Priority 7 from the Mesothelioma PSP

UNCERTAINTY: For mesothelioma patients, what is the best follow-up strategy post-treatment, to identify and treat emerging side effects and other problems? (JLA PSP Priority 7)
Overall ranking 7
JLA question ID 0025/7 
Explanatory note Not available for this PSP
Evidence No systematic reviews or studies identified
Health Research Classification System category Cancer
Extra information provided by this PSP
Original uncertainty examples We had no follow up appointment and the attitude from the Consultant was uncaring and callous ~ Why are follow up appointents after 2nd line chemo not realistic?  Why do consultants suddenly give 3 month appointments, this is distressing for widows to cancel.  Why can't they be honest? ~ we can't think beyond the date of the next assessment and the news it might bring.  And the "scanxiety" in the run up to each assessment is vert stressful ~ It would be helpful if X rays and scans were done more regularly so as to see what progress has taken place and what treatment would be required. 
Comparison None identified
Submitted by Bereaved x 2 ~ Carer ~ Patient
Outcomes to be measured Side effects
PSP information
PSP unique ID 0025
PSP name Mesothelioma
Total number of uncertainties identified by this PSP. 53  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 16 December 2014