Cardiomyopathy is group of conditions that affect the structure of the heart and reduce its ability to pump blood around the body. It can affect anyone, at any age and is thought to occur in around 1 in 300 people in the UK.

The Cardiomyopathy PSP launched in November 2022 and will work with people affected by cardiomyopathy (patients (O+ years) and carers) and clinicians to identify and prioritise uncertainties about all aspects of the management of cardiomyopathy.

The PSP is being run by Cardiomyopathy UK and the results will be used to identify their focus for research and policy work over the next 3-5 years.

Key documents

Cardiomyopathy PSP protocol

Cardiomyopathy PSP Steering Group terms of reference