PSP Cataract
UNCERTAINTY: How can cataract progression be slowed down? (JLA ...
Priority 4 from the Sight Loss and Vision PSP Cataract
UNCERTAINTY: What alternatives to treat cataracts other than cataract ...
Priority 5 from the Sight Loss and Vision PSP Cataract
UNCERTAINTY: What is the cause of cataract? (JLA PSP Priority ...
Priority 6 from the Sight Loss and Vision PSP Cataract
UNCERTAINTY: How can cataract surgery outcome be improved? (JLA PSP ...
Priority 7 from the Sight Loss and Vision PSP Cataract
UNCERTAINTY: How safe and effective is laser assisted cataract ...
Priority 8 from the Sight Loss and Vision PSP Cataract
UNCERTAINTY: Should accommodative lenses be developed for cataract surgery? (JLA ...
Priority 9 from the Sight Loss and Vision PSP Cataract
UNCERTAINTY: What is the best measure of visual disability ...
Priority 10 from the Sight Loss and Vision PSP Cataract
UNCERTAINTY: Can retinal detachment be prevented after cataract surgery? (JLA ...
Childhood Onset Disorders Top 10
How can cerebral visual impairment be identified, prevented and ...
Priority 1 Sight Loss and Vision PSP Childhood Disorders
UNCERTAINTY: How can cerebral visual impairment be identified, prevented ...
Priority 2 Sight Loss and Vision PSP Childhood Disorders
UNCERTAINTY: How can we develop treatment for visual pathway ...
Priority 3 Sight Loss and Vision PSP Childhood Disorders
UNCERTAINTY: How do we improve screening and surveillance from ...
Priority 4 Sight Loss and Vision PSP Childhood Disorders
UNCERTAINTY: Can the treatment of amblyopia be improved to ...
Priority 5 Sight Loss and Vision PSP Childhood Disorders
UNCERTAINTY: How can cataract be prevented in children? (JLA PSP ...
Priority 6 Sight Loss and Vision PSP Childhood Disorders
UNCERTAINTY: What are the causes of coloboma and microphthalmia/anophthalmia ...
Priority 7 Sight Loss and Vision PSP Childhood Disorders
UNCERTAINTY: Can vision be corrected in later life for ...
Priority 8 Sight Loss and Vision PSP Childhood Disorders
UNCERTAINTY: How can retinoblastoma be identified, prevented and treated ...
Priority 9 Sight Loss and Vision PSP Childhood Disorder
UNCERTAINTY: Can better treatments for glaucoma in children be ...
Priority 10 Sight Loss and Vision PSP Childhood Disorder
UNCERTAINTY: Can a treatment be developed to improve vision ...
Corneal and External Eye Conditions Top 10
Can new therapies such as gene or stem cell ...
Glaucoma Top 10
What are the most effective treatments for glaucoma and ...
Inherited Retinal Disease
Can a treatment to slow down progression or reverse ...
Neuro-ophthalmology Top 10
What is the underlying cause of optic nerve damage ...
Ocular Cancer Top 10
What can be done to help ocular cancer sufferers? Can ...
Ocular Inflammatory Disease Top 10
What are the most effective treatments for ocular and ...
Priority 8 Sight Loss and Vision PSP Ocular Inflammatory Disease
UNCERTAINTY: What medications best prevent the development of eye ...
Refractive Error and Ocular Motility Top 10
What factors influence the development of refractive error (myopia, ...
Retinal Vascular Disease Top 10
What are the best methods to prevent retinopathy of ...
Vitreoretinal or Ocular Trauma Top 10
How can surgical techniques be improved to save sight ...
Skin Cancer Surgery
 
Top 10 priorities
 
Social Care Research Wales – Family Support Services
 
Top 10 priorities
 
Spinal cord injury
 
Top 10 priorities
Does activity based rehabilitation, including functional electrical stimulation coupled ...
Spinal Cord Injury (Sweden)
 
Top 10 priorities
1.  For people with spinal cord injury, what kinds ...
Spinal Muscular Atrophy (Europe)
 
