Priority 20 from the Rare Musculoskeletal Diseases in Adulthood PSP

UNCERTAINTY: How does drug treatment need to change as people with rare metabolic bone disorders get older? (JLA PSP Priority 20)
Overall ranking 20
JLA question ID 0076/20
Explanatory note Not available for this PSP
Evidence

None identified
Health Research Classification System category Musculoskeletal
Extra information provided by this PSP
Original uncertainty examples OI: are there any benefits to treating adults with OI with bisphosphonates? If so, who should be treated? ~ Will my treatment need adjusting as I get older? ~ Is there a consensus on whether it is effective for XLH patients to take phosphates at all ages? It seems that opinion varies.   
Submitted by Individual survey submissions categorised by Health or Social Care Professionals, Organisations representing people with rare musculoskeletal diseases, people with rare musculoskeletal diseases, relatives/carers/friends, Other.  For full details of the type of submitter for each individual question, please see the spreadsheet of data held on the JLA website. 
PSP information
PSP unique ID 0076
PSP name Rare Musculoskeletal Diseases in Adulthood
Total number of uncertainties identified by this PSP. 39  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 18 June 2018