Spinal Cord Injury (Sweden)

Acquiring a spinal cord injury (SCI) changes one’s life conditions from one day to the next.  During rehabilitation, you learn to manage for example wheelchair skills, dressing, bladder, bowel and much more.

After rehabilitation you are faced with a new and different everyday life with family, friends, work and leisure and you begin to understand how much spinal cord injury affects your life. Many new questions are raised about the future, but you might also get insights into what is important for you, what needs you have and what areas are important to focus on in order to live a good life with a spinal cord injury.

The Spinal Cord Injury (SCI) in Sweden PSP aimed to identify uncertainties, needs and what is important to persons living with an acquired SCI, according to themselves, their relatives and carers, and health professionals working with people with SCI in Sweden.

The method for this PSP was adjusted to include five initial workshops, in addition to the two surveys and the priority setting workshop at the end of the PSP.  In doing this the team aimed to get a wide array of both uncertainties and certainties.

The results will be used to direct research and develop educational activities.

The PSP invited the following organisations and individuals to take part in the PSP:

  • People with lived experience (PLEx)
  • People related to PLEx
  • Personal assistants or carers of PLEx
  • Health professionals working with PLEx
  • RG Active Rehabilitation (RG Aktiv Rehabilitering)
  • The Swedish Association for Survivors of Polio, Accident and Injury (Personskadeförbundet RTP).

The Spinal Cord Injury (Sweden) PSP Top 10 was published in October 2022.

Key documents

Spinal Cord Injury PSP (Sweden) protocol

Spinal Cord Injury PSP (Sweden) question verification form

Spinal  Cord Injury PSP (Sweden) engagement summary