Priority 7 from the Mesothelioma PSP
|UNCERTAINTY: For mesothelioma patients, what is the best follow-up strategy post-treatment, to identify and treat emerging side effects and other problems? (JLA PSP Priority 7)
|JLA question ID
|Not available for this PSP
|No systematic reviews or studies identified
|Health Research Classification System category
|Extra information provided by this PSP
|Original uncertainty examples
|We had no follow up appointment and the attitude from the Consultant was uncaring and callous ~ Why are follow up appointents after 2nd line chemo not realistic? Why do consultants suddenly give 3 month appointments, this is distressing for widows to cancel. Why can't they be honest? ~ we can't think beyond the date of the next assessment and the news it might bring. And the "scanxiety" in the run up to each assessment is vert stressful ~ It would be helpful if X rays and scans were done more regularly so as to see what progress has taken place and what treatment would be required.
|Bereaved x 2 ~ Carer ~ Patient
|Outcomes to be measured
|PSP unique ID
|Total number of uncertainties identified by this PSP.
|53 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
|Date of priority setting workshop
|16 December 2014