Priority 22 from the Rare Musculoskeletal Diseases in Adulthood PSP
|UNCERTAINTY: Why are some health professionals unaware of rare metabolic bone disorders and how can this be improved? (JLA PSP Priority 22)
|JLA question ID
|Not available for this PSP
|Health Research Classification System category
|Extra information provided by this PSP
|Original uncertainty examples
|How can delays in diagnosis be reduced? ~ How can quick diagnosis be improved and quicker medical treatment be established? ~ Now have great doctors that answer my questions, but I was misdiagnosed for the first 40 years of my life. How can the medical community help those doctors who know nothing and pretend that they know it all and give wrong diagnoses? ~ Why is fibrous Dysplasia mistaken for bone cancer too often?
|Individual survey submissions categorised by Health or Social Care Professionals, Organisations representing people with rare musculoskeletal diseases, people with rare musculoskeletal diseases, relatives/carers/friends, Other. For full details of the type of submitter for each individual question, please see the spreadsheet of data held on the JLA website.
|PSP unique ID
|Rare Musculoskeletal Diseases in Adulthood
|Total number of uncertainties identified by this PSP.
|39 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
|Date of priority setting workshop
|18 June 2018