Priority 13 from the Advanced Heart Failure PSP

UNCERTAINTY:How can healthcare professionals manage the expectations of people with advanced heart failure? For example, uncertainty  (JLA PSP Priority 13)
Overall ranking 13
JLA question ID 0098/13
Explanatory note

No significant evidence for people with advanced heart failure 


No systematic reviews on this topic in past five years 

Health Research Classification System category  Cardiovascular
Extra information provided by this PSP
Original uncertainty examples Why does everything take so long? Why do you think its okay to leave people in limbo without clear explanations and/or expectations so they can plan their lives? Who treats the person as a whole and not the element of the condition or disease they're responsible for? ~ How to balance the expectation that 'there is always something else that can be done' (ie in hospital) with planning for end of life care.
Submitted by  1 x patient, 1 x health professional 
PSP information
PSP unique ID 0098
PSP name Advanced Heart Failure
Total number of uncertainties identified by this PSP. 65  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 13 February 2019