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We bring patients, carers and clinicians together to prioritise research questions for the benefit of health research funders.
About the JLA
We believe that patients, carers and clinicians should work together to agree which treatment uncertainties deserve attention and funding.
About PSPs
“This PSP has been a truly collaborative effort and ...
How do I set up a PSP?
When setting up your own Priority Setting Partnership (PSP), it is important that you read through the JLA Guidebook to understand the steps involved.
Templates and useful documents
A list of documents and templates useful when creating a PSP.
Using the JLA logo
Instructions for using the JLA logo on documents.
JLA Advisers
James Lind Alliance (JLA) Advisers are independent consultants who ...
History
The James Lind Alliance (JLA) was established in 2004 ...
What people say
As well as getting more research funded in a health area, PSPs have other benefits
The PSPs
Find out about all current and completed Priority Setting Partnerships, collaborations between clinicians and patients to identify research priorities.
Acne
 
Top 10 priorities
The top 10 priorities for the Acne PSP
Adult Social Work
More information about James Lind Alliance research priority setting work defining what the future research priorities are in social work for adults
Why we are doing this
 
How we will do it
 
Who is involved
 
PLEASE COMPLETE THIS NEW SURVEY
 
What social workers do
 
Advanced Heart Failure
 
Alcohol related liver disease
 
Top 10 priorities
The priority areas for future research around alcohol-related liver disease, agreed in September 2016
Anaesthesia and perioperative care
 
Top 10 priorities
(in no order of priority) What can we do to stop ...
Asthma
 
Top 10 priorities
The top 10 priorities of the Asthma PSP
Autism
 
Top 10 priorities
 
Bipolar
 
Bleeding Disorders
More information about work to set research priorities in bleeding disorders, with the James Lind Alliance
Blood transfusion and blood donation
 
Top 10 priorities
What would encourage more people (especially black and ethnic ...
Broken bones in older people
The research priority setting work of the James Lind Alliance PSP.
Cavernoma
 
Top 10 priorities
The top 10 priorities of the Cavernoma PSP
Cellulitis
 
Top 10 priorities
How can healthcare professionals be best supported to accurately ...
Childhood disability
 
Top 10 priorities
Does the timing and intensity of therapies (e.g. physical, ...
Cleft Lip and Palate
 
Top 10 priorities
What types of psychological intervention (individual therapy, community or ...
Common Conditions Affecting the Hand and Wrist
Details of the research priority setting work between patients and health professionals around common conditions of the hand and wrist
Contraception
 
Top 10 priorities
Which interventions (decision support aids, ease of access, motivational ...
Priority 1 from the Contraception PSP
UNCERTAINTY: Which interventions (decision support aids, ease of access ...
Priority 2 from the Contraception PSP
UNCERTAINTY: What is the risk of side effects (vaginal ...
Priority 3 from the Contraception PSP
UNCERTAINTY: What are the long-term effects of using contraception ...
Priority 4 from the Contraception PSP
UNCERTAINTY: What models of care increase access and support ...
Priority 5 from the Contraception PSP
UNCERTAINTY: Which interventions are safe and effective for women ...
Priority 6 from the Contraception PSP
UNCERTAINTY: Does pharmacy provision of contraceptive services increase uptake ...
Priority 7 from the Contraception PSP
UNCERTAINTY: What are the risks or benefits to using ...
Priority 8 from the Contraception PSP
UNCERTAINTY: What factors (advice from friends, family, professionals, beliefs, ...
Priority 9 from the Contraception PSP
UNCERTAINTY: Are there tests or factors such as age ...
Priority 10 from the Contraception PSP
UNCERTAINTY: Are there effective new methods of contraception available ...
Priority 11 from the Contraception PSP
UNCERTAINTY: What are the most effective methods of promoting ...
Priority 12 from the Contraception PSP
UNCERTAINTY: What are the benefits and risks of using ...
Priority 13 from the Contraception PSP
UNCERTAINTY: If the progestogen-only pill was available over the ...
Priority 14 from the Contraception PSP
UNCERTAINTY: What is the risk of stroke for women ...
Priority 15 from the Contraception PSP
UNCERTAINTY: Are there health risks for women who take ...
Priority 16 from the Contraception PSP
UNCERTAINTY: Do progestogens used alone or in combined hormonal ...
Priority 17 from the Contraception PSP
UNCERTAINTY: Are there factors (ethnicity, past experience) that can ...
Priority 18 from the Contraception PSP
UNCERTAINTY: Does providing women who are pregnant with information ...
Priority 19 from the Contraception PSP
UNCERTAINTY: Do models of care (video information, telephone assessments, ...
Priority 20 from the Contraception PSP
UNCERTAINTY: How effective are 'natural family planning methods' (monitoring ...
Priority 21 from the Contraception PSP
UNCERTAINTY: Are intrauterine contraceptives (IUC) affected if not correctly ...
Priority 22 from the Contraception PSP
UNCERTAINTY: What are the health risks (osteoporosis, bone fracture) ...
Priority 23 from the Contraception PSP
UNCERTAINTY: Does ovulation, menstrual cycles and fertility return to ...
Priority 24 from the Contraception PSP
UNCERTAINTY: How frequently do women stop using the implant ...
Priority 25 from the Contraception PSP
UNCERTAINTY: How common is it for side effects (mood/weight ...
Priority 26 from the Contraception PSP
UNCERTAINTY: What methods of pain relief are effective during ...
Priority 27 from the Contraception PSP
UNCERTAINTY: Why aren't there progestogen only transdermal patches, gels, ...
Priority 28 from the Contraception PSP
UNCERTAINTY: Why don't more young women choose to use ...
Priority 29 from the Contraception PSP
UNCERTAINTY: What risk factors are there for deep insertion ...
Cystic Fibrosis
 
