Priority 3 from the Palliative and end of life care PSP

UNCERTAINTY:  What are the benefits of Advance Care Planning and other approaches to listening to and incorporating patients’ preferences? Who should implement this and when?  (JLA PSP Priority 3)
Overall ranking 3
JLA question ID 0026/3

Houben CH, Spruit MA, Groenen MT, Wouters EF, Janssen DJ. Efficacy of advance care planning: a systematic review and meta?analysis. Journal of the American Medical Directors Association.2014;15(7):477?489 PMID: 24598477

Houttekier D, Cohen J, Cools F, Deliens L. Advance care planning for end-of-life care (Protocol). Cochrane Database of Systematic Reviews 2012, Issue 2. Art. No.: CD009618. DOI: 10.1002/14651858.CD009618.

Ongoing trial: A randomised control trial for Advanced Care Planning plus Symptom Management and Support for patients with advanced progressive life-threatening health conditions who present to the Emergency Department at Prince of Wales Hospital

Health Research Classification System category  Generic
Extra information provided by this PSP
Original uncertainty examples Are outcomes better for relatives with advance care planning for patients?  ~  Does the timing of ACP have a differential impact on how and where a person is supported in the last weeks of life?  ~  Can ACP improve costs at the end of life (I think the evidence on improving patient satisfaction is already quite compelling)?
Submitted by Bereaved Carers x 5  ~  Professionals x 2  ~  Carers x 2
Outcomes to be measured Patient Satisfaction; health related quality of life; health related cost; change in symptoms or change in symptom management
PSP information
PSP unique ID 0026
PSP name Palliative and end of life care
Total number of uncertainties identified by this PSP. 83  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 21 November 2014