Lab Activity 5 - Updating previous PSP priorities
The JLA is often asked how long JLA PSP priorities remain relevant and how and when they should be updated. The answer is likely to be specific to each PSP. It may depend on the extent to which research has addressed the priorities since the PSP finished, or whether the health and care landscape has changed enough for patients, carers and clinicians to have new priorities.
The JLA has yet to determine a single method for updating PSPs. Any update exercise associated with the JLA would need to ensure JLA principles are maintained.
The Cystic Fibrosis PSP is the first PSP to test a method of refreshing the community’s priorities, almost five years after the original Top 10 was agreed. There has been considerable change in Cystic Fibrosis treatments in that time, as well as a considerable amount of research done against the original priorities. One of the key principles of the JLA method is that patients, carers and clinicians are involved in the setting of priorities for research. The Cystic Fibrosis Refresh methodology will also include the scientific research community as we recognise the value of their expert contributions to the priority setting but also the importance of gaining their buy-in to the delivery of the identified research priorities for the CF community
The Emergency Medicine PSP is also now working on updating the original priorities which were published in January 2017, in the Emergency Medicine Refresh priority setting project.
We will report back on the methods and outcomes to help inform future activity.