Spinal Sarcoma
 
Stillbirth
 
Top 10 priorities
How can the structure and function of the placenta ...
Priority 1 from the Stillbirth PSP
UNCERTAINTY: How can the structure and function of the placenta ...
Priority 2 from the Stillbirth PSP
UNCERTAINTY: Does ultrasound assessment of fetal growth in the third ...
Priority 3 from the Stillbirth PSP
UNCERTAINTY: Do modifiable ‘lifestyle’ factors (e.g. diet, vitamin deficiency, sleep ...
Priority 4 from the Stillbirth PSP
UNCERTAINTY: Which investigations identify a fetus which is at risk ...
Priority 5 from the Stillbirth PSP
UNCERTAINTY: Can the wider use of existing tests and monitoring ...
Priority 6 from the Stillbirth PSP
UNCERTAINTY: What causes stillbirth in normally grown babies? (JLA PSP ...
Priority 7 from the Stillbirth PSP
UNCERTAINTY: What is the most appropriate bereavement and post natal ...
Priority 8 from the Stillbirth PSP
UNCERTAINTY: Which antenatal care interventions are associated with a reduction ...
Priority 9 from the Stillbirth PSP
UNCERTAINTY: Would more accessible evidence-based information on signs and symptoms ...
Priority 10 from the Stillbirth PSP
UNCERTAINTY: How can staff support women and their partners in ...
Priority 11 from the Stillbirth PSP
UNCERTAINTY: Why is the incidence of stillbirth in the UK ...
Stroke
 
Stroke Prevention, Diagnosis, Pre-hospital and Hospital Care Top 10 Priorities
 
Priority 1 Stroke Prevention, Diagnosis, Pre-hospital and Hospital Care
UNCERTAINTY: What are the best interventions to stop stroke happening ...
Priority 3 Stroke Prevention, Diagnosis, Pre-hospital and Hospital Care
UNCERTAINTY: What are the benefits and risks of acute treatments ...
Priority 4 Stroke Prevention, Diagnosis, Pre-hospital and Hospital Care
UNCERTAINTY: What are the benefits and risks of new therapies ...
Priority 5 Stroke Prevention, Diagnosis, Pre-hospital and Hospital Care
UNCERTAINTY: What is the risk of recurrent stroke, how does ...
Priority 6 Stroke Prevention, Diagnosis, Pre-hospital and Hospital Care
UNCERTAINTY:  How can the proportion of patients with ischaemic ...
Priority 7 Stroke Prevention, Diagnosis, Pre-hospital and Hospital Care
UNCERTAINTY: What are the processes that cause delayed changes in ...
Priority 8 Stroke Prevention, Diagnosis, Pre-hospital and Hospital Care
UNCERTAINTY: How can complications of stroke be reduced (e.g. pneumonia)? ...
Priority 9 Stroke Prevention, Diagnosis, Pre-hospital and Hospital Care
UNCERTAINTY:  What are the risks and benefits of using ...
Priority 10 Stroke Prevention, Diagnosis, Pre-hospital and Hospital Care
UNCERTAINTY:  Do patients’ other health conditions, and characteristics such ...
Priority 11 Stroke Prevention, Diagnosis, Pre-hospital and Hospital Care
UNCERTAINTY: How do regional and other differences in access to ...
Priority 12 Stroke Prevention, Diagnosis, Pre-hospital and Hospital Care
UNCERTAINTY: What effect does diet have on short and long-term ...
Priority 13 Stroke Prevention, Diagnosis, Pre-hospital and Hospital Care
UNCERTAINTY:  What is the best timing and amount of ...
Priority 14 Stroke Prevention, Diagnosis, Pre-hospital and Hospital Care
UNCERTAINTY: What is the best body positioning for patients with ...
Stroke Rehabilitation and Long-term Care Top 10 Priorities
 
