Priority 13 from the Liver Glycogen Storage Disease (International) PSP
|UNCERTAINTY: How can we improve the quality of life of patients with liver Glycogen Storage Disease? (JLA PSP Priority 13)|
|JLA question ID||0090/13|
The final workshop participants decided that quality of life is an important aspect that should be addressed in each of the top priorities for liver GSD.
For details of the evidence checked, please see the spreadsheet held on the JLA website.
|Health Research Classification System category||Metabolic and endocrine|
|Extra information provided by this PSP|
|Original uncertainty examples||How can we increase the quality of life of GSD I patients? ~ Quality of life impact on patients and their caregivers? Adult management type 1a to improve quality of life.|
|Submitted by||Patient, carer and healthcare professionals|
|PSP unique ID||0090|
|PSP name||International Glycogen Storage Disease PSP|
|Total number of uncertainties identified by this PSP||72 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)|
|Date of priority setting workshop||24 May 2019|