Inherited Retinal Diseases (IRD) are the leading cause of blindness in children and adults of working age, affecting around 1 in 3,000 people.
About the Vision Loss Priority Setting Partnership
The Vision Loss PSP launched in May 2023 and will work with people in Australia who are living with an Inherited Retinal Disease, guardians and family members of those living with an Inherited Retinal Disease, and health professionals involved in caring for individuals living with an Inherited Retinal Disease. The project aims to identify the priorities for researchers who are working to better diagnose, treat and manage Inherited Retinal Diseases.
The PSP is being run by the Behavioural Sciences Unit, affiliated with the University of New South Wales, Sydney.
The Vision Loss PSP initial survey opened in September 2023.