Priority 1 Stroke Rehabilitation and Long-term Care
UNCERTAINTY: How common are psychological problems and what impact do ...
Priority 2 Stroke Rehabilitation and Long-term Care
UNCERTAINTY: What is the best way to assess for, understand ...
Priority 3 Stroke Rehabilitation and Long-term Care
UNCERTAINTY: What are the effects of, and best assessments and ...
Priority 4 Stroke Rehabilitation and Long-term Care
UNCERTAINTY: How common is fatigue; what and why are there ...
Priority 5 Stroke Rehabilitation and Long-term Care
UNCERTAINTY: How can community stroke services best be resourced and ...
Priority 6 Stroke Rehabilitation and Long-term Care
UNCERTAINTY:What and how common are the long-term impacts of ...
Priority 7 Stroke Rehabilitation and Long-term Care
UNCERTAINTY: What is the best time, place and amount of ...
Priority 8 Stroke Rehabilitation and Long-term Care
UNCERTAINTY:How can people supporting stroke survivors work best with ...
Priority 9 Stroke Rehabilitation and Long-term Care
UNCERTAINTY: What are the best interventions including exercise to improve ...
Priority 10 Stroke Rehabilitation and Long-term Care
UNCERTAINTY: What do stroke survivors think and feel works well, ...
Priority 11 Stroke Rehabilitation and Long-term Care
UNCERTAINTY: What is the best intervention to improve outcomes for ...
Priority 12 Stroke Rehabilitation and Long-term Care
UNCERTAINTY: What are the factors that best predict, and make ...
Priority 13 Stroke Rehabilitation and Long-term Care
UNCERTAINTY: What are the causes of different types of pain ...
Priority 14 Stroke Rehabilitation and Long-term Care
UNCERTAINTY:Is there a fixed time period after which stroke ...
Priority 15 Stroke Rehabilitation and Long-term Care
UNCERTAINTY: What interventions improve arm function after stroke and when ...
Priority 16 Stroke Rehabilitation and Long-term Care
UNCERTAINTY: What is the best way to increase the availability ...
Priority 17 Stroke Rehabilitation and Long-term Care
UNCERTAINTY: What are the public thoughts and feelings (perceptions) on ...
Priority 18 Stroke Rehabilitation and Long-term Care
UNCERTAINTY: How can training for healthcare professionals be made the ...
Stroke Top 10s
The Stroke PSP set Top 10 priorities in two ...
Life after Stroke
 
Top 10 priorities
What are the best ways to improve cognition after ...
Surgery for common shoulder problems
 
Top 10 priorities
(in no order of priority): For the main shoulder conditions ...
Sustainable Perioperative Practice
 
Top 10 priorities
 
Teenage and Young Adult Cancer
More information about identifying and setting research priorities in teenage and young adult cancer
The Top 10 Priorities
What psychological support package improves psychological well-being, social functioning ...
Priority 1 from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: What psychological support package improves psychological well-being, social functioning ...
Priority 2 from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: What interventions, including self-care, can reduce or reverse adverse ...
Priority 3 from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: What are the best strategies to improve access to ...
Priority 4 from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: What General Practitioner or young person strategies, such as ...
Priority 5 from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: What are the best ways of supporting a young ...
Priority 6 from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: What are the most effective strategies to ensure that ...
Priority 7 from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: What interventions are most effective in supporting young people ...
Priority 8 from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: How can parents/carers/siblings/partners be best supported following the death ...
Priority 9 from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: What is the best method of follow-up and timing ...
Priority 10 from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: What targeted treatments are effective and have fewer short ...
Priority from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: What are the long term physical effects of a ...
Priority from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: What factors affect the time to diagnosis and what ...
Priority from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: What can young people do to help their recovery ...
Priority from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: What causes problems with cognitive functioning (chemobrain), how long ...
Priority from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: What are the best strategies for detecting and treating ...
Priority from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: For young people with incurable cancer, how should healthcare ...
Priority from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: What are the long-term physical effects of stem cell ...
Priority from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: For young people with incurable cancer, how should parents/carers ...
Priority from the Teenage and Young Adult Cancer PSP
UNCERTAINTY: What are the support needs of the family following ...
The Most Premature Babies
 
Tinnitus
 
Top 10 priorities
(in no order of priority) What management strategies are more ...
Traumatic Brachial Plexus Injury
 
Treatment of Pemphigus and Pemphigoid
 
Top 10 priorities
The most important ...
Urinary incontinence
 
Top 10 priorities
What are the optimal pelvic floor muscle training protocols ...
Type 1 Diabetes Mellitus in Adults Refresh
Type 1 diabetes mellitus is a chronic auto-immune condition ...
Vascular Conditions
 
Access Top 10 Priorities
 
Amputation Top 10 Priorties
 
Aortic Top 10 Priorities
 
Carotid Top 10 Priorities
 
Diabetic Foot Top 10 Priorities
 
Peripheral Arterial Disease PAD Top 10 Priorities
 
Service Organisation Top 10 Priorities
 
Venous Top 10 Priorities
 
Wounds Top 10 Priorities
 
Vascular Conditions Top 10s
 
Venous Thromboembolism (Canada)
 
Top 10 priorities
What is the optimal prevention and treatment for those ...
Vision Loss (Australia)
Inherited Retinal Diseases (IRD) are the leading cause of ...
Vitiligo
 
Top 10 priorities
How effective are systemic immunosuppressants in treating vitiligo? How much ...
Womb-cancer
 
