Prioritising Retention in Randomised Trials (priority setting in association with the JLA)
This project, established in late 2017, aimed to collect information from people across the UK and Ireland who were, or had been, involved directly, in designing, running, analysing, or taking part and/or staying involved in randomised trials (see below for an explanation of what trials are). The aim was to help improve what we know about the best ways to encourage people to stay involved in clinical trials.
Most trials collect data from participants as part of their continued involvement in the trial and will help to answer whether one treatment is better than another. This is known as “follow-up”. Some trials collect data long after the treatments being tested have been given.
Retention refers to the number of people staying involved or “followed up” in trials and whether they complete or provide all the measurements the trial team needs. For example, the trial may ask participants to return for a study visit or return a questionnaire. This is important because if people join a trial but cannot be followed up, the trial results may be inaccurate and misleading which wastes vital research time and money.
The Top 10 priorities were published in March 2019.