Priority 2 from the Palliative and end of life care PSP

UNCERTAINTY:  How can access to palliative care services be improved for everyone regardless of where they are in the UK?   (JLA PSP Priority 2)
Overall ranking 2
JLA question ID 0026/2

Evaluation of an initial assessment palliative care clinic for new clients referred to palliative care by retrospective case note audit  

A Randomised Control Trial for Advance Care Planning and Symptom Management for patients identified in the emergency department and followed up at home                  

A randomised control trial for Advanced Care Planning plus Symptom Management and Support for patients with advanced progressive life-threatening health conditions who present to the Emergency Department at Prince of Wales Hospital

Health Research Classification System category  Generic
Extra information provided by this PSP
Original uncertainty examples How do you get through the system?  ~  Why is there inadequate access to therapy services when their aim is to improve or at least maximise quality of life?  ~  Can we not have a self referral system to run alongside health care professional referrals?
Submitted by Bereaved Carers x 1 ~ Member of the public x 1  ~  Professionals x 8  ~  Carers x 3
Outcomes to be measured Patient Satisfaction; health related quality of life; health related cost; benefits of advanced care planning
PSP information
PSP unique ID 0026
PSP name Palliative and end of life care
Total number of uncertainties identified by this PSP. 83  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 21 November 2014