Top 10 priorities
The Top 10 future research priorities in Cystic Fibrosis, agreed on 13th January 2017 by patients, carers and health professionals with experience of the condition
Dementia
 
Top 10 priorities
What are the most effective components of care that ...
Dementia (Canada)
 
Top 10 priorities
The priorities for research around Dementia in Canada
Depression
 
Top 10 priorities
What are the most effective ways to prevent occurrence ...
Diabetes (type 1)
 
Top 10 priorities
Is it possible to constantly and accurately monitor blood ...
Diabetes (type 2)
 
Top 10 uncertainties
Can type 2 diabetes be cured or reversed, what ...
Dialysis (Canada)
 
Top 10 uncertainties
 
Dystrophic Epidermolysis Bullosa (Spain)
 
Top ten uncertainties
Which wound care method obtains better outcomes (improved healing, ...
Ear nose and throat - Aspects of balance
 
Top 10 priorities
What is the optimal process for GP education and ...
Early hip and knee osteoarthritis
 
Eating disorders (Netherlands)
 
Eczema
 
Top 10 priorities
Shared priorities (important to patients and health professionals) What is ...
Emergency medicine
 
Top 10 priorities
What is the best way to reduce the harms ...
Endometriosis
 
Epilepsy
A summary of work done to set research priorities in Epilepsy in 2009
Fibromyalgia (Canada)
 
Top 10 priorities
 
Frailty (Canada)
More information about the work of this James Lind Alliance PSP in Canada
Top 10 priorities
The research priorities chosen by patients, carers and clinicians in Canada in 2017 around Frailty
Hair loss
 
Top 10 priorities
for Alopecia areata (includes totalis, universalis and barbae) What are ...
Healthcare associated infections
 
Heart Surgery
Describes the work of the James Lind Alliance Priority Setting Partnership to set research priorities around adult heart surgery
Hidradenitis suppurativa
 
Top 10 priorities
Please click on each question for more detailed information: What ...
Priority 1 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: What is the most effective and safe group of ...
Priority 2 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: What is the best management of an acute Hidradenitis ...
Priority 3 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: What is the impact of Hidradenitis Suppurativa and the ...
Priority 4 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How effective are biologics (etanercept, adalimumab, infliximab, ustekinumab) in ...
Priority 5 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: Does early diagnosis and aggressive treatment influence the course ...
Priority 6 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: What is the best surgical procedure to perform in ...
Priority 7 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: Which factors are useful in determining the prognosis (disease ...
Priority 8 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: What is the best method of wound care ...
Priority 9 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: To what extent is Hidradenitis Suppurativa caused by genetic ...
Priority 10 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: What is the best management of pain associated with ...
Priority 11 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: Is Hidradenitis Suppurativa an autoimmune disease?  (JLA PSP Priority ...
Priority 12 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How do we improve awareness of Hidradenitis Suppurativa amongst ...
Priority 13 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How effective are oral treatments that affect the immune ...
Priority 14 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: When is the best time to consider surgery to ...
Priority 15 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How effective are topical antiseptics in treating Hidradenitis Suppurativa? ...
Priority 16 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How effective are retinoids i.e acitretin, isotretinoin in treating ...
Priority 17 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How much do hormonal factors (puberty, menstruation, polycystic ovary ...
Priority 18 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: Which oral antibiotic regimen is the most effective in ...
Priority 19 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How effective and safe are short term or long ...
Priority 20 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How effective are hormone therapies, including spironolactone, for Hidradenitis ...
Priority 21 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: Is there an effective method (lifestyle, medical or surgery) ...
Priority 22 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: Does weight reduction improve symptoms in people with Hidradenitis ...
Priority 23 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: How effective is metformin in treating Hidradenitis Suppurativa? (JLA ...
Priority 24 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: What causes the itching that can be associated with ...
Priority 25 from the Hidradenitis Suppurativa PSP
UNCERTAINTY: Is surgery effective in treating Hidradenitis Suppurativa? (JLA PSP ...
Priority 26 from the Hidradenitis Suppurativa PSP
UNCERTAINTY:What is the best psychological support for people with ...
Priority 27 from the Hidradenitis Suppurativa PSP
UNCERTAINTY:Does smoking affect Hidradenitis Suppurativa? (JLA PSP Priority 27) Overall ...
Priority 28 from the Hidradenitis Suppurativa PSP
UNCERTAINTY:Does diet have any effect on the severity of ...
Priority 29 from the Hidradenitis Suppurativa PSP
UNCERTAINTY:Does stress trigger a flare of Hidradenitis Suppurativa? (JLA ...
Priority 30 from the Hidradenitis Suppurativa PSP
UNCERTAINTY:Are natural products or dietary supplements (e.g. turmeric, zinc, ...
Hip and knee replacement for osteoarthritis
 
Top 10 priorities
What are the most important patient and clinical outcomes ...
Hyperemesis Gravidarum
 
Hyperhidrosis
 
Hypertension (Canada)
 
Top 10 priorities
What healthy lifestyle habits or combination of habits can ...
Inflammatory bowel disease
 
