Partners and support

The Mesothelioma Priority Setting Partnership (PSP) brought together organisations and individuals who represent the following groups:

  • people who have mesothelioma 
  • carers, relatives and friends of people who have or had mesothelioma
  • health and social care professionals with clinical experience of mesothelioma.

They played a vital role in the PSP by helping to promote the survey, and by getting involved in the priority setting.

“It is a privilege for Mesothelioma UK to be working with patients, the JLA team and the NIHR on the Mesothelioma PSP and we look forward to seeing this rigorous approach reach fruition. Research into the treatment and care of mesothelioma needs and deserves significant investment and hopefully that will follow once genuine research priorities have been identified. The survey is a great way to understand the issues that worry mesothelioma patients. As a group, we feel that our voice is unheard.”

Liz Darlison, Mesothelioma UK

Our partners

  • Asbestos in Schools
  • Asbestos Support West Midlands
  • Asbestos Victims Support Groups Forum UK
  • British Lung Foundation
  • British Thoracic Oncology Group
  • Cardiff University Institute of Cancer and Genetics, Velindre Cancer Centre
  • Cheshire Asbestos Victims Support Group
  • Clydeside Action on Asbestos
  • Cumbria Asbestos-Related Disease Support
  • Derbyshire Asbestos Support Team
  • Faculty of Health and Medical Sciences, University of Surrey
  • GRIST (Growing Recruitment in Interventional and Surgical Trials)
  • Mesothelioma Support Yorkshire
  • Mesothelioma UK
  • Mick Knighton Mesothelioma Research Fund
  • National Lung Cancer Forum for Nurses
  • Serena Chee, Respiratory Research Registrar, University Hospital Southampton
  • South Yorkshire Asbestos Victims Support Group
  • The June Hancock Mesothelioma Research Fund