Congenital Diaphragmatic Hernia (Australia)
The Congenital Diaphragmatic Hernia (CHD) Priority Setting Partnership will identify questions and priorities of people with a lived experience of CDH, their caregivers, and healthcare providers.
CDH is a life-threatening condition caused by a baby’s diaphragm not forming properly during pregnancy, meaning abdominal organs can move into the space where the lungs and heart are.
This life-threatening condition affects 1 in every 2,500 babies and is one of the more common congenital birth defects. Australia’s current survival rate for babies diagnosed before birth is 50%.
There is currently no known cause nor cure for CDH.
The initial question gathering survey opened in November 2022.