Cystic Fibrosis

Cystic Fibrosis

In Cystic Fibrosis care there are many situations where we do not know which treatment is best.  When the Cystic Fibrosis PSP began its work in early 2016, it estimated that there were over 300 important research questions about cystic fibrosis treatment which were unanswered at the time. The PSP wanted to make sure that the priorities of patients, carers and clinicians were not overlooked in future research.

The Cystic Fibrosis PSP published its Top 10 in January 2017.  Read more about the results in this press release.

After the success of the PSP, a second continuation phase is being carried out to take a more in-depth look at four of the Top 10 priorities to find out what they mean to the people living and working with cystic fibrosis. The results will be used to formulate more specific research questions which are meaningful to the cystic fibrosis community.  The survey is available here 

Professor Alan Smyth explains the need for a
Priority Setting Partnership in Cystic Fibrosis

 

How the top 10 priorities were identifed