JLA articles and publications

This section provides links to articles and publications relevant to the work of the JLA.

2016

Crowe S, Giles C, Making patient relevant clinical research a realityBMJ, 23 December 2016, 355:i6627, doi: 10.1136/bmj.i6627

Fiennes C, Avoiding waste in medical researchFinancial Times, 29 September 2016

Raeymaekers P, with contributions from Crowe S, Cowan K, Broerse J and Hertz-Pannier L.  Mind the gap! Multi-stakeholder dialogue for priority setting in health research.  A publication of the King Baudouin Foundation, Belgium, April 2016

White C, Don't Forget to Ask! The Patient and Relative Perspective. HealthManagement.org, volume 16, issue 1, 2016 

Whiting C, The James Lind Alliance - involving patients and their health professionals jointly in setting priorities for research (pdf, 146.13 KB)ENT and Audiology News, January/February 2016, volume 24, number 6, pp56-57.  Reproduced with kind permission of Pinpoint Scotland Ltd.

2015

Crowe S, JLA team and speakers/contributors to the day, Report from JLA Symposium June 2015.  Learning from JLA Evaluations - Shaping Future JLA Methods. (pdf, 974.9 KB)      Copies of slides from the symposium are also available. (pdf, 1895.63 KB) 

Snow R, Crocker JC, Crowe S, Missed opportunities for impact in patient and carer involvement: a mixed methods case study of research priority settingResearch Involvement and Engagement 2015, 1:7, doi: 10.1186/s40900-015-0007-6  

Petit-Zeman S, Whose research is it anyway?  Oxford BRC Blog, July 2015 

Cowan K, Who decides the priorities for medical research?  Alliance magazine, June 2015

Crowe S, Fenton M, Hall M, Cowan K, Chalmers I, Patients', clinicians' and the research communities' priorities for treatment research: there is an important mismatchResearch Involvement and Engagement, volume 1, June 2015, doi: 10.1186/s40900-015-0003-x

Crowe S, Do patients and clinicians research priorities really matter?  BioMed Centralblog, June 2015 

Cochrane Agenda and Priority Setting Methods Group, Plain Language Summaries of Research Priority Setting Methods

2014

INVOLVE, November 2014, Guidance on the use of social media to involve the public in research 

2013

Chalmers I, Atkinson P, Fenton M, Firkins L, Crowe S, Cowan K, Tackling treatment uncertainties together: the evolution of the James Lind Initiative, 2003 - 2013Journal of the Royal Society of Medicine, December 2013, vol 106, no 12, 482-491, doi: 10.1177/0141076813493063

Petit-Zeman S, Locock L, Health care: Bring on the evidence, Nature Volume:501,Pages:160–161 () doi:10.1038/501160a

NICE/AMRC/James Lind Initiative, Research Prioritisation (pdf, 216.15 KB).  Report of a meeting held on 28 January 2013. 

Nasser M, Welch V, Tugwell P, Ueffing E, Doyle J, Waters E, Ensuring relevance for Cochrane Reviews: evaluating processes and methods for prioritizing topics for Cochrane reviewsJournal of Clinical Epidemiology, May 2013, Vol 66, Issue 5, pages 474-482, doi: 10.1016/j.jclinepi.2012.01.001

Nasser M, Welch V, Ueffing E, Crowe S, Oliver S, Carlo R, Evidence in agenda setting: new directions for the Cochrane Collaboration. Journal of Clinical Epidemiology, May 2013, Vol 66, Issue 5, pages 469-471, doi: 10.1016/j.jclinepi.2012.08.006 

2012

Chalmers I, Essali A, Rezk E, Crowe S, Is academia meeting the needs of non-academic users of the results of research?  The Lancet, Vol 380, Special Issue, S43, October 2012, doi: 10.1016/S0140-6736(13)60219-6 

European Medical Research Councils Science Policy Briefing 45 Implementation of Medical Research in Clinical Practice

Uhm S, Liabo K, Stewart R, Rees R, Oliver S, Patient and public perspectives shaping scientific and medical research: panels for data, discussions and decisionsPatient Intelligence, 16 January 2012, doi: 10.2147/PI.S17835

Petit-Zeman S, Why patients and clinicians should set priorities for cardiac researchers. British Journal of Cardiac Nursing, February 2012, volume 7, number 2 

2011

Evans I, Thornton H, Chalmers I, Glasziou P, Testing Treatments: better research for better healthcare  

Chafe R, Born KB, Slutsky AS, Laupacis A, The rise of people powerNature 472, 410-311, 28 April 2011, doi:10.1038/472410a 

Stewart RJ, Caird J, Oliver K, Oliver S, Patients' and clinicians' research prioritiesHealth Expectations Vol 14, Issue 4, Pages 439-448, December 2011, doi 10.1111/j.1369-7625.2010.00648x 

