Priority 2 from the Palliative and end of life care PSP

UNCERTAINTY:  How can access to palliative care services be improved for everyone regardless of where they are in the UK?   (JLA PSP Priority 2)
Overall ranking 2
JLA question ID 0026/2
Evidence

Evaluation of an initial assessment palliative care clinic for new clients referred to palliative care by retrospective case note audit http://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=361983  

A Randomised Control Trial for Advance Care Planning and Symptom Management for patients identified in the emergency department and followed up at home http://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=366429                  

A randomised control trial for Advanced Care Planning plus Symptom Management and Support for patients with advanced progressive life-threatening health conditions who present to the Emergency Department at Prince of Wales Hospital http://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=366429
Health Research Classification System category  Generic
Extra information provided by this PSP
Original uncertainty examples How do you get through the system?  ~  Why is there inadequate access to therapy services when their aim is to improve or at least maximise quality of life?  ~  Can we not have a self referral system to run alongside health care professional referrals?
Submitted by Bereaved Carers x 1 ~ Member of the public x 1  ~  Professionals x 8  ~  Carers x 3
Outcomes to be measured Patient Satisfaction; health related quality of life; health related cost; benefits of advanced care planning
PSP information
PSP unique ID 0026
PSP name Palliative and end of life care
Total number of uncertainties identified by this PSP. 83  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 21 November 2014