Priority from the Teenage and Young Adult Cancer PSP

UNCERTAINTY: What are the long term physical effects of a cancer diagnosis and treatment and how long do they last? 
Overall ranking This was one of the 20 questions at the workshop that fell outside of the Top 10. These were not ranked in any order of priority
JLA question ID 0060/11
Explanatory note Young people experience many long-term physical effects of cancer such as fatigue and pain which can have a huge impact on their lives. How long these effects last for in young people is unknown.
Evidence

Ahmad S,  Reinius M, Hatcher H,  Ajithkumar T. Anticancer chemotherapy in teenagers and young adults: managing long term side effects  

Non-systematic review and does not address 'how long' the effects last.
Health Research Classification System category Cancer
Extra information provided by this PSP
Original uncertainty examples Will my side effects go on forever? ~ When will my body get back to normal after treatment? ~ What issues are caused by chemotherapy/radiotherapy treatment after completing and how long do they last? ~ Will the treatment affect the patient in adulthood? ~ What is the late effects burden of treatment of TYA cancer? ~  Is there research being conducted to help people with long term effects of treatment to know what to expect?
Submitted by 8 x health professionals ~ 21 x  patients ~ 6 x parent/carers ~ 1 x relatives ~ 3 friends ~ 3 x partners
PSP information
PSP unique ID 0060
PSP name Teenage and Young Adult Cancer
Total number of uncertainties identified by this PSP. 185  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 19 January 2018