Juvenile Idiopathic Arthritis (Netherlands)
The Dutch Juvenile Idiopathic Arthritis (JIA) Priority Setting Partnership (PSP) was initiated by two JIA patient organisations (Jeugdreumavereniging Nederland and Youth-R-Well), the Dutch organisation for paediatric rheumatologists (Nederlandse Vereniging voor Kinderreumatologie, NVKR) and the Dutch organisation for other health professionals in paediatric rheumatology, such as physical therapists (Nederlandse Health Professionals Kinderreumatologie, NHPKR).
The PSP officially launched in October 2018. The survey in Dutch was launched in December 2018 and 278 people responded to that first survey, submitting a total of 506 questions. The PSP also gathered 81 questions from focus groups and 17 questions from reviewing JIA guidelines.
The Juvenile Idiopathic Arthritis (Netherlands) PSP Top 10 was published in February 2020.
Juvenile Idiopathic Arthritis PSP Engagement Summary
Juvenile Idiopathic Arthritis PSP Question Verification Form