The top 10
The top priorities for future research in the area of endometrial (womb) cancer, set in 2015 by patients, carers and health professionals
Priority 1 from the Womb Cancer psp
The top priority from the James Lind Alliance Womb Cancer research Priority Setting Partnership
Priority 2 from the Womb Cancer PSP
Priority 2 from the James Lind Alliance Womb Cancer Priority Setting Partnership
Priority 3 from the Womb Cancer PSP
Priority 3 from the James Lind Alliance Womb Cancer Priority Setting Partnership
Priority 4 from the Womb Cancer PSP
Priority 4 from the James Lind Alliance Womb Cancer PSP
Priority 5 from the Womb Cancer PSP
Priority 5 from the James Lind Alliance Womb Cancer PSP
Priority 6 from the Womb Cancer PSP
Priority 6 from the James Lind Alliance Womb Cancer PSP
Priority 7 from the Womb Cancer PSP
Priority 7 from the James Lind Alliance Womb Cancer PSP
Priority 8 from the Womb Cancer PSP
Priority 8 from the James Lind Alliance Womb Cancer PSP
Priority 9 from the Womb Cancer PSP
Priority 9 from the James Lind Alliance Womb Cancer PSP
Priority 10 from the Womb Cancer PSP
Priority 10 from the James Lind Alliance Womb Cancer PSP
Priority 11 from the Womb Cancer PSP
Priority 11 from the James Lind Alliance Womb Cancer PSP
Priority 12 from the Womb Cancer PSP
Priority 12 from the James Lind Alliance Womb Cancer PSP
Priority 13 from the Womb Cancer PSP
Priority 13 from the James Lind Alliance Womb Cancer PSP
Priority 14 from the Womb Cancer PSP
Priority 14 from the James Lind Alliance Womb Cancer PSP
Priority 15 from the Womb Cancer PSP
Priority 15 from the James Lind Alliance Womb Cancer PSP
Priority 16 from the Womb Cancer PSP
Priority 16 from the James Lind Alliance Womb Cancer PSP
Priority 17 from the Womb Cancer PSP
Priority 17 from the James Lind Alliance Womb Cancer PSP
Priority 19 from the Womb Cancer PSP
Priority 19 from the James Lind Alliance Womb Cancer PSP
Priority 20 from the Womb Cancer PSP
Priority 20 from the James Lind Alliance Womb Cancer PSP
Priority 21 from the Womb Cancer PSP
Priority 21 from the James Lind Alliance Womb Cancer PSP
Priority 22 from the Womb Cancer PSP
Priority 22 from the James Lind Alliance Womb Cancer PSP
Priority 24 from the Womb Cancer PSP
Priority 24 from the James Lind Alliance Womb Cancer PSP
Priority 25 from the Womb Cancer PSP
Priority 25 from the James Lind Alliance Womb Cancer PSP
Priority 26 from the Womb Cancer PSP
Priority 26 from the James Lind Alliance Womb Cancer PSP
Priority 27 from the Womb Cancer PSP
Priority 27 from the James Lind Alliance Womb Cancer PSP
Priority 23 from the Womb Cancer PSP
Priority 23 from the James Lind Alliance Womb Cancer PSP
Womens Cardiovascular Health and Cardiac Rehabilitation (Canada)
The Women’s Cardiovascular Health and Cardiac Rehabilitation PSP is ...
Women's Genital Prolapse and Incontinence (Gondar, Ethiopia)
 
