Priority 21 from the Learning Difficulties Scotland PSP

UNCERTAINTY: How can we understand what it is like to live with learning difficulties from a child or young person's perspective? (JLA PSP Priority 21)
Overall ranking 21
JLA question ID 0070/21
Explanatory note Not available for this PSP

Domeij, H. Fahlstrom, G. Bertilsson, G., et al. (2018). Experiences of living with fetal alcohol spectrum disorders: a systematic review and synthesis of qualitative data. Developmental Medicine & Child Neurology. DOI: 10.1111/dmcn.13696

MA. Rashid, S. Lovick, NR. Llanwarne. (2017). Medication-taking experiences in attention deficit hyperactivity disorder: a systematic review. Family Practice. 1-9.

S. Lindsay. (2016). Child and youth experiences and perspectives of cerebral palsy: a qualitative systematic review. Child: Care, Health and Development. 42(2): 153-175. doi:10.1111/cch.12309

Health Research Classification System category Mental Health
Extra information provided by this PSP
Original uncertainty examples Do young people feel attending meetings to discuss their additional support and education planning is helpful? Do they have any other suggestions of how they could be actively involved and consulted in the process without having to be in a meeting? ~ How can people with complex needs effect more change with regards to any aspect of their social, health or educational life? ~ Are life skills more important to learn than curriculum based learning?
Submitted by Professionals x 4  ~  parents/carers x 2  ~  Adults who experienced learning difficulties as a child x 0  ~  child/young person x 0 ~ Unknown x 2
PSP information
PSP unique ID 0070
PSP name Learning Difficulties (Scotland)
Total number of uncertainties identified by this PSP. 40  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 11 June 2018