Priority 19 (joint) from the Liver Glycogen Storage Disease (International) PSP

UNCERTAINTY: What are the consequences of consumption of alcohol and drugs for patients with liver Glycogen Storage Disease?  (JLA PSP Priority 19(Joint))
Overall ranking 19 (Joint)
JLA question ID 0090/19 (Joint) 
Explanatory note

Consumption of alcohol and drugs is hazardoes for patients with liver GSD for multiple reasons. However, the question illustrates especially for patients and parents a gap of knowledge to which extent this applies. 


For details of the evidence checked, please see the spreadsheet held on the JLA website.

Health Research Classification System category Metabolic and endocrine 
Extra information provided by this PSP
Original uncertainty examples Is there a point when liver glycogen storage disease patients are safe to drink alcohol?  ~ What effect does recreational Marijuana use have on the GSD population 
Submitted by Patient, carer and healthcare professionals 
PSP information
PSP unique ID 0090
PSP name International Glycogen Storage Disease PSP
Total number of uncertainties identified by this PSP 72  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 24 May 2019