Congenital Diaphragmatic Hernia (Australia)
The Congenital Diaphragmatic Hernia (CHD) Priority Setting Partnership will identify questions and priorities of people with a lived experience of CDH, their caregivers, and healthcare providers.
CDH is a life-threatening condition caused by a baby’s diaphragm not forming properly during pregnancy, meaning abdominal organs can move into the space where the lungs and heart are.
This life-threatening condition affects 1 in every 2,500 babies and is one of the more common congenital birth defects. Australia’s current survival rate for babies diagnosed before birth is 50%.
There is currently no known cause nor cure for CDH.
The initial question gathering survey opened in November 2022.
Congenital Diaphragmatic Hernia (Australia) PSP Protocol
Congenital Diaphragmatic Hernia (Australia) PSP Terms of Reference