Gathering uncertainties
Methods used (eg, survey, focus groups, interviews):
Online survey which asked respondents to identify which of the previous top twenty they thought were still priorities (asked to select their top three). The results were ranked and the most voted fifteen priorities were taken through to interim prioritisation (n = 15)
Respondents could then submit an additional two new questions.
| Number | % | |
| Total respondents (across all methods) | 1370 | 100 |
| Total patients and carers | 1008 | 74 |
| Total health and care professionals | 362 | 26 |
| Total number of original uncertainties submitted | 971 | 100 |
| Original uncertainties in scope | 821 | 85 |
| Original uncertainties out of scope | 150 | 15 |
Interim prioritisation
Methods used (eg, survey, focus groups, interviews:
data were analysed by two researchers to group uncertainties and categorise into indicative questions. These were sense checked by the management group, steering group and members of the multidisciplinary team.
The list of indicative questions went out as a second survey and included the top 15 from the original PSP.
| Number | % | |
| Total number of indicative questions (answered & unanswered) | 74* | 100 |
| Number of verified answered questions | 3 | 4 |
| Number of verified unanswered questions | 71 | 96 |
| Number of verified unanswered questions included in the interim prioritisation | 71 | |
| Total respondents (across all methods) | 1417 | 100 |
| Total patients and carers | 999 | 71 |
| Total health and care professionals | 418 | 29 |
| Number of questions taken to final workshop | 17 |
Final priority setting workshop
| Number | % | |
| Total participants | 22 | 100 |
| Total patients and carers | 11 | 50 |
| Total healthcare professionals | 11 | 50 |
Notes:
*This includes newly submitted questions and the top 15 from the previous PSP