Why is this important
 
Who is involved
 
Have your say
 
Top 10s
The Top 10 priorities for future research identified by each PSP, a collaboration between clinicians and patients to identify research priorities.
JLA Guidebook
The JLA Guidebook will help you through the priority setting process. Containing everything you need to understand a PSP, or run your own.
1. Introduction
The JLA Guidebook is aimed at people that are interested in the JLA’s priority setting process: namely, patients and their carers, clinicians
The James Lind Alliance
The James Lind Alliance (JLA) is a non-profit making initiative which was established in 2004. It brings patients, carers and clinicians together in Priority Setting Partnerships (PSPs) to identify and prioritise the unanswered questions about the effects of treatments that they agree are most important.
Contact us
Contact us The James Lind Alliance School of Healthcare ...
Acknowledgements
Acknowledgements of individuals involved in the writing of the JLA Guidebook.
2. James Lind Alliance Methods and Principles
Why involve patients and clinicians in setting research priorities? ...
Why the JLA method?
Learn more about the principles of the JLA.
What is a Priority Setting Partnership?
The aim of PSPs is to bring patients, carers ...
Who's who in the Priority Setting Partnership?
The structure and role of people in a Priority Setting Partnership.
What are the principles of the JLA?
The JLA priority setting method is flexible and responsive ...
Exclusions
Traditionally the health research agenda has been largely determined ...
What are evidence uncertainties?
The JLA definition of an evidence uncertainty is that: no ...
JLA Advisers
What's the role of a JLA Adviser? They support and guide the PSP, neutrally, ensuring that the process is followed in a fair, transparent way
3. How to establish a PSP
Includes the JLA's definition of treatment uncertainty and links to articles about treatment uncertainty
Roles & responsibilities
Being a PSP leader - what's involved?
The PSP lead
All PSPs require good leadership and a considerable time ...
The PSP Coordinator
What does a PSP Project Coordinator do? How much work is it?
The Information Specialist
What does a PSP Information Specialist do? What skills does the Information Specialist need?
The PSP Steering Group
What does a PSP Steering Group do? Includes a template Steering Group Terms of Reference document for PSPs to adapt
What are the costs involved in running a PSP?
How much does it cost to run a PSP? What might you need to spend money on?
How long does a PSP take?
Information on the time taken to run a PSP, with an example timetable
Example
The JLA website shows a completed timetable from the Alcohol-Related ...
4. Setting up a PSP
How to start setting up a PSP Steering Group of key people who collectively can represent all or the majority of issues. Includes links to documents needed.
Agreeing scope and protocol
Ideas for when thinking about the scope of a PSP. Implications of decisions made. With links to examples of protocols from previous PSPs.
Identifying and managing partners/stakeholders
When setting up a PSP it is essential to identify partners and the patients, carers and clinicians affected by the health topic being considered.
Example
An organisation's participation is likely to be encouraged if ...
Initial awareness or scoping meeting
It's optional, but some PSPs hold an initial awareness or launch meeting to raise the profile of the PSP among patient and clinician groups
Example
To save costs, it may be possible to run ...
Managing the PSP
Things to agree on within the PSP, to help everyone to work in a consultative and inclusive way.
Appreciating values and perspectives
Encouraging equal valuation of views from all PSP participants
Communications
Ideas for communications around PSPs, including using the JLA brand
Working with patients and carers
Tips for inclusive communication and involvement
Working with clinicians
Ideas for involving clinicians in the PSP
5. Gathering uncertainties
Where should PSPs gather their uncertainties from? How many should they aim for? Including examples of how this has been done
Example
Here are some examples of how PSPs have promoted ...
How many responses is enough?
There is no recommended maximum or minimum number of ...
Example
It is important for Steering Groups to be realistic ...
Survey design
Developing a PSP questionnaire, with examples
Survey duration
The duration of a PSP survey should allow enough time to generate enough responses to cover as many themes as possible.
Consent and ethics
Using personal data and information about ethics approval
Searching existing literature for uncertainties
Documented sources of information need to be searched for evidence of uncertainty during the prioritisation exercise.
6. Data processing & verifying uncertainties
The detailed steps involved in the data management for a Priority Setting Partnership with examples of numbers of survey respondents
Stage 1. Download the survey data
Advice on organising PSP data, with a link to a template for this
Stage 2. Remove out-of-scope submissions
Advice on what to do with out-of-scope survey submissions
Example
The Sight Loss and Vision PSP agreed to send ...
Stage 3. Categorise eligible submissions
Once out-of-scope submissions have been identified and removed, PSPs may allocate the remaining submissions into categories, also known as a taxonomy.
Stage 4. Form indicative questions
Submissions for the PSP may need to be rewritten or rephrased to clarify the precise uncertainty and to make it easier to check against the evidence base.
Rephrasing and combining the submissions
It is important to note that the questions written ...
Finalising the long list of indicative questions
This process can be time consuming and labour intensive.  ...
Stage 5. Verify the uncertainties
