After the Cystic Fibrosis PSP agreed its Top 10, the group explored four of the Top 10 priorities in more depth, using online surveys and focus groups amongst the cystic fibrosis community. The aim was to develop practical and important clinical trial questions in those priority areas. They then undertook a follow-up survey asking the community to rank eight specific trial questions in terms of importance and asked patients how likely they would be to take part in the trials.
The Teenage and Young Adult Cancer PSP brought together researchers, funders and charities in a workshop to discuss the priorities and consider opportunities for funding. The PSP described this as a ‘funders’ workshop’, other PSPs have described this step as having a ‘knowledge translation workshop’.