Epilepsy (Canada)

Epilepsy is a brain disorder that affects 1 in 100 people worldwide and is characterized by repeated, unprovoked seizures. Epilepsy can develop at any point during the lifespan, and in most cases the cause is unknown. 1 in 3 people with epilepsy have seizures that cannot be controlled with medication and will require more innovative treatment options.

The Epilepsy Priority Setting Partnership (PSP) aimed to identify unanswered questions that exist related to the cause, diagnosis and treatment of epilepsy and seizures. This PSP was the first such initiative to address epilepsy in Canada, and we hope that the results of this PSP will re-shape the research agenda for epilepsy, giving a stronger voice to the patients, carers and clinicians who live and work with epilepsy every day.

The Epilepsy (Canada) Top 10 was published in September 2021.

See news about this PSP: January 2023June 2022

Key documents

Epilepsy (Canada) PSP Protocol

Epilepsy (Canada) PSP Final Report

Epilepsy (Canada) PSP Engagement Summary

Epilepsy (Canada) PSP Quantitative Question Verification Form

Epilepsy (Canada) PSP Qualitative Question Verification Form

Epilepsy (Canada) Top 10 research priorities press release September 2021

Epilepsy (Canada) open data release announcement June 2022