Priority 8 from the Degenerative Cervical Myelopathy PSP

UNCERTAINTY: What is the socio-economic impact of DCM? (The financial impact of living with DCM to the sufferer, their supporters and society as a whole)  (JLA PSP Priority 8)
Overall ranking 8
JLA question ID 0097/8
Explanatory note Direct and indirect costs must be considered when evaluating the socio-economic impact of DCM. Direct costs refer to the expenditures made for medical services, including specialist consultations, diagnostic tests and hospitalization. In contrast, indirect costs are defined as the expenses incurred due to the cessation or reduction of work productivity. DCM has significant direct costs, as the mainstay treatment for patients with moderate to severe myelopathy is surgical decompression. DCM can also result in significant functional impairment and can impact a patient's ability to work, thus causing substantial indirect costs. No studies were identified that explored the socio-economic impact of DCM. 
Evidence

No systematic reviews, scoping reviews or guidelines identified 
Health Research Classification System category Neurological
Extra information provided by this PSP
Original uncertainty examples

How often does the disability caused by DCM result in loss of work? ~ What are the health economic implications of DCM? What are the health economic impact of surgical management of DCM?  ~ What's the cost per QALY gained? ~ What are the cost of rehabilitation in relation to DCM? ~ Societal burden.
Submitted by Spinal Surgeons x 13, Other healthcare professionals x 4, People with DCM and their supporters x 2
PSP information
PSP unique ID 0097
PSP name Degenerative Cervical Myelopathy
Total number of uncertainties identified by this PSP. 76  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 20 November 2019