Priority 18 from the Palliative and end of life care PSP

UNCERTAINTY:  What are the benefits of, and best approaches to, providing palliative care in care homes, including symptom relief, emotional and spiritual support for patients, carers and families?  (JLA PSP Priority 18)
Overall ranking 18
JLA question ID 0026/18

Ongoing trial:  The effect of different models of facilitation when implementing the Gold Standards Framework in Care Homes (GSFCH): a cluster randomised control trial ISRCTN76029577

Health Research Classification System category  Generic
Extra information provided by this PSP
Original uncertainty examples That care homes have more knowledge of how to cope with the ever changing condition.  ~  Why do older people nearing the end of their life get discharged from hospital to rehabilatation centres, care homes or carers at home when all they really need is Hospice care at home 24 hours?  ~  Care and support needs to be in one department to manage all the care, equipment and support patient and families will need.
Submitted by Bereaved Carers x 5  ~  Carers x 1  ~  Patients x 2  ~  Professionals x 3  ~  Members of the Public x 3
Outcomes to be measured Health related quality of life, good death, Change in symptoms or change in management of symptoms, adverse effects or complications
PSP information
PSP unique ID 0026
PSP name Palliative and end of life care
Total number of uncertainties identified by this PSP. 83  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 21 November 2014