Priority 9 from the Advanced Heart Failure PSP

UNCERTAINTY: How can advanced heart failure patients and professionals be helped to communicate about patients’ symptoms that are difficult to express such as anxiety and low mood? (JLA PSP Priority 9)
Overall ranking 9
JLA question ID 0098/09
Explanatory note

No significant evidence for people with advanced heart failure 


1. Eur J Cardiovasc Nurs. 2015 Dec;14(6):525-35. doi: 10.1177/1474515114547648. Epub 2014 Aug 19.The importance of interactions between patients and healthcare professionals for heart failure self-care: A systematic review of qualitative research into patient perspectives.Currie K1, Strachan PH2, Spaling M3, Harkness K2, Barber D1, Clark AM4.

2. Int J Nurs Stud. 2012 Dec;49(12):1582-97. doi: 10.1016/j.ijnurstu.2012.05.010. Epub 2012 Jun 19. Understanding help-seeking decisions in people with heart failure: a qualitative systematic review. Clark AM1, Savard LA, Spaling MA, Heath S, Duncan AS, Spiers JA.

Health Research Classification System category  Cardiovascular
Extra information provided by this PSP
Original uncertainty examples Who do I contact if the anxiety is getting too much ~ Sometimes I do find it difficult to express my feelings and concerns the impact of the condition has on me. I find myself sometimes not mentioning when I'm not feeling to well or get pain as I feel with the condition not been visable I feel like it's not going to be listened to
Submitted by  3 x patients 
PSP information
PSP unique ID 0098
PSP name Advanced Heart Failure
Total number of uncertainties identified by this PSP. 65  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 13 February 2019