Top 10 priorities
What is the optimal treatment strategy considering efficacy, safety ...
Intensive care
 
Top 10 priorities
The Intensive Care PSP identified these questions as the ...
Kidney cancer (Canada)
 
Top 10 priorities
What are the treatment options for patients with advanced ...
Kidney transplant
 
Top 10 priorities
(in no order of priority): What is the best way ...
Priority 1 from the Kidney Transplant PSP
UNCERTAINTY: In kidney transplant patients, what is the best ...
Priority 2 from the Kidney Transplant PSP
UNCERTAINTY: In kidney transplant patients, how can immunosuppression be ...
Priority 3 from the Kidney Transplant PSP
UNCERTAINTY: How can we prevent sensitisation in patients with ...
Priority 4 from the Kidney Transplant PSP
UNCERTAINTY: Can we improve monitoring of the level of ...
Priority 5 from the Kidney Transplant PSP
UNCERTAINTY: How can we improve transplant rates in highly ...
Priority 6 from the Kidney Transplant PSP
UNCERTAINTY: What are the long-term health risks to the ...
Priority 7 from the Kidney Transplant PSP
UNCERTAINTY: How can we encourage tolerance to the transplant to prevent ...
Priority 8 from the Kidney Transplant PSP
UNCERTAINTY: What is the best combination of immunosuppressive drugs following ...
Priority 9 from the Kidney Transplant PSP
UNCERTAINTY: What techniques to preserve, condition and transport the kidney ...
Priority 10 from the Kidney Transplant PSP
UNCERTAINTY: Can bioengineered organs be developed to be as safe ...
Priority 11 from the Kidney Transplant PSP
UNCERTAINTY: Which combinations of immunosuppressive drugs can minimise side effects ...
Priority 12 from the Kidney Transplant PSP
UNCERTAINTY: For which patients is transplantation not suitable (considering factors ...
Priority 13 from the Kidney Transplant PSP
UNCERTAINTY: How can we increase the number of potential living ...
Priority 14 from the Kidney Transplant PSP
UNCERTAINTY: What is the best method of sharing deceased donor ...
Priority 15 from the Kidney Transplant PSP
UNCERTAINTY: Does routine screening for and treatment of donor-specific antibodies ...
Priority 16 from the Kidney Transplant PSP
UNCERTAINTY: How can we ensure fair and equal access to ...
Priority 17 from the Kidney Transplant PSP
UNCERTAINTY: What is the best way of educating patients about ...
Priority 18 from the Kidney Transplant PSP
UNCERTAINTY: For blood group incompatible transplants, which treatments most effectively ...
Priority 19 from the Kidney Transplant PSP
UNCERTAINTY: Which treatments work best to prolong the life of ...
Priority 20 from the Kidney Transplant PSP
UNCERTAINTY: How can we match organs to recipients to ensure ...
Priority 21 from the Kidney Transplant PSP
UNCERTAINTY: How do we prevent the original cause of kidney ...
Priority 22 from the Kidney Transplant PSP
UNCERTAINTY: What tests are required to determine whether a transplant ...
Priority 23 from the Kidney Transplant PSP
UNCERTAINTY: What approaches improve outcomes in adolescent and young adult ...
Priority 24 from the Kidney Transplant PSP
UNCERTAINTY: Is there a reliable way for us to assess ...
Lichen Sclerosus
More about the research priority setting work started in 2017
Liver Glycogen Storage Disease (International)
More about the James Lind Alliance Priority Setting Partnership setting research priorities with patients, families and healthcare professionals
Lyme disease
 
Top 10 priorities
How effective are the current UK tests in detecting ...
Mesothelioma
 
