Priority 10 from the Advanced Heart Failure PSP

UNCERTAINTY: What support would be most effective for carers of people with advanced heart failure for example support groups?   (JLA PSP Priority 10)
Overall ranking 10
JLA question ID 0098/10
Explanatory note

No significant evidence for people with advanced heart failure and their carers  


No systematic reviews on this topic in past five years  

Health Research Classification System category  Cardiovascular
Extra information provided by this PSP
Original uncertainty examples How do carers of people with heart failure feel during a hospital admission? ~ 
~ It's not so much the direct emotional impact, as the impact on spouse/partner/carer and if that is adverse how it can pull the patient down with it. ~ What support is available for Carers who work full time? ~ What do carers find most difficult about heart failure? ~ There seems to be no help on line for information for partners etc ~ What proportion of carers have been offered cater support ~ How are the carers needs different when looking after someone with heart failure
Submitted by  5 x patients,  6 x health professionals,  6 x carers 
PSP information
PSP unique ID 0098
PSP name Advanced Heart Failure
Total number of uncertainties identified by this PSP. 65 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 13 February 2019