Priority 1 from the Paediatric Hospital Care (Canada) PSP

UNCERTAINTY: What best practices and/or care models exist for inpatient care for children and youth with medical complexity on the general paediatric inpatient unit?  (JLA PSP Priority 1)
Overall ranking 1
JLA question ID 0114/01
Explanatory note Children with medical complexity have unique needs, as such it is important to best practices for their care on the general paediatric inpatient unit 

Bradshaw, S., Bem, D., Shaw, K., Taylor, B., Chiswell, C., Salama, M., ... & Cummins, C. (2019). Improving health, wellbeing and parenting skills in parents of children with special health care needs and medical complexity–a scoping review. BMC pediatrics, 19(1), 1-11.

Health Research Classification System category Generic health relevance
Extra information provided by this PSP
Original uncertainty examples For children with medical complexity (CMC), they should have an automatic pharmacist and dietician who reviews their care ~ For CMC, I would like to know if we can get feedback from parents on how we could have prevented or shorted the hospitalization stay; how we could have improved the stay (Patient/family oriented outcome measures) ~ How can weekend care be improved for medically complex children? ~ Does avoiding transfer out of NICU or PICU of medically complex children prevent medical errors or lead to better patient care?
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PSP information
PSP unique ID 0114
PSP name Paediatric Hospital Care (Canada)
Total number of uncertainties identified by this PSP. 75  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 18th and 19th August 2021