Top 10 priorities
Please click on each question for more detailed information: Does ...
Priority 1 from the Mesothelioma PSP
UNCERTAINTY: Does boosting the immune system (using new agents such ...
Priority 2 from the Mesothelioma PSP
UNCERTAINTY: Can individualised chemotherapy be given to mesothelioma patients based ...
Priority 3 from the Mesothelioma PSP
UNCERTAINTY: What is the best way to monitor patients with ...
Priority 4 from the Mesothelioma PSP
In mesothelioma patients, what is the best second line ...
Priority 5 from the Mesothelioma PSP
UNCERTAINTY: Which is the most effective current treatment for ascites ...
Priority 6 from the Mesothelioma PSP
UNCERTAINTY: What are the relative benefits of immediate standard chemotherapy ...
Priority 7 from the Mesothelioma PSP
UNCERTAINTY: For mesothelioma patients, what is the best follow-up strategy ...
Priority 8 from the Mesothelioma PSP
UNCERTAINTY: In mesothelioma, is there a role for intrapleural immunostimulants ...
Priority 9 from the Mesothelioma PSP
UNCERTAINTY: Does an annual chest x-ray and/or CT scan and ...
Priority 10 from the Mesothelioma PSP
UNCERTAINTY: What, if any, are the benefits of pleurectomy (pleurectomy/decortication) ...
Priority 11 from the Mesothelioma PSP
UNCERTAINTY: Can PET scans (which produce 3D images of the ...
Priority 12 from the Mesothelioma PSP
UNCERTAINTY: How can the levels of mesothelin (a protein present ...
Priority 13 from the Mesothelioma PSP
UNCERTAINTY: What is the best current treatment for breathlessness in ...
Priority 14 from the Mesothelioma PSP
UNCERTAINTY: Is giving a course of chemotherapy to mesothelioma patients ...
Priority 15 from the Mesothelioma PSP
UNCERTAINTY: What is the best current method of managing mesothelioma ...
Priority 16 from the Mesothelioma PSP
UNCERTAINTY: Should treatment for mesothelioma, if the patient has no ...
Priority 17 from the Mesothelioma PSP
UNCERTAINTY: Is giving a course of radiotherapy to mesothelioma patients ...
Priority 18 from the Mesothelioma PSP
UNCERTAINTY: Is giving a course of radiotherapy to mesothelioma patients ...
Priority 19 from the Mesothelioma PSP
UNCERTAINTY: Would early referral to palliative care be beneficial for ...
Priority 20 from the Mesothelioma PSP
UNCERTAINTY: What is the value of weekly telephone support for ...
Priority 21 from the Mesothelioma PSP
UNCERTAINTY: What is the current best method (e.g. contrast enhanced ...
Priority 22 from the Mesothelioma PSP
UNCERTAINTY: Can rehabilitation be used to improve long term chronic ...
Priority 23 from the Mesothelioma PSP
UNCERTAINTY: Is there an overall benefit for standard chemotherapy in ...
Priority 24 from the Mesothelioma PSP
UNCERTAINTY: Should radiotherapy be given to mesothelioma patients at the ...
Priority 25 from the Mesothelioma PSP
UNCERTAINTY: What, if any, are the benefits of palliative surgery ...
Priority 26 from the Mesothelioma PSP
UNCERTAINTY: Should interventions (e.g. cordotomy or radiotherapy) be used to ...
Priority 27 from the Mesothelioma PSP
UNCERTAINTY: What is the best current treatment for fatigue in ...
Priority 28 from the Mesothelioma PSP
UNCERTAINTY: What is the best way to monitor patients with ...
Priority 29 from the Mesothelioma PSP
UNCERTAINTY: In mesothelioma patients, what is the best current treatment ...
Priority 30 from the Mesothelioma PSP
UNCERTAINTY: What is the best treatment to alleviate mucus in ...
Mild to moderate hearing loss
 
Top 10 priorities
What adverse effects are associated with not treating mild ...
Priority 1 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: What adverse effects are associated with not treating ...
Priority 2 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Does the early fitting of hearing aids result ...
Priority 3 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Does the early fitting of hearing aids slow ...
Priority 4 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: What are the reasons for low hearing aid ...
Priority 5 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Can new technologies replace hearing aids for the ...
Priority 6 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Can stem cell therapy offer a cure for ...
Priority 7 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Does early identification, diagnosis and treatment of mild ...
Priority 8 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Could new developments to digital hearing aids offer ...
Priority 9 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: How realistic are hearing tests for assessing the ...
Priority 10 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Could the use of real-world sounds to help ...
Priority 11 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: How effective and/or cost-effective are hearing aids for ...
Priority 12 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Could routine follow-up appointments help adults with mild ...
Priority 13 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: What is the effect of the use or ...
Priority 14 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: Can speech in noise tests offer additional diagnostic ...
Priority 15 from the Mild to Moderate Hearing Loss PSP
UNCERTAINTY: How effective are hearing tests (as part of ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - a
UNCERTAINTY: How frequently should hearing assessments be conducted to ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - b
UNCERTAINTY: What are the alternative tests to pure tone ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - c
UNCERTAINTY: Which type(s) of hearing aids are the most ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - d
UNCERTAINTY: Why is speech through hearing aids not clear ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - e
UNCERTAINTY: Is there a causal relationship between mild to ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - f
UNCERTAINTY: How can hearing aids be better designed to ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - g
UNCERTAINTY: How effective is deaf awareness training in retail ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - h
UNCERTAINTY: At what volume is leisure noise exposure damaging ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - i
UNCERTAINTY: Can hearing aids be designed to suppress intrusive ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - j
UNCERTAINTY: How can hearing aid technology be improved to ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - k
UNCERTAINTY: Can lipreading classes aid employment and/or reduce unemployment ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - l
UNCERTAINTY: How can hearing aid ear moulds be better ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - m
UNCERTAINTY: Which symptoms should adults and GPs use as ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - n
UNCERTAINTY:How can hearing aids best be programmed for adults ...
Priorities 16-30 from the Mild to Moderate Hearing Loss PSP - p
UNCERTAINTY:Could volume controls be improved on digital hearing aids ...
Miscarriage
 
Top 10 priorities
The priorities for research in the area of miscarriage, identified by the James Lind Alliance priority setting partnership in 2016
Multiple sclerosis
 
Top 10 priorities
Which treatments are effective to slow, stop or reverse ...
Musculoskeletal Rare Diseases in Adulthood
A summary of priority setting work in this area using James Lind Alliance methods
Neurodevelopmental Disorders Canada
 
Neuro-oncology
 
Top 10 priorities
Do lifestyle factors (e.g. sleep, stress, diet) influence tumour ...
Non-alcohol-related-liver and gallbladder disorders
 
Nutritional Screening and Malnutrition
 
Oral and Dental Health
Work done to set future research priorities in Oral and Dental Health by the James Lind Alliance Priority Setting Partnership started in 2017.
Paediatric Lower Limb Surgery
Paediatric Lower Limb Surgery PSP
Palliative and end of life care
 
