Spinal Cord Injury (Sweden) PSP Engagement Summary

Contents

Published: 05 April 2023

Version: 1

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Gathering uncertainties

Methods used (e.g. survey, focus groups, interviews): Online survey

  Number %
Total respondents (across all methods) 243 100
Total patients and carers  162 66.6
Total health and care professionals 81 33.3
Total number of original uncertainties submitted 431 100
Original uncertainties in scope 303 70
Original uncertainties out of scope 128 30

 

Interim prioritisation

Methods used (eg survey, focus groups, interviews): Online survey

  Number %
Total number of indicative questions (answered & unanswered) 57 100
Number of verified answered questions 1 1.7
Number of verified unanswered questions 56 98.3
Number of verified unanswered questions included in the interim prioritisation 56  
Total respondents (across all methods) 272 100
Total patients and carers 189 69.5
Total health and care professionals 83 30.5
Number of questions taken to final workshop 24  

 

Final priority setting workshop

  Number %
Total participants 23 100
Total patients and carers 11 (+3) 48 (65)
Total health and care professionals 12 52

Notes: 

We have chosen to categorise as such:
patients and carers = persons living with spinal cord injury and their close ones;
health and care professionals = professionals, including personal care attendants.

Three professionals doubled as patients or carers at the final priority setting workshop.