Each uncertainty submitted, including indicative uncertainties of combined submissions as described above, needs to be verified as a true uncertainty.
Identifying research recommendations
The searched systematic reviews and guidelines may contain research ...
Ongoing trials and studies
Some PSPs have considered the presence of ongoing trials ...
Preparing uncertainties for prioritisation and publication on the JLA website
To manage the data throughout the PSP process, it ...
Summary of data management steps
Stage 1: Download the survey data May be completed by ...
7. Interim priority setting
Ideas about how to present an interim priority setting survey
The number of questions to include
From experience, a maximum of around 60-70 indicative questions ...
Example
The Stillbirth PSP used the following criteria to help ...
Who should complete it?
Those asked to complete the interim prioritisation survey may ...
Approaches used
The main three methods used by a PSP to ask for interim priorities
Examples of interim priority setting
The Mesothelioma PSP listed 52 questions in the interim survey ranking them i order of importance.
Collating and scoring interim priorities
Completed interim prioritisation results should be grouped into categories and separate scores kept to ensure a fair weighting of the constituent groups.
8. Final priority setting
What are the principles of final priority setting in a JLA PSP?
Final priority setting method
Why the JLA supports an adapted Nominal Group Technique for PSPs choosing their top 10 priorities.
Who should take part
Those eligible to take part in a JLA priority ...
Preparing for the workshop
A summary of steps required in organising the meeting for the final workshop and the materials needed
Example
It is important for the Steering Group to think ...
Workshop observers
It is not unusual for observers to be invited ...
Workshop process on the day
What happens in a standard JLA final priority setting meeting?
Workshop best practice
The ground rules involved in a JLA PSP final workshop
Feedback from the final workshop participants
Evaluating the workshop helps JLA PSPs understand how the process has worked for them and to address any individual concerns.
The JLA priority setting workshop online
Due to the 2020 COVID-19 pandemic, the JLA has ...
Overview of approach to date
The programme for online workshops so far has very ...
Key considerations
When planning an online workshop, PSPs should work closely ...
Limitations
There will be limitations in any workshop, whether delivered ...
9. Dissemination and publishing of the Top 10
It is important for PSPs to publicise and disseminate the results of their priority setting exercise to reach potential funders and researchers.
Example
The Coeliac Disease PSP Top 10 announcement included personal ...
JLA reporting requirements
A key principle of the JLA is transparency of ...
10. Taking priorities to research funders
How to disseminate priorities to researchers and research funders. What extra work is needed?
Example
After the Cystic Fibrosis PSP agreed its Top 10, ...
Finding appropriate research funders
Funders of research with the appropriate interests in addressing treatment uncertainties can be found in both the public and the charitable sector.
Communicating with appropriate researchers
Ideas for searching for researchers or their networks
Thinking about communicating your PSP priorities to the NIHR
PSPs have benefitted from discussing potentially fundable research priorities with the NIHR.
11. Follow up
After the final workshop, you can provide feedback to the JLA in a short survey. Your long term involvement in evaluating the impact of a PSP is important.
Example
An ‘After the Top 10 – bringing community priorities ...
12. Toolbox of key PSP documents
Link to documents which provide more useful information and examples of work done by previous PSPs.
News and Publications
The latest news from our PSPs, collaborations between patients, carers and clinicians to prioritise health research questions.
JLA articles and publications
Articles published by the James Lind Alliance
PSP articles and publications
Articles published by the James Lind Alliance about Priority Setting Partnerships
PSP final reports
This page provides links to final reports that have ...
Contact us
Contact details for the James Lind Alliance.
Cookie policy
Information on the cookie policies of the James Lind Alliance.
Sitemap
The structure of the James Lind Alliance website
Copyright
All materials written for this website by the JLA ...
Making a difference
How JLA PSPs are making a difference to research
Working with the priorities
Many people do more work with PSP priorities to explore them even further
Reporting on results and impact
What have JLA PSPs done to track the response to their research priorities?
Funded Research
The list below shows some of the ways ...
Current surveys
These are surveys currently available from James Lind Alliance Priority Setting Partnerships for patients, carers and health professionals to take part in
The JLA Lab
The JLA Lab is a safe exploratory space where new ideas and methods can be developed and tested, away from JLA PSP activity.
Why the JLA Lab?
 
Lab Activity 1 - Development of online priority setting workshop
The Covid-19 pandemic required the JLA to rapidly develop ...
Lab Activity 2 - Developing JLA methods for priority setting in Lower and Middle Income Countries
A JLA Priority Setting Partnership (PSP) is working to ...
Lab Activity 3 - Alternative funding sources for priority setting activity
The JLA has been approached on a number of ...
Inflammatory Bowel Disease Research Priorities Project (Australia) (priority setting in association with the JLA)
 
Top 10 priorities
 
Lab Activity 4 - Priority setting for a local community
JLA PSPs typically focus on setting priorities in specific ...
Lab Activity 5 - Updating previous PSP priorities
The JLA is often asked how long JLA PSP ...