Top 10 priorities
What are the best ways of providing palliative care ...
Priority 1 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways of providing palliative ...
Priority 2 from the Palliative and end of life care PSP
UNCERTAINTY:  How can access to palliative care services be ...
Priority 3 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the benefits of Advance Care Planning ...
Priority 4 from the Palliative and end of life care PSP
UNCERTAINTY:  What information and training do carers and families ...
Priority 5 from the Palliative and end of life care PSP
UNCERTAINTY:  How can it be ensured that staff, including ...
Priority 6 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to determine a ...
Priority 7 from the Palliative and end of life care PSP
UNCERTAINTY: What are the core palliative care services that should ...
Priority 8 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the benefits, and best ways, of ...
Priority 9 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to make sure ...
Priority 10 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to assess and ...
Priority 11 from the Palliative and end of life care PSP
UNCERTAINTY:  How can people who live alone and do not ...
Priority 12 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways for healthcare professionals ...
Priority 13 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to facilitate communication ...
Priority 14 from the Palliative and end of life care PSP
UNCERTAINTY:  What is the best way to give palliative ...
Priority 15 from the Palliative and end of life care PSP
UNCERTAINTY:  How can distress that is not related to ...
Priority 16 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best modes of palliative care in ...
Priority 17 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to diagnose and ...
Priority 18 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the benefits of, and best approaches ...
Priority 19 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to make sure ...
Priority 20 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to manage acute ...
Priority 21 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the signs that a person will ...
Priority 22 from the Palliative and end of life care PSP
UNCERTAINTY:  Is there an appropriate time to withdraw artificial ...
Priority 23 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to recognise and ...
Priority 24 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best care packages for patients, ...
Priority 25 from the Palliative and end of life care PSP
UNCERTAINTY:  Are outcomes (for example, symptom control and incidental ...
Priority 26 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to support children ...
Priority 27 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best treatments for nausea and ...
Priority 28 from the Palliative and end of life care PSP
UNCERTAINTY:  What are the best ways to manage the ...
Pancreatic Cancer (Germany)
 
Parkinsons
 
Top 10 priorities
What treatments are helpful for reducing balance problems and ...
Patient safety in primary care
 
Pessaries for Pelvic Organ Prolapse
More information about the work of the James Lind Alliance PSP in identifying and prioritising unanswered research questions about the use of pessaries in pelvic organ prolapse
Top 10 priorities
How might a pessary affect sexual activity? Do pessaries have an ...
Priority 1 from the Pessary use for Prolapse PSP
UNCERTAINTY: How might a pessary affect sexual activity? (JLA PSP Priority ...
Priority 2 from the Pessary use for Prolapse PSP
UNCERTAINTY: Do pessaries have an effect on the psychological ...
Priority 3 from the Pessary use for Prolapse PSP
UNCERTAINTY: What is important for a pessary self-management programme? (JLA PSP ...
Priority 4 from the Pessary use for Prolapse PSP
UNCERTAINTY: What are the risks and complications of pessary ...
Priority 5 from the Pessary use for Prolapse PSP
UNCERTAINTY: Are pessaries effective as a long-term treatment for prolapse? ...
Priority 6 from the Pessary use for Prolapse PSP
UNCERTAINTY: What is the best way to assess what type ...
Priority 7 from the Pessary use for Prolapse PSP
UNCERTAINTY: What is the best way to minimise and treat ...
Priority 8 from the Pessary use for Prolapse PSP
UNCERTAINTY: Does pessary use in prolapse have a positive impact ...
Priority 9 from the Pessary use for Prolapse PSP
UNCERTAINTY: When should oestrogen cream be used with a pessary? ...
Priority 10 from the Pessary use for Prolapse PSP
UNCERTAINTY: What is the ideal training to be a ...
Priority 11 from the Pessary use for Prolapse PSP
UNCERTAINTY: What level of prolapse will improve with the ...
Priority 12 from the Pessary use for Prolapse PSP
UNCERTAINTY: When is a pessary the right treatment for prolapse? ...
Priority 13 from the Pessary use for Prolapse PSP
UNCERTAINTY: What is the role of physiotherapy as part of ...
Priority 14 from the Pessary use for Prolapse PSP
UNCERTAINTY: Are pessaries effective in the treatment of prolapse? (JLA PSP ...
Priority 15 from the Pessary use for Prolapse PSP
UNCERTAINTY: Do the risks and complications of pessaries increase with ...
Priority 16 from the Pessary use for Prolapse PSP
UNCERTAINTY: What differences does a pessary make when used to ...
Priority 17 from the Pessary use for Prolapse PSP
UNCERTAINTY: Which pessary should be used for which prolapse? (JLA PSP ...
Priority 18 from the Pessary use for Prolapse PSP
UNCERTAINTY: What should be considered when choosing which type of ...
Priority 19 from the Pessary use for Prolapse PSP
UNCERTAINTY: Should women using pessaries be offered supervised pelvic ...
Priority 20 from the Pessary use for Prolapse PSP
UNCERTAINTY: What things make a difference to help with ...
Priority 21 from the Pessary use for Prolapse PSP
UNCERTAINTY: Is a pessary as acceptable as surgery for the ...
Priority 22 from the Pessary use for Prolapse PSP
UNCERTAINTY: Should a young woman with a non-bothersome prolapse be ...
Priority 23 from the Pessary use for Prolapse PSP
UNCERTAINTY: How safe are pessaries? (JLA PSP Priority 23) Overall ranking 23 JLA question ...
Priority 24 from the Pessary use for Prolapse PSP
UNCERTAINTY: Can women be taught to manage their own pessary? (JLA PSP ...
Priority 25 from the Pessary use for Prolapse PSP
UNCERTAINTY: Does the use of a pessary during or after ...
Pressure ulcers
 
