Priority 1 from the Palliative and end of life care PSP

UNCERTAINTY:  What are the best ways of providing palliative care outside of working hours to avoid crises and help patients to stay in their place of choice? This includes symptom management, counselling and advice, GP visits and 24-hour support, for patients, carers and families.   (JLA PSP Priority 1)
Overall ranking 1
JLA question ID 0026/1
Evidence

A prospective cohort study exploring the impact of offering telehealth support to palliative patients and their family caregivers to enhance the community based palliative care service ACTRN12613000733774
Health Research Classification System category  Generic
Extra information provided by this PSP
Original uncertainty examples Access to information, support and help 24/7 is essential, so why isn't this the case?   ~   Why are hospice and specialist end of life care service so difficult to access out or normal working hours?  ~  Are there any plans to provide 24 hour care in patients own homes to enable them to stay at home as long as possible?
Submitted by Bereaved Carers x 1 ~ Professionals x 7
Outcomes to be measured Health related quality of life, good death, Change in symptoms or change in management of symptoms, adverse effects or complications
PSP information
PSP unique ID 0026
PSP name Palliative and end of life care
Total number of uncertainties identified by this PSP. 83  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 21 November 2014