Priority 13 from the Mitochondrial Disease PSP
|UNCERTAINTY: What can prevent mitochondrial disease from getting worse over time? (JLA PSP Priority 13)
|JLA question ID
|Health Research Classification System category
|Metabolic and Endocrine
|Extra information provided by this PSP
|Original uncertainty examples
|treatments to prevent progression/ 2nd eye involvement. ~ Progression as it's the most under researched ~ What is the role of exercise in preventing decline in vision in patients affected by vision loss with LHON? ~ What speeds up or slows down progression ~ Can adult onset MiTo disease (after some progression) improve and symptoms disappear with good management and care? ~ What can We do to slow progression ~ Anything to limit the condition or improve any longevity would be of interest ~ Also how it has progressed and whether anything can be done to slow progression.
|14 x Carers, 7 x Healthcare Professionals, 7 x Patients
|PSP unique ID
|Total number of uncertainties identified by this PSP.
|42 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
|Date of priority setting workshop
|19 January 2020