Pernicious Anaemia Top 10
- Can a more reliable and accurate test be developed to diagnose Pernicious Anaemia?
- Does an individual’s need for B12 treatment change over time or with life circumstances? What factors might affect this day to day (e.g. stress and exercise) and over a lifespan (e.g. aging, menopause)?
- What are the safest and most effective ways to give B12 to people with Pernicious Anaemia, tablets, sprays or injections, or a combination? Can better ways be developed?
- Why do some health professionals fail to take Pernicious Anaemia seriously? How can this be addressed beyond improving awareness and knowledge of Pernicious Anaemia?
- If the frequency, dose and timing of B12 injections were tailored to the individual and their symptoms, would this improve the health of people with Pernicious Anaemia?
- Why do people with Pernicious Anaemia need B12 injections at different time intervals?
- Why do some people with Pernicious Anaemia still experience symptoms after treatment with B12?
- If people with Pernicious Anaemia do not receive B12 treatment according to their needs, does this cause harm or irreversible damage?
- What should be included in a long-term, comprehensive treatment and care plan for people with Pernicious Anaemia?
- Is Pernicious Anaemia linked to other health conditions, in particular autoimmune conditions or digestive problems? Is there a common cause?
The following questions were also discussed and put in order of priority at the workshop:
- Which follow-up tests should be used routinely for people with Pernicious Anaemia to monitor their health?
- What are the long-term effects of B12 treatment for people with Pernicious Anaemia?
- How does Pernicious Anaemia affect gut function? Do people with Pernicious Anaemia have difficulty absorbing nutrients in addition to B12?
- Should people with Pernicious Anaemia undergo regular testing for other conditions, because of an increased risk of stomach cancer or other autoimmune conditions?
- What are the best ways to treat the nerve damage caused by Pernicious Anaemia?
- Is it safe and effective for people with Pernicious Anaemia to self-inject B12? What are the potential benefits for the individual and the NHS?
For full details of all of the questions identified by this PSP, please see the document below.