JLA Annual Report 2010-11

Report (pdf, 73.56 KB)

Annexe 1 - JLA Performance Tracker (pdf, 72.67 KB)

Annexe 2 - Strategy and Development Group Members List (pdf, 27.53 KB)

Annexe 3 - Monitoring and Implementation Group Members List (pdf, 26.27 KB)

Annexe 4 - Vitiligo PSP article, British Journal of Dermatology

Annexe 5 - JLA PSP Top 10s (pdf, 66.18 KB) 

Annexe 6 - Prostate Cancer PSP evaluation (pdf, 47.81 KB)

Annexe 7 - Report: Asthma PSP - what happened next? (pdf, 99.76 KB) 

Annexe 8 - Report abstract: Patients' and clinicians' research priorities

Annexe 9 - Event report: Does industry listen to patients and if so, why? (pdf, 108.88 KB) 

Annexe 10 - Event report: Building on success (pdf, 1186 KB)

Annexe 11 - JLA Publications List (pdf, 34.25 KB)

Annexe 12 - JLA Presentations List (pdf, 29.62 KB)

Annexe 13 - JLA Affiliates Application Form (pdf, 46.66 KB)

Annexe 14 - JLA Affiliates Newsletter April 2010 (pdf, 857.98 KB)

Annexe 15 - JLA Affiliates Newsletter July 2010 (pdf, 467.02 KB)

Annexe 16 - JLA Affiliates Newsletter September 2010 (pdf, 6867.97 KB)

Annexe 17 - JLA Affiliates Newsletter November 2010 (pdf, 936.13 KB)

Annexe 18 - JLA Affiliates Newsletter January 2011 (pdf, 754.05 KB)

Annexe 19 - JLA Affiliates Newsletter March 2011 (pdf, 582.12 KB)

Annexe 20 - JLA Affiliates List (pdf, 50.5 KB)

Annexe 21 - JLA Guidebook Press Release (pdf, 51.24 KB)

Annexe 22 - JLA Guidebook (pdf, 836.97 KB)

Annexe 23 - JLA Performance Tracker (pdf, 73.56 KB) 

2010

Cowan K, The James Lind Alliance - Tackling Treatment Uncertainties TogetherJournal of Ambulatory Care Management 33, 3: 241-248 doi: 10.1097/JAC.0b013e3181e62cda

Petit-Zeman S, Denegri S, Natural Ground for Medical Research Charities: Public and Patient Involvement in Research FundingJournal of Ambulatory Care Management33, 3:249-256 doi: 10.1097/JAC.0b013e3181e5d279

Petit-Zeman S, Firkins L, Scadding JW, The James Lind Alliance: tackling research mismatchesThe Lancet vol 376, No. 9742, P667-669, 28 August 2010, doi: 10.1016/S0140-6736(10)60712-X

Opar A, Lind guidelines offer a checklist for research prioritiesNature Medicine 16, 620 doi:10.1038/nm0610-620b

Thomas RH, Hammond CL, Bodger OG, Rees MI, Smith PEM on behalf of the Wales Epilepsy Research Network & James Lind Alliance, Identifying and prioritising epilepsy treatment uncertaintiesJournal of Neurology, Neurosurgery & Psychiatry; 81:918-921doi:10.1136/jnnp.2009.192716 

Building on Success - Opportunities to progress patient and public involvement in research prioritisation and commissioning (pdf, 1186 KB).  Event report. 

Petit-Zeman S, Giving people what they want.  Want to know which treatments work best?  Try asking patients, Prospect July 2010, page 58 

Agenda setting: Evidence & Equity.  Minutes of Joint Campbell-Cochrane Colloquium, Keystone, Co, USA, 20 October 2010 (pdf, 2046.86 KB)

JLA Annual Report 2008-10

Report (pdf, 139.17 KB)

Annexe 1 - JLA Performance Tracker 2008-9 (pdf, 160.4 KB)

Annexe 2 - JLA Performance Tracker 2009-10 (pdf, 114.39 KB) 

Annexe 3 - Strategy and Development Group Members List (pdf, 51.7 KB)

Annexe 4 - Monitoring and Implementation Group Members List(pdf, 48.05 KB)

Annexe 5 - Urinary Incontinence Priority Setting Partnership final report (pdf, 231.65 KB)

Annexe 6 - Urinary Incontinence Priority Setting Partnership evaluation (pdf, 71.23 KB) 

Annexe 7 - Vitiligo PSP Dispatches article issue 49 (not currently available)

Annexe 8 - Vitiligo PSP Dispatches article issue 50 (not currently available)

Annexe 9 - Vitiligo PSP Dispatches article 51 (not currently available) 

