Autosomal Dominant Polycystic Kidney Disease (priority setting in association with the JLA)

Autosomal Dominant Polycystic Kidney Disease (ADPKD) is the world’s most common inherited life-threatening condition, in which fluid-filled cysts develop in both kidneys and result in progressive renal failure.  The partnership will prioritise the questions that patients, carers and health professionals agree are the most important for research to address.

The priority setting work is being funded and run by the Polycystic Kidney Disease Charity.

The ADPKD project Top 10 was published in May 2021.

Key documents

Autosomal Dominant Polycystic Kidney Disease final report

Autosomal Dominant Polycystic Kidney Disease protocol