Priority 1 from the Advanced Heart Failure PSP

UNCERTAINTY: Which treatments have the biggest impact on the quality of life of people with advanced heart failure?  (JLA PSP Priority 1)

Overall ranking

 1

JLA question ID

 0098/01

Explanatory note

Generally quality of life is not the primary (main) outcome in clinical studies - although it is likely to appear in exercise studies as a secondary outcome (not the main focus of study), self-management and self-care interventions

Evidence

No systematic reviews on this topic in past five years 

Health Research Classification System category

 Cardiovascular
Extra information provided by this PSP

Original uncertainty examples

Does involvement of a specialist palliative care team in addition to heart failure nurses improve quality of life for patients and their carers  ~ How can we most effectively improve survival and quality of life in people with HF? ~ I want my quality of life to get better so I am able to do these day to day tasks and more

 ~ Do diuretics improve quality of life? 

Submitted by

 3 x health professionals, 1 x patient 
PSP information
PSP unique ID 0098
PSP name Advanced Heart Failure
Total number of uncertainties identified by this PSP. 65  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 13 February 2019