Annexe 10 - Patients' Priorities for Research into Epilepsy, PatientView report (pdf, 425.76 KB)

Annexe 11 - Systematic Map of Studies of Research Priorities, SSRU report (pdf, 586.11 KB)

Annexe 12 - Topic Specific Research Networks web review (pdf, 95.22 KB)

Annexe 13 - Scoping Research Priority Setting, TwoCan summary report (pdf, 33.59 KB) 

Annexe 14 - Outcomes in Clinical Research conference report (pdf, 493.52 KB)

Annexe 15 - Building on Success, event programme (pdf, 81.69 KB)

Annexe 16 - JLA Publications List (pdf, 54.47 KB)

Annexe 17 - JLA Presentations List (pdf, 51.45 KB)

Annexe 18 - JLA Affiliates Newsletter January 2009 (pdf, 153.49 KB)

Annexe 19 - JLA Affiliates Newsletter April 2009 (pdf, 631.88 KB)

Annexe 20 - JLA Affiliates Newsletter July 2009 (pdf, 390.57 KB)

Annexe 21 - JLA Affiliates Newsletter October 2009 (pdf, 525.24 KB)

Annexe 22 - JLA Affiliates Newsletter January 2010 (pdf, 388.09 KB)

Annexe 23 - JLA Affiliates List (pdf, 107.06 KB)

Annexe 24 - JLA Performance Metrics and Tracker 2010-11 (pdf, 58.99 KB) 

2009

Does industry listen to patients and if so why? (pdf, 108.88 KB)  Report on JLA and Association of Medical Research Charities think-tank

Scadding J, Chalmers I, The James Lind Alliance: tackling treatment uncertainties together, RSM News, issue 51, Spring 2009, page 11 

Crowe S, James Lind Alliance Priority Setting Partnerships.  Setting priorities for treatment uncertainties - a review of methods (pdf, 155.99 KB) 

2008

Chalmers I, Confronting therapeutic ignorance. BMJ 16 July 2008; 337 doi: http://dx.doi.org/10.1136/bmj.39555.392627.80  

Firkins L, The problem in setting research priorities: a layman's experience BMJ 4 July 2008; 337 doi: http://dx.doi.org/10.1136/bmj.a212

Thornton H, Patient and public involvement in clinical trials. BMJ 24 April 2008; 336 doi: 10.1136/bmj.39547.586100.80

Ruth Stewart, Sandy Oliver, A systematic map of studies of patients' and clinicians' research priorities (pdf, 586.11 KB). Report

Outcomes in clinical research - whose responsibility? (pdf, 493.52 KB)  Seminar report. 

JLA Annual Report 2007-2008

Report (pdf, 61.92 KB)

Annexe 1 - Performance Tracker (pdf, 37.29 KB)

Annexe 2 - Clinical Trials for Tomorrow, MRC (pdf, 73.15 KB)

Annexe 3 - Strategy and Development Group Members List (pdf, 54.77 KB)

Annexe 4 - Monitoring and Implementation Group Members List (pdf, 9.83 KB)

Annexe 5 - Research for Patient Benefit Programme (pdf, 24.86 KB)

Annexe 6 - UKCRN Patient and Public Involvement Strategic Plan 2006-2008 (pdf, 121.58 KB)

Annexe 7 - UKCRC Patient and Public Involvement Strategic Plan 2008-2011 (pdf, 100 KB)

Annexe 8 - A review of UK health research funding, Sir David Cooksey (pdf, 635.8 KB)

Annexe 9 - JLA workshop to set research priorities in Asthma (pdf, 378.4 KB) 

Annexe 10 - Reflective report on the JLA Asthma Priority Setting Meeting (pdf, 483.1 KB)

Annexe 11 - JLA Urinary Incontinence Working Partnership Protocol (pdf, 213.32 KB)

Annexe 12 - JLA Urinary Incontinence Working Partnership Meeting May 2007 (pdf, 214.67 KB)

Annexe 13 - JLA Urinary Incontinence Working Partnership Meeting March 2008 (pdf, 539.52 KB)

Annexe 14 - JLA Urinary Incontinence Working Partnership publications and articles (pdf, 10.5 KB)

Annexe 15 - JLA Dermatology Research for Patient Benefit bid (pdf, 59.63 KB)

Annexe 16 - Bibliography of research reports about patients', clinicians' and researchers' priorities for new research, Oliver and Gray (pdf, 719.56 KB)

Annexe 17 - Research priority setting in the UK, tender specification (pdf, 45.27 KB) 

Annexe 18 - Research priority setting in the UK, proposal by TwoCan Associates (pdf, 32.2 KB)

Annexe 19 - JLA seminar programme (pdf, 17.27 KB)

Annexe 20 - JLA publications and articles (pdf, 10.94 KB)

Annexe 21 - JLA presentations (pdf, 11.61 KB)

Annexe 22 - JLA website statistics (pdf, 279.87 KB)

Annexe 23 - JLA Affiliates list (pdf, 24.79 KB)

Fenton M, Timimi H, Chalmers I (2006) Development of the Database of Uncertainties about the Effects of Treatments (DUETs): a resource to help identify priorities for new research (pdf, 351.5 KB), September 2004 - January 2005.  

