Priority 5 from the Liver Glycogen Storage Disease (International) PSP
|UNCERTAINTY: What is the best way to start dietary treatment, finding the optimal doses, and to administer the diet for patients with liver Glycogen Storage Disease? (JLA PSP Priority 5)
|JLA question ID
Dietary treatment for patients with liver GSD can be initiated via several options, depending on internal and external factors of the individual patient.
For details of the evidence checked, please see the spreadsheet held on the JLA website.
|Health Research Classification System category
|Metabolic and endocrine
|Extra information provided by this PSP
|Original uncertainty examples
|How frequently to recommend an in-hospital stay for adjustment of diet and cornstarch? ~ How best to administer cornstarch, timing with respect to meals? ~ Can the use of the gastric tube be forever?
|Patient, carer and healthcare professionals
|PSP unique ID
|International Glycogen Storage Disease PSP
|Total number of uncertainties identified by this PSP
|72 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
|Date of priority setting workshop
|24 May 2019