Priority 15 from the Advanced Heart Failure PSP
|UNCERTAINTY: How do health professionals explain how advanced heart failure progresses and what that means for patients’ symptoms? (JLA PSP Priority 15)
|JLA question ID
No significant evidence for people with advanced heart failure
No definite evidence
|Health Research Classification System category
|Extra information provided by this PSP
|Original uncertainty examples
|How likely are my symptoms to get worse/better? ~ How can we better prognosticate in patients with advanced heart failure in light of new treatments and interventions. ~ Will my symptoms be an indicator that my condition is deteriorating? ~ How do we diagnose/predict end of life in HF? TO guide when to get palliative care support, reduce treatment burden, prepare relatives, etc. ~ What are the most reliable prognostic parameters? ~ Nature of symptom burden, particularly how it changes over the course of disease ~ What is the prevalence of symptoms What are the priority ones which have greatest impact ~ Are patients given enough information about what symptoms to expect such as leg swelling, breathlessness, cough? pts often present with a cough or leg swelling and they don't seem to know this is a symptom of their heart failure?
|7 x health professionals, 1 x patient
|PSP unique ID
|Advanced Heart Failure
|Total number of uncertainties identified by this PSP.
|65 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
|Date of priority setting workshop
|13 February 2019