Priority from the Teenage and Young Adult Cancer PSP

UNCERTAINTY: For young people with incurable cancer, how should parents/carers communicate with them to improve quality of life and experience?
Overall ranking This was one of the 20 questions at the workshop that fell outside of the Top 10. These were not ranked in any order of priority
JLA question ID 0060/29
Explanatory note Communication and sharing information at the right time is a hallmark of good care. Young people with incurable cancer need information to make the best decisions and to live their life to the full. How parents/carers can best communicate with young people will vary, and how they can be supported and educated to do so we still do not know. 
Evidence

None identified
Health Research Classification System category Cancer
Extra information provided by this PSP
Original uncertainty examples How is the best way to tell your child they are not going to get better ~ How to approach the subject if end of life care?
Submitted by 2 x parent/carer
PSP information
PSP unique ID 0060
PSP name Teenage and Young Adult Cancer
Total number of uncertainties identified by this PSP. 185  (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 19 January 2018