Priority 2 from the Paediatric Hospital Care PSP

UNCERTAINTY: What methods of communication are most effective between patients, caregivers and health care providers on a general paediatric inpatient unit? (JLA PSP Priority 2)
Overall ranking 2
JLA question ID 0114/02
Explanatory note A multi-disciplinary team is reponsible for care of children within the general paediatric inpatient unit, as such it is important to identify the best ways for these healthcare professionals to communicate effectively with children and their families

Oja, C., Edbom, T., Nager, A., Månsson, J., & Ekblad, S. (2020). Informing children of their parent's illness: A systematic review of intervention programs with child outcomes in all health care settings globally from inception to 2019. PloS one, 15(5), e0233696.
Goyal, A. A., Tur, K., Mann, J., Townsend, W., Flanders, S. A., & Chopra, V. (2017). Do Bedside Visual Tools Improve Patient and Caregiver Satisfaction? A Systematic Review of the Literature. Journal of hospital medicine, 12(11), 930-936.
Communication in the support to the ill child (reference not found)

Health Research Classification System category  Generic health relevance
Extra information provided by this PSP
Original uncertainty examples Every interaction was very quick. The information would be relayed so quickly that I couldn't think of a response until after the physician/ nurse left the room. ~  Why do i only see my child's doctor randomly when I sit by their bedside? It is hard to be there all the time.~ It would be great to do research that streamlines communication, or perhaps, enhance communication by being transparent with patients and families as to why you need to here the same information over and over, and how the information is used to inform care. ~  Would like to be told in advance about the risks of Botox with green tendon transfer Also No one could explain why hair on the arm under the cast grew so long ~ How can we decrease hospital duration in medically complex children by coordinating care by multiple specialists in a more timely manner?
Submitted by 12 x friend/family, 6 x parent/caregiver, 5 x physcian, 3 x nurse
PSP information
PSP unique ID 0114
PSP name Paediatric Hospital Care (Canada)
Total number of uncertainties identified by this PSP. 75  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 18th and 19th August 2021