Top 10 priorities
How effective is repositioning in the prevention of pressure ...
Preterm birth
 
Top 10 priorities
Which interventions are most effective to predict or prevent ...
Prostate cancer
 
Top 10 priorities
How can overtreatment for prostate cancer be prevented by ...
Psoriasis
Information about the research priority setting work around Psoriasis started in 2017 using James Lind Alliance methods
Rare Anaemias Inherited
Details about the work of the James Lind Alliance Priority Setting Partnership in identifying research uncertainties around Rare Anaemias
Top 10 Priorities
Would a national formal network of clinicians with expertise ...
Revision Knee Replacement
 
Safe Care for Adults with Complex Health Needs
More details about the James Lind Alliance Priority Setting Partnership in Patient Safety
Schizophrenia
 
Top 10 priorities
What is the best way to treat people with ...
Scoliosis
How the James Lind Alliance Priority Setting Partnership in Scoliosis will work and how you can find out more
Sight loss and vision
 
Top 10 priorities
The Sight Loss and Vision PSP set Top 10 priorities ...
Age-Related Macular Degeration (AMD) Top 10
Can a treatment to stop dry AMD progressing and/or ...
Cataract Top 10
How can cataracts be prevented from developing? Can the return ...
Childhood Onset Disorders Top 10
How can cerebral visual impairment be identified, prevented and ...
Corneal and External Eye Conditions Top 10
Can new therapies such as gene or stem cell ...
Glaucoma Top 10
What are the most effective treatments for glaucoma and ...
Inherited Retinal Disease
Can a treatment to slow down progression or reverse ...
Neuro-ophthalmology Top 10
What is the underlying cause of optic nerve damage ...
Ocular Cancer Top 10
What can be done to help ocular cancer sufferers? Can ...
Ocular Inflammatory Disease Top 10
What are the most effective treatments for ocular and ...
Refractive Error and Ocular Motility Top 10
What factors influence the development of refractive error (myopia, ...
Retinal Vascular Disease Top 10
What are the best methods to prevent retinopathy of ...
Vitreoretinal or Ocular Trauma Top 10
How can surgical techniques be improved to save sight ...
Spinal cord injury
 
Top 10 priorities
Does activity based rehabilitation, including functional electrical stimulation coupled ...
Stillbirth
 
Top 10 priorities
How can the structure and function of the placenta ...
Priority 1 from the Stillbirth PSP
UNCERTAINTY: How can the structure and function of the placenta ...
Priority 2 from the Stillbirth PSP
UNCERTAINTY: Does ultrasound assessment of fetal growth in the third ...
Priority 3 from the Stillbirth PSP
UNCERTAINTY: Do modifiable ‘lifestyle’ factors (e.g. diet, vitamin deficiency, sleep ...
Priority 4 from the Stillbirth PSP
UNCERTAINTY: Which investigations identify a fetus which is at risk ...
Priority 5 from the Stillbirth PSP
UNCERTAINTY: Can the wider use of existing tests and monitoring ...
Priority 6 from the Stillbirth PSP
UNCERTAINTY: What causes stillbirth in normally grown babies? (JLA PSP ...
Priority 7 from the Stillbirth PSP
UNCERTAINTY: What is the most appropriate bereavement and post natal ...
Priority 8 from the Stillbirth PSP
UNCERTAINTY: Which antenatal care interventions are associated with a reduction ...
Priority 9 from the Stillbirth PSP
UNCERTAINTY: Would more accessible evidence-based information on signs and symptoms ...
Priority 10 from the Stillbirth PSP
UNCERTAINTY: How can staff support women and their partners in ...
Priority 11 from the Stillbirth PSP
UNCERTAINTY: Why is the incidence of stillbirth in the UK ...
Stroke in Scotland
 
Top 10 priorities
What are the best ways to improve cognition after ...
Surgery for common shoulder problems
 
Top 10 priorities
(in no order of priority): For the main shoulder conditions ...
Teenage and Young Adult Cancer
More information about identifying and setting research priorities in teenage and young adult cancer
The Top 10 Priorities
What psychological support package improves psychological well-being, social functioning ...
Tinnitus
 
Top 10 priorities
(in no order of priority) What management strategies are more ...
Urinary incontinence
 
Top 10 priorities
What are the optimal pelvic floor muscle training protocols ...
Vitiligo
 
Top 10 priorities
How effective are systemic immunosuppressants in treating vitiligo? How much ...
Womb-cancer
 
