Congenital Diaphragmatic Hernia (Australia)

Congenital Diaphragmatic Hernia (CDH) is a life-threatening condition caused by a baby’s diaphragm not forming properly during pregnancy, meaning abdominal organs can move into the space where the lungs and heart are.

This life-threatening condition affects 1 in every 2,500 babies and is one of the more common congenital birth defects. Australia’s current survival rate for babies diagnosed before birth is 50%.

There is currently no known cause nor cure for CDH.

The Congenital Diaphragmatic Hernia PSP Top 10 was published in June 2024.

Key documents

Congenital Diaphragmatic Hernia (Australia) PSP protocol

Congenital Diaphragmatic Hernia (Australia) PSP Steering Group terms of reference

Congenital Diaphragmatic Hernia (Australia) PSP question verification form