Priority 4 from the Multiple Sclerosis PSP
|UNCERTAINTY: How can people with multiple sclerosis be best supported to self manage their condition? (JLA PSP Priority 4)|
|JLA question ID||0016/4|
|Explanatory note||Existing relevant systematic reviews are not up-to-date|
No evidence found
|Systematic reviews that need extending or updating||
de Jongh T, Gurol-Urganci I, Vodopivec-Jamsek V, Car J, Atun R. Mobile phone messaging for facilitating self-management of long-term illnesses. Cochrane Database of Systematic Reviews 2012, Issue 12. Art. No.: CD007459. DOI: 10.1002/14651858.CD007459.pub2.
|Systematic reviews in preparation||
Khan F, Amatya B, Kesselring J. Telerehabilitation for persons with multiple sclerosis (Protocol). Cochrane Database of Systematic Reviews 2013, Issue 5. Art. No.: CD010508. DOI: 10.1002/14651858.CD010508.
Warner G, Killian L, Doble S, McKenzie JE, Versnel J, Packer T. Community-based self-management programs for improving participation in life activities in older adults with chronic conditions (Protocol). Cochrane Database of Systematic Reviews 2012, Issue 9. Art. No.: CD010097. DOI: 10.1002/14651858.CD010097.
Coulter A, Entwistle VA, Eccles A, Ryan S, Shepperd S, Perera R. Personalised care planning for adults with chronic or long-term health conditions (Protocol). Cochrane Database of Systematic Reviews 2013, Issue 5. Art. No.: CD010523. DOI: 10.1002/14651858.CD010523.
Carson KV, Labiszewski NA, Brinn MP, Esterman AJ, Peters M, Wood-Baker R, Smith BJ. Consumer guidelines for chronic disease management (Protocol). Cochrane Database of Systematic Reviews 2012, Issue 9. Art. No.: CD010096. DOI: 10.1002/14651858.CD010096.
|Ongoing controlled trials||
Examining the effects of a Telehealth self-management intervention in Multiple Sclerosis NCT01572714 Mindfulness Based Stress Reduction in Multiple Sclerosis (MS) NCT01419301
|Health Research Classification System category||Neurological|
|Extra information provided by this PSP|
|Original uncertainty examples||No examples provided. This is an indicative uncertainty and several submissions were merged to form this one.|
|Submitted by||4 patients ~ 1 carer ~ 5 clinicians|
|Outcomes to be measured||Management and or change of multiple sclerosis symptoms; adverse effects or complications; acceptability to patients or carers; time to return to work or normal activity; time in hospital and or needing health or social care services; health related quality of life; and costs.|
|PSP unique ID||0016|
|PSP name||Multiple Sclerosis|
|Total number of uncertainties identified by this PSP.||82 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)|
|Date of priority setting workshop||July 2013|