Top 10 priorities
The top priorities for future research in the area of endometrial (womb) cancer, set in 2015 by patients, carers and health professionals
Priority 1 from the Womb Cancer psp
The top priority from the James Lind Alliance Womb Cancer research Priority Setting Partnership
Priority 2 from the Womb Cancer PSP
Priority 2 from the James Lind Alliance Womb Cancer Priority Setting Partnership
Priority 3 from the Womb Cancer PSP
Priority 3 from the James Lind Alliance Womb Cancer Priority Setting Partnership
Priority 4 from the Womb Cancer PSP
Priority 4 from the James Lind Alliance Womb Cancer PSP
Priority 5 from the Womb Cancer PSP
Priority 5 from the James Lind Alliance Womb Cancer PSP
Priority 6 from the Womb Cancer PSP
Priority 6 from the James Lind Alliance Womb Cancer PSP
Priority 7 from the Womb Cancer PSP
Priority 7 from the James Lind Alliance Womb Cancer PSP
Priority 8 from the Womb Cancer PSP
Priority 8 from the James Lind Alliance Womb Cancer PSP
Priority 9 from the Womb Cancer PSP
Priority 9 from the James Lind Alliance Womb Cancer PSP
Priority 10 from the Womb Cancer PSP
Priority 10 from the James Lind Alliance Womb Cancer PSP
Priority 11 from the Womb Cancer PSP
Priority 11 from the James Lind Alliance Womb Cancer PSP
Priority 12 from the Womb Cancer PSP
Priority 12 from the James Lind Alliance Womb Cancer PSP
Priority 13 from the Womb Cancer PSP
Priority 13 from the James Lind Alliance Womb Cancer PSP
Priority 14 from the Womb Cancer PSP
Priority 14 from the James Lind Alliance Womb Cancer PSP
Priority 15 from the Womb Cancer PSP
Priority 15 from the James Lind Alliance Womb Cancer PSP
Priority 16 from the Womb Cancer PSP
Priority 16 from the James Lind Alliance Womb Cancer PSP
Priority 17 from the Womb Cancer PSP
Priority 17 from the James Lind Alliance Womb Cancer PSP
Priority 19 from the Womb Cancer PSP
Priority 19 from the James Lind Alliance Womb Cancer PSP
Priority 20 from the Womb Cancer PSP
Priority 20 from the James Lind Alliance Womb Cancer PSP
Priority 21 from the Womb Cancer PSP
Priority 21 from the James Lind Alliance Womb Cancer PSP
Priority 22 from the Womb Cancer PSP
Priority 22 from the James Lind Alliance Womb Cancer PSP
Priority 24 from the Womb Cancer PSP
Priority 24 from the James Lind Alliance Womb Cancer PSP
Priority 25 from the Womb Cancer PSP
Priority 25 from the James Lind Alliance Womb Cancer PSP
Priority 26 from the Womb Cancer PSP
Priority 26 from the James Lind Alliance Womb Cancer PSP
Priority 27 from the Womb Cancer PSP
Priority 27 from the James Lind Alliance Womb Cancer PSP
Priority 23 from the Womb Cancer PSP
Priority 23 from the James Lind Alliance Womb Cancer PSP
Seniors' Health (Alberta, Canada)
 
Eating Disorders (Canada)
The Canadian Eating Disorder Priority Setting Partnership (CEDPSP) is ...
Head and Neck Cancer (Alberta, Canada)
Head and Neck Cancer is the sixth most common ...
The Top 10 Priorities
What is the best overall treatment combination or regimen ...
Health with Multiple Conditions in Old Age
 
