Priority 4 from the Multiple Sclerosis PSP

UNCERTAINTY: How can people with multiple sclerosis be best supported to self manage their condition? (JLA PSP Priority 4)
Overall ranking 4
JLA question ID 0016/4
Explanatory note Existing relevant systematic reviews are not up-to-date

No evidence found

Systematic reviews that need extending or updating

de Jongh T, Gurol-Urganci I, Vodopivec-Jamsek V, Car J, Atun R. Mobile phone messaging for facilitating self-management of long-term illnesses. Cochrane Database of Systematic Reviews 2012, Issue 12. Art. No.: CD007459. DOI: 10.1002/14651858.CD007459.pub2.

Systematic reviews in preparation

Khan F, Amatya B, Kesselring J. Telerehabilitation for persons with multiple sclerosis (Protocol). Cochrane Database of Systematic Reviews 2013, Issue 5. Art. No.: CD010508. DOI: 10.1002/14651858.CD010508.

Warner G, Killian L, Doble S, McKenzie JE, Versnel J, Packer T. Community-based self-management programs for improving participation in life activities in older adults with chronic conditions (Protocol). Cochrane Database of Systematic Reviews 2012, Issue 9. Art. No.: CD010097. DOI: 10.1002/14651858.CD010097.

Coulter A, Entwistle VA, Eccles A, Ryan S, Shepperd S, Perera R. Personalised care planning for adults with chronic or long-term health conditions (Protocol). Cochrane Database of Systematic Reviews 2013, Issue 5. Art. No.: CD010523. DOI: 10.1002/14651858.CD010523.

Carson KV, Labiszewski NA, Brinn MP, Esterman AJ, Peters M, Wood-Baker R, Smith BJ. Consumer guidelines for chronic disease management (Protocol). Cochrane Database of Systematic Reviews 2012, Issue 9. Art. No.: CD010096. DOI: 10.1002/14651858.CD010096.

Ongoing controlled trials

Examining the effects of a Telehealth self-management intervention in Multiple Sclerosis NCT01572714 Mindfulness Based Stress Reduction in Multiple Sclerosis (MS) NCT01419301

Health Research Classification System category Neurological
Extra information provided by this PSP
Original uncertainty examples No examples provided.  This is an indicative uncertainty and several submissions were merged to form this one. 
Submitted by 4 patients ~ 1 carer ~ 5 clinicians
Outcomes to be measured Management and or change of multiple sclerosis symptoms; adverse effects or complications; acceptability to patients or carers; time to return to work or normal activity; time in hospital and or needing health or social care services; health related quality of life; and costs.
PSP information
PSP unique ID 0016
PSP name Multiple Sclerosis
Total number of uncertainties identified by this PSP. 82  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop July 2013