Bleeding Disorders Top 10

  1. What is the role and cost effectiveness of blood clotting tests that give immediate results at the bedside (point of care) in managing medical, surgical or obstetric haemorrhage?
  2. How can we balance the risk and benefit of antithrombotic (blood thinning) treatment for cardiovascular disease (including heart attacks and strokes) in patients with bleeding disorders?
  3. What is the best haematological approach to management of severe haemorrhage after delivery?
  4. How should heavy periods be managed in women with bleeding disorders?
  5. What is the relationship between immune thrombocytopenic purpura (ITP) and fatigue?
  6. What are the most effective treatments for acute and chronic pain in people with haemophilia?
  7. What are the benefits of psychological and psychosocial strategies for support of individuals or families affected by bleeding disorders?
  8. What are the genetic and environmental factors that predispose people to immune thrombocytopenic purpura (ITP)?
  9. What is the best way to prevent or treat bleeds in people with bleeding disorders who have developed an inhibitor?
  10. In people with haemophilia, what is the best way to tell the difference between pain from acute bleeds, non-bleeding muscle/ligament injury and long term joint damage?

The remaining questions discussed at the workshop were (in no order of priority)

Document downloads

For full details of all of the questions identified by this PSP, please see the document below.