Gathering uncertainties
Methods used (eg, survey, focus groups, interviews): survey (both online and hardcopy) (506 questions), focus groups (81 questions), guidelines (17 questions)
| Number | % | |
| Total respondents (across all methods) | 278 | 100 |
| Total patients | 141 | 50.7 |
| Total carers | 88 | 31.7 |
| Total health and care professionals | 49 | 17.6 |
| Total number of original uncertainties submitted | 604 | 100 |
| Original uncertainties in scope | 519 | 85.9 |
| Original uncertainties out of scope | 85 | 14.1 |
Interim prioritisation
Methods used (eg, survey, focus groups, interviews): survey (both online and hardcopy), focus groups (with children from 10-13 years)
| Number | % | |
| Total number of indicative questions (answered & unanswered) | 53 | 100 |
| Number of verified answered questions | 0 | 0 |
| Number of verified unanswered questions | 53 | 100 |
| Number of verified unanswered questions included in the interim prioritisation | 53 | |
| Total respondents (across all methods) | 303 | 100 |
| Total patients and carers | 261 | 86 |
| Total health and care professionals | 42 | 14 |
| Number of questions taken to final workshop | 21 |
Final priority setting workshop
| Number | % | |
| Total participants | 20 | 100 |
| Total patients and carers | 10 | 50 |
| Total health and care professionals | 10 | 50 |