Priority 4 from the Rare Musculoskeletal Diseases in Adulthood PSP

UNCERTAINTY: What can be done to prevent rare metabolic bone disorders in the first place, or to stop them from getting worse? (JLA PSP Priority 4)
Overall ranking 4
JLA question ID 0076/4
Explanatory note Not available for this PSP
Evidence

None identified
Health Research Classification System category Musculoskeletal
Extra information provided by this PSP
Original uncertainty examples Is there anything that can be done to prevent the disease? ~ Other than surgery can anything be done to slow down progressive kyphosis/scoliosis? ~ Help to prevent age related deterioration  
Submitted by Individual survey submissions categorised by Health or Social Care Professionals, Organisations representing people with rare musculoskeletal diseases, people with rare musculoskeletal diseases, relatives/carers/friends, Other.  For full details of the type of submitter for each individual question, please see the spreadsheet of data held on the JLA website.
PSP information
PSP unique ID 0076
PSP name Rare Musculoskeletal Diseases in Adulthood
Total number of uncertainties identified by this PSP. 39  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 18 June 2018