Smell and Taste Disorders
The Smell & Taste Disorders Priority Setting Partnership (PSP) has its origins in the beginnings of Fifth Sense, the charity set up to support those with smell and taste disorders. The charity has been planning to do the PSP for a number of years and it formed one part of the development plan that was submitted to the National Lottery Community Fund in 2019. The fund provided the budget to support this project and finally enable it to happen.
A diverse group of stakeholders have come together to form this PSP to find out what matters to patients, carers and clinicians in the field of smell and taste disorders. Professor Carl Philpott, Professor of Rhinology and Olfactology at the University of East Anglia and Director of Research and Medical Affairs at Fifth Sense is the professional lead for the PSP Steering Group and is supported by clinicians across ENT, Neurology, Psychology and Primary Care, and patient and carer representatives from a range of conditions and causes.
The initial question gathering survey opened in February 2021.