Priority 14 from the Rare Musculoskeletal Diseases in Adulthood PSP

UNCERTAINTY: How does care and support for adults need to differ from care and support for children? What are the best ways to support people through that change? (JLA PSP Priority 14)
Overall ranking 14
JLA question ID 0076/14
Explanatory note Not available for this PSP

None identified

Health Research Classification System category Musculoskeletal
Extra information provided by this PSP
Original uncertainty examples Should you stop seeing a dr. when you become an adult? ~ Is there any handover process in place for for teens to adult care? ~ More support needs to be given at diagnosis and throughout? ~ Why is the treatment & care within the NHS with an OI adult different from what a child receives? 
Submitted by Individual survey submissions categorised by Health or Social Care Professionals, Organisations representing people with rare musculoskeletal diseases, people with rare musculoskeletal diseases, relatives/carers/friends, Other.  For full details of the type of submitter for each individual question, please see the spreadsheet of data held on the JLA website.
PSP information
PSP unique ID 0076
PSP name Rare Musculoskeletal Diseases in Adulthood
Total number of uncertainties identified by this PSP. 39  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 18 June 2018