Priority 2 from the Palliative and end of life care PSP

UNCERTAINTY:  How can access to palliative care services be improved for everyone regardless of where they are in the UK?   (JLA PSP Priority 2)
Overall ranking 2
JLA question ID 0026/2
Evidence

Evaluation of an initial assessment palliative care clinic for new clients referred to palliative care by retrospective case note audit http://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=361983  

The effectiveness of the National Quality Improvement Program Palliative Care on the number of patients that die at the preferred place, the patients? and family?s experienced control regarding end-of-life care, the patients? and family?s experienced coordination of end-of-life care, the patients? and family?s experienced concordant care with their needs, preferences and values, and the number of patients and families that receive care for their needs in the physical, psychosocial, and spiritual domains http://www.trialregister.nl/trialreg/admin/rctview.asp?TC=4085  

A Randomised Control Trial for Advance Care Planning and Symptom Management for patients identified in the emergency department and followed up at home http://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=366429                  

A randomised control trial for Advanced Care Planning plus Symptom Management and Support for patients with advanced progressive life-threatening health conditions who present to the Emergency Department at Prince of Wales Hospital http://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=366429
Health Research Classification System category  Generic
Extra information provided by this PSP
Original uncertainty examples How do you get through the system?  ~  Why is there inadequate access to therapy services when their aim is to improve or at least maximise quality of life?  ~  Can we not have a self referral system to run alongside health care professional referrals?
Submitted by Bereaved Carers x 1 ~ Member of the public x 1  ~  Professionals x 8  ~  Carers x 3
Outcomes to be measured Patient Satisfaction; health related quality of life; health related cost; benefits of advanced care planning
PSP information
PSP unique ID 0026
PSP name Palliative and end of life care
Total number of uncertainties identified by this PSP. 83  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 21 November 2014