Top 10s
The Top 10 priorities for future research identified by each PSP, a collaboration between clinicians and patients to identify research priorities.
JLA Guidebook
The JLA Guidebook will help you through the priority setting process. Containing everything you need to understand a PSP, or run your own.
1. JLA methods and principles
The JLA Guidebook is aimed at people that are interested in the JLA’s priority setting process: namely, patients and their carers, clinicians
The James Lind Alliance
The James Lind Alliance (JLA) is a non-profit making initiative which was established in 2004. It brings patients, carers and clinicians together in Priority Setting Partnerships (PSPs) to identify and prioritise the unanswered questions about the effects of treatments that they agree are most important.
Contact us
Contact us The James Lind Alliance National Institute for ...
Acknowledgements
Acknowledgements of individuals involved in the writing of the JLA Guidebook.
Why involve patients and clinicians?
People have suffered and died unnecessarily because uncertainties about ...
Why the JLA method?
Learn more about the principles of the JLA.
What are the principles of the JLA?
The JLA priority setting method is flexible and responsive ...
Exclusions
Traditionally the health research agenda has been largely determined ...
What are treatment uncertainties?
The JLA definition of a treatment uncertainty is that: no ...
JLA Advisers
What's the role of a JLA Adviser? They support and guide the PSP, neutrally, ensuring that the process is followed in a fair, transparent way
What is a Priority Setting Partnership?
The aim of Priority Setting Partnerships (PSPs) is to ...
Who's who in the Priority Setting Partnership
The structure and role of people in a Priority Setting Partnership.
2. How to establish a PSP
Includes the JLA's definition of treatment uncertainty and links to articles about treatment uncertainty
Roles & responsibilities
Being a PSP leader - what's involved?
The PSP Steering Group
What does a PSP Steering Group do? Includes a template Steering Group Terms of Reference document for PSPs to adapt
The Data Manager or Information Specialist
What does a PSP Information Specialist do? What skills does the Information Specialist need?
The Project Coordinator
What does a PSP Project Coordinator do? How much work is it?
What are the costs involved in running a PSP?
How much does it cost to run a PSP? What might you need to spend money on?
How long does it take to run a PSP?
Information on the time taken to run a PSP, with an example timetable
3. Setting up a PSP
How to start setting up a PSP Steering Group of key people who collectively can represent all or the majority of issues. Includes links to documents needed.
Agreeing scope and protocol
Ideas for when thinking about the scope of a PSP. Implications of decisions made. With links to examples of protocols from previous PSPs.
Identifying and managing partners/stakeholders
When setting up a PSP it is essential to identify partners and the patients, carers and clinicians affected by the health topic being considered.
Initial awareness or scoping meeting
It's optional, but some PSPs hold an initial awareness or launch meeting to raise the profile of the PSP among patient and clinician groups
Managing the PSP
Things to agree on within the PSP, to help everyone to work in a consultative and inclusive way.
Appreciating values and perspectives
Encouraging equal valuation of views from all PSP participants
Communications
Ideas for communications around PSPs, including using the JLA brand
Working with patients and carers
Tips for inclusive communication and involvement
Working with clinicians
Ideas for involving clinicians in the PSP
4. Gathering uncertainties
Where should PSPs gather their uncertainties from? How many should they aim for? Including examples of how this has been done
How many responses is enough?
There is no recommended maximum or minimum number of ...
Survey design
Developing a PSP questionnaire, with examples
Survey duration
The duration of a PSP survey should allow enough time to generate enough responses to cover as many themes as possible.
Consent and ethics
Using personal data and information about ethics approval
Searching existing literature for uncertainties
Documented sources of information need to be searched for evidence of uncertainty during the prioritisation exercise.
5. Data processing & verifying uncertainties
The detailed steps involved in the data management for a Priority Setting Partnership with examples of numbers of survey respondents
Stage 1. Download the survey data
Advice on organising PSP data, with a link to a template for this
Stage 2. Remove out-of-scope submissions
Advice on what to do with out-of-scope survey submissions
Stage 3. Categorise eligible submissions
Once out-of-scope submissions have been identified and removed, PSPs may allocate the remaining submissions into categories, also known as a taxonomy.
Stage 4. Form indicative questions
Submissions for the PSP may need to be rewritten or rephrased to clarify the precise uncertainty and to make it easier to check against the evidence base.
Rephrasing and combining the submissions
It is important to note that the questions written ...
Finalising the long list of indicative questions
This process can be time consuming and labour intensive.  ...
Stage 5. Verify the uncertainties
Each uncertainty submitted, including indicative uncertainties of combined submissions as described above, needs to be verified as a true uncertainty.
Identifying research recommendations
The searched systematic reviews and guidelines may contain research ...
Ongoing trials and studies
Some PSPs have considered the presence of ongoing trials ...
Preparing uncertainties for prioritisation and publication on the JLA website
To manage the data throughout the PSP process, it ...
6. Interim priority setting
Ideas about how to present an interim priority setting survey
The number of questions to include
Generally, from experience, a maximum of around 70 questions ...
Who should complete it?
Those asked to complete the interim prioritisation survey may ...
Approaches used
The main three methods used by a PSP to ask for interim priorities
Examples of interim priority setting
The Mesothelioma PSP listed 52 questions in the interim survey ranking them i order of importance.
Collating and scoring interim priorities
Completed interim prioritisation results should be grouped into categories and separate scores kept to ensure a fair weighting of the constituent groups.
7. Final priority setting
What are the principles of final priority setting in a JLA PSP?
Final priority setting method
Why the JLA supports an adapted Nominal Group Technique for PSPs choosing their top 10 priorities.
Preparing for the workshop
A summary of steps required in organising the meeting for the final workshop and the materials needed
Workshop process on the day
What happens in a standard JLA final priority setting meeting?
Workshop best practice
The ground rules involved in a JLA PSP final workshop
Feedback from the final workshop participants
Evaluating the workshop helps JLA PSPs understand how the process has worked for them and to address any individual concerns.
8. Dissemination and publishing of the Top 10
It is important for PSPs to publicise and disseminate the results of their priority setting exercise to reach potential funders and researchers.
9. Taking priorities to research funders
How to disseminate priorities to researchers and research funders. What extra work is needed?
Finding appropriate research funders
Funders of research with the appropriate interests in addressing treatment uncertainties can be found in both the public and the charitable sector.
Communicating with appropriate researchers
Ideas for searching for researchers or their networks
An example of working with the NIHR HTA Programme
PSPs have benefitted from discussing potentially fundable research priorities with the NIHR’s Health Technology Assessment (HTA) Programme via the JLA.
10. Follow up
After the final workshop, you can provide feedback to the JLA in a short survey. Your long term involvement in evaluating the impact of a PSP is important.
11. Toolbox of key PSP documents
Link to documents which provide more useful information and examples of work done by previous PSPs.
News and Publications
The latest news from our PSPs, collaborations between patients, carers and clinicians to prioritise health research questions.
Newsletters
James Lind Alliance newsletters
JLA articles and publications
Articles published by the James Lind Alliance
PSP articles and publications
Articles published by the James Lind Alliance about Priority Setting Partnerships
PSP final reports
This section provides links to final reports that have ...
Contact us
Contact details for the James Lind Alliance.
Cookie policy
Information on the cookie policies of the James Lind Alliance.
Sitemap
The structure of the James Lind Alliance website
Copyright
All materials written for this website by the JLA ...
Making a difference
How JLA PSPs are making a difference to research
Funded Research
A summary of research that has been funded as a direct results of a James Lind Alliance Priority Setting Partnership
Working with the priorities
Many people do more work with PSP priorities to explore them even further
Reporting on results and impact
What have JLA PSPs done to track the response to their research priorities?
Have your say
These are surveys currently available from James Lind Alliance Priority Setting Partnerships for patients, carers and health professionals to take part in