Cystic Fibrosis Research Priorities Refresh (priority setting in association with the JLA)

In January 2017 the JLA PSP in Cystic Fibrosis published its list of research priorities that had been identified and agreed by people with CF, family members and clinical care teams, globally.  A considerable amount of research has been done around those priorities.  Some examples of the research being done are in a You said, we did:How the Cystic Fibrosis priorities have been addressed since they were agreed in 2017 summary.

Whilst much progress has been made in addressing many of the research priorities there is still work to be done.  There have also been considerable changes in cystic fibrosis treatments and care since the original list of priorities was agreed.

This refresh exercise asked people living with Cystic Fibrosis, their carers and family members, researchers and clinicians which of the original priorities were still important to them and what new research priorities there should be.

See news: September 2022November 2021

This video shows the new Top 10 research priorities being read out:

The Cystic Fibrosis refreshed Top 10 was published in November 2022.

Key documents

Cystic Fibrosis JLA Research Priorities Refresh Protocol

Cystic Fibrosis JLA Research Priorities Refresh news story about Top 10 announcement

Cystic Fibrosis JLA Research Priorities Refresh FAQs about Top 10 announcement

Cystic Fibrosis JLA Research Priorities Refresh Question Verification Form

Cystic Fibrosis JLA Research Priorities Refresh Engagement Summary