Priority 7 from the Advanced Heart Failure PSP

UNCERTAINTY: What are the benefits of asking a person with advanced heart failure ‘what is important to them’?  (JLA PSP Priority 7)
Overall ranking 7
JLA question ID 0098/07
Explanatory note

No significant evidence for people with advanced heart failure 
Evidence

No systematic reviews on this topic in past five years
Health Research Classification System category  Cardiovascular
Extra information provided by this PSP
Original uncertainty examples Does asking a person with heart failure what matters most to them help improve their sense of wellbeing, of control?  ~ How are we assessing outcomes for patients with heart failure that are actually related to the patients needs/outcomes? ie returning to work, walking across the room, going in their garden etc. Rather than the outcomes 'we' tend to be focussed on/commissioned for. ~  What are the most important physical symptoms of heart failure to the patient  ~ Is it important to you to know the underlying cause of your heart failure? What are the most important symptoms of advanced heart failure for patients?
Submitted by   4 x health professionals
PSP information
PSP unique ID 0098
PSP name Advanced Heart Failure
Total number of uncertainties identified by this PSP. 65  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 13 February 2019