Priority 15 from the Learning Difficulties Scotland PSP

UNCERTAINTY: What effect does having a formal label or a diagnosis have on children and young people living with a learning difficulty and those involved in their care and the public? (JLA PSP Priority 15)
Overall ranking 15
JLA question ID 0070/15
Explanatory note Not available for this PSP

HH. Koester, S. Arthanat. (2017). Effect of diagnosis, body site and experience on text entry rate of individuals with physical disabilities: a systematic review. Disability and Rehabilitation, 13(3).

C. A. Melville, A. Oppewal, E. L. Schafer, E. Freiberger, M. Guerra-Balic, et al. . (2017). Definitions, measurement and prevalence of sedentary behaviour in adults with intellectual disabilities - A systematic review. Preventive Medicine, 97: 62-71. http

H. Galloway, E. Newman. (2017). Is there a difference between child self-ratings and parent proxy- ratings of the quality of life of children with a diagnosis of attention-deficit hyperactivity disorder (ADHD)? A systematic review of the literature. ADHD 

Health Research Classification System category Mental Health
Extra information provided by this PSP
Original uncertainty examples Why is a diagnosis / label important and what is the role of a diagnosis in obtaining support? ~ Can the criteria for being diagnosed be changed?  The threshold for being diagnosed.  What support is in place if a diagnosis is not given as you were 1 point short. ~ Does labelling a learning difficulty such as dyslexia have an impact on self esteem (ie if all the appropriate supports are in place does it matter whether or not the difficulty is given a name, which may help them to understand why they need the supports, or may make them feel stigmatised)
Submitted by Professionals x 15  ~  parents/carers x 7  ~  Adults who experienced learning difficulties as a child x 0  ~  child/young person x 0
PSP information
PSP unique ID 0070
PSP name Learning Difficulties (Scotland)
Total number of uncertainties identified by this PSP. 40  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 11 June 2018