2006

Firkins L, The James Lind Alliance, GIG Today winter newsletter

Brown P, Brunnhuber K, Chalkidou K, Chalmers I, Clarke M, Fenton M, Forbes C, Glanville J, Hicks N, Moody J, Twaddle S, Timimi H, Young P, How to formulate research recommendationsBMJ 2006;333:804 doi: http://dx.doi.org/10.1136/bmj.38987.492014.94

Scadding JW, The James Lind Alliance: an opportunity for neurologists in therapeutic research? Practical Neurology 6:68-71 doi:10.1136/jnnp.2006.088740  

JLA Development Report 2004-2005

Report

Annexe 1 - HSC News article 2004

Annexe 2 - Lancet article, 2004

Annexe 3 - NICE 2004 publication references (pdf, 44.98 KB)

Annexe 4 - Steering Group member list (pdf, 94.75 KB)

Annexe 5 - Introduction to JLA document (pdf, 81.54 KB)

Annexe 6 - Presentations (pdf, 58.34 KB)

Annexe 7 - Programme for JLA meeting, December 2005 (pdf, 119.11 KB) 

Annexe 8 - JLA meeting report, HSC news article 2005

Annexe 9 - Bibliography of JLA relevant studies (pdf, 77.46 KB)

Annexe 10 - Articles about or referring to the JLA (pdf, 62.41 KB)

Annexe 11 - JLA Affiliates list (pdf, 69.2 KB)

Annexe 12 - Asthma Working Partnership chronology (pdf, 160.33 KB)

Annexe 13 - Notes from meeting re proposed Epilepsy Working Partnership (pdf, 75.33 KB) 

Annexe 14 - Process flowchart (pdf, 110.09 KB)

Annexe 15 - Influencing objectives (pdf, 47.33 KB) 

2005

Patients and researchers: tackling treatment uncertainty together, Health and Social Campaigners' News International, published by PatientView, Issue 24, page 16, December 2005

Chalmers I, The James Lind Alliance: Clinical trials registration, Health and Social Campaigners' News International, published by PatientView, Issue 22, pages 15-21, October 2005

House of Commons Health Committee, The Influence of the Pharmaceutical Industry,Fourth Report of the Session 2004-2005, volume 1, The Stationery Office Limited

Dealing with Uncertainty, Clinical Evidence, issue 13, BMJ Publishing Group 2005

Thornton H, Identifying patients' and clinicians' priorities in cancer clinical trials.  In Rawlins M, Littlejohns P, editors.  Delivering Quality in the NHS 2005.  Part Four: James Lind Alliance: identifying patients' and clinicians' priorities for therapeutic research.  Oxford Radcliffe Publishing, 2005: 62-66

Oliver S, Involving the public in health technology assessment: In Rawlins M, Littlejohns P, editors.  Delivering Quality in the NHS 2005.  Part Four: James Lind Alliance: Identifying patients' and clinicians' priorities for therapeutic research.  Oxford: Radcliffe Publishing, 2005: 57-61

Jobling R, Therapeutic research into psoriasis: patients' perspectives, priorities and interests.  In Rawlins M, Littlejohns P, editors.  Delivering Quality in the NHS 2005.  Part Four: James Lind Alliance: identifying patients' and clinicians' priorities for therapeutic research.  Oxford: Radcliffe Publishing, 2005: 53-56 

Arnold F, No commercial potential?  In Rawlins M, Littlejohns P, editors.  Delivering Quality in the NHS 2005.  Part Four: James Lind Alliance: identifying patients' and clinicians' priorities for therapeutic research.  Oxford: Radcliffe Publishing, 2005: 49-52 

2004

Partridge N, Scadding J, The James Lind Alliance: patients and clinicians should jointly identify their priorities for clinical trialsThe Lancet vol 364, No. 9449, p1923-1924, 27 November 2004 doi:10.1016/S0140-6736(04)17494-1

Chalmers I, Well informed uncertainties about the effects of treatmentsBMJ; 328 doi:http://dx.doi.org/10.1136/bmj.328.7438.475 

Chalmers I, Managers should help to address important uncertainties about the effects of treatments, BAMM (British Association of Medical Managers) News, June 2004

Confronting Important Uncertainties about the Effects of Treatments, Health and Society Campaigners' News, Issue 5, March 2004